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Tag Archives: #pkudiet

Tips for a Low Protein Friendly Halloween

Trick or Treat? When your child is on a low protein diet for an inborn error of metabolism, such as PKU, MSUD, TYR or HCU, sometimes the tricks feel safer than the treats.

Halloween celebrations that center on candy, food and snacks can be tough for kids on restricted diets –and tough for parents who want their children to fully enjoy the festivities.

But it is possible to have fun AND stay on a low protein diet this Halloween?

Here are a few tips, resources, and recipes to help you make it a healthy and happy Halloween.

    Safety First:

  • Be sure to talk with teachers and other parents about what your child can and cannot have at Halloween parties or school activities.

  • Talk with your child about the importance of staying on diet and remind them to check with you to determine if a particular food or candy is safe.

Now to the Fun Stuff:

▪ Get creative with Halloween giveaways. Have non-food treats to hand out at home or at school. Think dollar store toys, stickers, party favors, and coloring books.

▪ Plan an alternative activity to trick-or-treating, such as Halloween slumber party, game night, craft party, or a scavenger hunt.

▪ If there will be cakes or cookies at the party, take low-protein treats for your child to enjoy so that she doesn’t feel left out – Check out Maddy’s Low Protein Sugar Cookie Mix

▪ Consider having a “swap-party” where your child can swap candies she cannot have for “allowed” candies. This way everyone gets what they want!

▪ Make your child’s PKU formula festive! Serve it in a Halloween-themed cup, use fun straws, or add some orange food coloring.

Post Your Formula ‘Dressed-Up’ for Halloween and TAG Nutricia! 

#NutriciaMetabolicNutrition      

More Resources:

Our friends at HowMuchPHE.org have put together a great source to view the Protein and PHE content for common Halloween treats.*

View the Halloween Candy Guide from How Much PHE

Jack O’Lantern Cupcakes

jack-o-lantern-228Surprise that special someone or treat yourself to a Halloween cupcake. These cupcakes are made with Maddy’s Homestyle Yellow Cake Mix.  They are easy to make and great for home, work or parties.

cakePrep time: 5 minutes

Bake time: 30-35 minutes

Makes: 12 cupcakes

Serving Size: 1 cupcake ( 34 g of mix) You will need:

  •  1 can Maddy’s Yellow Cake Mix

  • 1 cup water

  •  1/3 cup vegetable oil

  1. Preheat oven to 350 F.  Grease bottom of cupcake tin.
  2. Stir cake mix, water and oil in a large bowl.
  3. Pour into 12 cupcake servings
  4. Bake for 30-35 minutes or until toothpick inserted in center comes out clean.
  5. Cool 10 minutes before removing from pan.
  6. Cool completely before frosting into your spooky treat.

Precautions
Must be used under strict medical supervision. Not intended as the sole source of nutrition. Not suitable for wheat-free diets.

Makes 12 Cupcakes

Nutrition Per serving
Calories 180
Protein 0.2 g
Phenylalanine 4 mg
Leucine 6 mg

Note:  Any additional frosting or decorations may add additional Protein or PHE, be sure to read labels and account for any topping or decorations.  Nutrition listed is for cake only.

*Nutricia North America is not affiliated with HowMuchPHE.org and has not independently verified the information on HowMuchPHE.org.

PKU Lunch Tips for Back-to-School

katieby – Katie Maquire, Adult with PKU – guest blogger

I don’t know about you, but it was pretty stressful for my parents sending me off to school in September knowing that I would be making many food choices on my own without them present.

back-to-school-imageALL children should learn to make healthy food choices. Children with PKU are no different. Learning to eat low protein and healthy can begin at a young age when you are grocery shopping or prepping food together in the kitchen.

PKU Friendly Lunch Tips for Back-to-School:

  • Pack lunch in fun, colorful containers in all different sizes.

  • Use an insulated lunch tote with ice packs to keep food and formula cool.

  • Make lunch colorful with a small amount of different veggies, such as baby carrots, cherry tomatoes, cucumbers, yellow peppers, etc.

  • Prepare, weigh and measure food ahead of time to speed up mornings.

  • Involve your child in shopping, prepping and weighing their own lunch.iStock_000015639017Medium

  • Give your child a low protein “surprise” snack, like Maddy’s Low Protein Sugar Cookies.

  • Write a special good job note or include a sticker 2-3 times a week.

  • Send formula in a fun re-usable drink container or sports bottle.

  • Plan ahead with a 5-day menu to ease grocery shopping and food prep.

  • Try a Ready-To-Drink PKU formula if unable to mix formula at school.*

Katie Maguire is an adult with PKU.  She is currently a second grade school teacher.

*Important:  You must consult a metabolic healthcare professional prior to making any changes in your child’s PKU diet plan.

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Looking for a new Back-To-School PKU Formula?  For a limited time:

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Make PKU Formula Part of Your Daily Routine

If you have Phenylketonuria (PKU), then you know PKU formula is part of your life.  

PKU Formula is one of the most important parts of your diet.

Since PKU is generally managed with a diet low in whole protein, you need to get additional, PKU-appropriate protein from a different source.

PKU formula is your main source of protein and is essential for your health and well-being. Taking your full prescription of formula every day will provide your body with the protein it needs.

 

Here are some tips to help make PKU formula part of your daily routine
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Learn more about Why you need PKU Formula with these tips for Making PKU Formula Part of your Routine 

Download Now

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Get Creative with PhenylAde™ 60

You are busy, so don’t let your PKU formula slow you down.   Grab a store bought (protein-free) drink and add PhenylAde 60 to create a custom PKU formula you can enjoy anywhere, anytime!

