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Tag Archives: pku adults

College & PKU: Getting Ready for the Next Chapter

PKU-Teen College Image
The completion of high school and the transition into the next chapter of education is a very exciting time. Applying to colleges, receiving the ‘fat envelope’, choosing classes, moving away from home, and living with a roommate for the first time, are all new and exciting experiences.

Arriving on campus and the first few weeks at college will bring about big change in your life: you will meet a variety of people and get introduced to your home away from home.

The one thing that remains constant is adhering to your low protein diet and drinking your PKU formula daily.  Keeping your phenylalanine (PHE) levels in control when you don’t have your family watching over you may be more difficult than anticipated, but at the same time, more important than ever.

The key is to FOCUS and make a PLAN!  Commit yourself to your PKU diet.  Long lectures, late nights studying and preparing for exams will require you to be at your best and drinking your PKU formula daily, spread throughout the day will be one of your tickets to success.  As you know, thinking skills and memory can decline with high PHE levels.

Be prepared! Write out your daily schedule and include dedicated time to mix and drink your PKU formula. This will help make formula part of your day and reduce accidental skips.

Tips for Drinking PKU Formula on Campus*

  • Add formula powder to an empty water bottle (or other reusable container) that you can fill with water later for formula anywhere, anytime.
  • Is your dorm far from campus? Rent a locker at the school gym or student union to keep your formula so you can refuel in between classes.
  • Choose a formula that is sold in single-serving, travel  friendly packaging.  Powders in little pouches can easily be added to store-bought beverages while on campus or out with friends.

Examples include:

PhenylAde® GMP READY is a ready-to-drink PKU formula that provides 10 g of protein equivalent (PE) with a smooth, neutral taste.

Periflex® LQ  is a ready-to-drink PKU formula that provides 15g PE in a highly portable and easy-to-drink container ideal for on-the-go campus life.

Lophlex® LQ is a ready-to-drink PKU formula that provides 20g PE in only 4.2 fl oz.  Quick and easy to drink so you can get back to the books.

PhenylAde GMP Mix-In is a powdered PKU formula available in highly portable pouches that provides 10 g PE per serving and easily mixes with water, flavored drinks, sports drinks or other PKU formula.

Note: PhenylAde GMP Mix-In should not be used as a sole source of protein but must be given in conjunction with whole protein and other nutrients to supply the phenylalanine, fluid and general nutrition requirements of the individual in medically prescribed quantities. Must combine with an appropriate vitamin and mineral source when taking as the sole source of amino acid protein.

REQUEST A SAMPLE of a Campus Friendly PKU Formula from Nutricia today!

*Always refer to product label for consumption and storage instructions.

All products shown are medical foods for the dietary management of proven phenylketonuria (PKU) and must be used under medical supervision.

Talk with your metabolic dietitian or clinic to find out which PKU formula from Nutricia may be right for you.  Always consult a healthcare professional prior to making any changes in your PKU diet plan.

Your Guide to Getting Back on the PKU Diet

PKU is Diet-for-Life.  It’s Never Too Late to go back on diet.  

   Book Cover

Request a free copy of this helpful booklet “Your Guide to Getting Back on the PKU diet” and help yourself or someone you love get re-started on the PKU diet today!

This book contains:

  • Facts and Myths about the PKU and the diet

  • Tips for making formula part of your life again

  • Top 10 Nutricia PKU formulas for adults

  • Contact information to find a clinic and get re-started on diet

  • Inspiring quotes for PKU adults and more…

PKU Q&A
Tips for Making PKU Formula part of your life (1)

 

Top 10 PKU Formulas for Adults

REQUEST YOUR COPY

Flying with Formula – Tips for your Next Trip

Flying with Formula – Tips for your Next Trip

airplane girl image

If you are planning a flying vacation, before you book, contact your airline’s customer service department to notify them of your travel requirements as soon as you can.  Airline policies regarding travelling with metabolic formula will differ so it is worth checking with a customer service representative before you arrive at the airport.

Airplane food is generally not PKU or low protein diet-friendly so you may need to pack (or purchase prior to boarding) any food or snacks you think you might need during the flight.

If you are booking an international flight you will need to order a special meal. Please note that even meals listed as low-protein or vegetarian/vegan may not be low enough in protein for the PKU diet, so explain your dietary requirements clearly.

Airline Tips

  • Always take a travel letter from your clinic explaining your medical condition, especially for international travel

  • Always pack extra PKU or metabolic formula in your carry-on bag in case of delays

  • Do not mix PKU or metabolic formula powders with liquid until you go past the security screening checkpoint

  • Keep your PKU or metabolic formula in its original sealed containers (packages, cans or sachets)

  • Take a copy of your child’s diet prescription with you

  • Take plenty of snacks for the flight

Useful PKU Traveler’s Tip

  • It may be useful to switch to a powdered PKU or metabolic formula when travelling abroad, to reduce your overall luggage weight. However, ready-to-drink pouches that don’t require mixing are also particularly convenient when traveling. Contact your dietitian for more information on these options

  • If you are traveling overseas, ask your metabolic healthcare professional team for information on where low-protein food supplies can be obtained in your destination country

  • If you are shipping your PKU or metabolic formula or food to a hotel prior to your arrival, be sure to label the box clearly with your name and arrival date on the package. Call and alert the hotel that a shipment will be arriving for you.

*Reference Source: My PKU Binder. National PKU Alliance. Chapter 11: Traveling, Page 88-89.