Check out these great, 1-step recipes featuring PhenylAde 60.

ICED COFFEE

ICED TEA

ORANGE DRINK

REQUEST A SAMPLE NOW

1 serving (16.7 g) of PhenylAde 60:

  • Only 49 Calories

  • 10 g protein equivalent (PE)

  • Low Volume (mix with only 3 fl oz of cold water)

Try It Today!

 

 

 

 

Does your child love low protein pasta?

My child would eat pasta every day, every meal if I let him. It is great he found a food he enjoys, but I want my son to eat more vegetables and other healthy foods that provide fiber and other nutrients.

Here are some ideas to feed your child’s low protein pasta cravings, but to make your low protein pasta last longer and provide more dietary variety.

Soup 

Dicing carrots and celery (the smaller the better for young kids) and simmering in a vegetable broth with low protein pasta added is a low pro and filling lunch or dinner.   311You can use Loprofin Animal Pasta, Rice, or broken Spaghetti to keep it new and exciting.   Fresh dill adds a great ‘soup’ flavor and expand your child’s taste  palate.

Veggie Noodles 

Bulk up your Low Protein Spaghetti by mixing 278with Zucchini or Yellow Squash noodles. With a spiral vegetable slicer this only takes minutes and can really satisfy a bigger appetite.

 Spicy Vegetables over Low Pro Rice Pasta

You can do so many different meals with fresh or frozen cauliflower and carrots, which are Vegetable Curryboth naturally quite low in protein. Often, people on a low protein diet enjoy spice. Check out this recipe for Indian Curry with Loprofin Rice.

 Dish it out slow 

I often serve my son a small amount of pasta, which he gobbles up. Then ask him to eat 3-4 bites of the vegetables on his plate. Once done I serve another small portion of pasta and repeat. All children are motivated differently, but that love of pasta usually is an incentive to eat more veggies at meal time.

 Roll it up 

Kids love to eat with their hands (or at least my son does). Use Loprofin Lasagna to make a salad roll-up or other roll-up filled with veggies. Try filling a pasta roll-up with a blend of mashed potato and mashed cauliflower for a yummy kid friendly dinner entree.

Loprofin_Pastas

 

Order Loprofin Low Protein Pasta online at medicalfood.com

 

Written by Sandy Simons, MA, RD, CHES

Flying with Formula – Tips for your Next Trip

Flying with Formula – Tips for your Next Trip

airplane girl image

If you are planning a flying vacation, before you book, contact your airline’s customer service department to notify them of your travel requirements as soon as you can.  Airline policies regarding travelling with metabolic formula will differ so it is worth checking with a customer service representative before you arrive at the airport.

Airplane food is generally not PKU or low protein diet-friendly so you may need to pack (or purchase prior to boarding) any food or snacks you think you might need during the flight.

If you are booking an international flight you will need to order a special meal. Please note that even meals listed as low-protein or vegetarian/vegan may not be low enough in protein for the PKU diet, so explain your dietary requirements clearly.

Airline Tips

  • Always take a travel letter from your clinic explaining your medical condition, especially for international travel

  • Always pack extra PKU or metabolic formula in your carry-on bag in case of delays

  • Do not mix PKU or metabolic formula powders with liquid until you go past the security screening checkpoint

  • Keep your PKU or metabolic formula in its original sealed containers (packages, cans or sachets)

  • Take a copy of your child’s diet prescription with you

  • Take plenty of snacks for the flight

Useful PKU Traveler’s Tip

  • It may be useful to switch to a powdered PKU or metabolic formula when travelling abroad, to reduce your overall luggage weight. However, ready-to-drink pouches that don’t require mixing are also particularly convenient when traveling. Contact your dietitian for more information on these options

  • If you are traveling overseas, ask your metabolic healthcare professional team for information on where low-protein food supplies can be obtained in your destination country

  • If you are shipping your PKU or metabolic formula or food to a hotel prior to your arrival, be sure to label the box clearly with your name and arrival date on the package. Call and alert the hotel that a shipment will be arriving for you.

*Reference Source: My PKU Binder. National PKU Alliance. Chapter 11: Traveling, Page 88-89.

Ready-to-Drink PKU Formula

Busy Schedules.  Hectic Mornings.   After School Activities.  Road Trips.  Family Vacations.  Sleep Over at a Friends. 

Just a few things that may cause you to skip a serving of formula or slow you down on a busy day.  Ready-to-Drink PKU Formula can help you save time and drink on the go!

Check out this Video  – Request A Sample

View more PKU Videos from Nutricia

Nutricia’s Top 10 PKU Formula Options for Adults

PKU is Diet-for-Life. Get back on track and find a PKU Formula you can enjoy drinking. 

Nutricia Metabolics is proud to offer the largest selection of PKU formulas and flavors.  Nutricia also offer free samples* so you can see which product and flavor is best for you.

Top 10 PKU Formulas for Adults

Try 1, try them all!

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Request a FREE product sample direct from Nutricia at www.medicalfood.com

 

*All samples are verified with a metabolic healthcare professional prior to shipping.  All PKU formulas must be used under medical supervision.

How does PhenylAde GMP taste? Ask David.

 

My name is David Harris. I’m 40 years old and I was diagnosed with classical PKU.

When I tasted the PhenylAde GMP product, it was very easy to drink, it was very smooth, and in comparison to other products in the market, I actually preferred it.

Formula taste is key. It’s very important, because without a good taste, and a good consistency; it’s very difficult to get down.

If it tastes good, then I’ll drink it.


Curious to try PhenylAde GMP?

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