The return to school is an exciting time of year. But for a parent of a child with a metabolic disorder, such as Phenylketonuria (PKU), there are also certain concerns and stresses that comes with the start of school.
Each year you may be faced with educating a new teacher or school nurse about PKU.
What is PKU?
How it is Treated?
What that means to the teacher and fellow students…
Nutricia Metabolics is proud to share an educational handout to help you inform your child’s new teacher and/or school nurse about PKU.
It includes information about What PKU is, What happens, How it is treated with additional classroom tips for the teacher.
Nutricia also provides information and education available about other rare metabolic disorders such as Maple Syrup Urine Disease (MSUD), Tyrosinemia (TYR), Glutaric Aciduria Type-1 (GA-1), Homocystinuria (HCU) and more available online at medicalfood.com/connect
Families like yours told us they wanted more educational tools to help better understand and teach others about their child’s metabolic disorder.
We heard you!
Nutrica is proud to share new, easy to understand, educational books and videos help breakdown complex disorders so you can use them to educate others in your community. You may also find them helpful in teaching your child about his/her disorder.
For now, these books and videos are available for PKU, MSUD and GA-1. Our team is working hard to create more for other rare disorders and make them available in Spanish and French.
Want a printed copy of the Temple Books?
Click HEREfor a PDF copy of the Temple Books you can download and print at home.
We understand it can be an overwhelming time when your child is diagnosed with a metabolic condition and you will have a lot of questions. Many of your initial questions are best answered by members of your healthcare team – they are the medical experts! In addition, we are here for you through our Nutricia Connect program.
After speaking to parents and individuals with a metabolic condition, we created Nutricia Connect – a comprehensive program that supports families like yours. Here are a few of the support tools available through Nutricia Connect.
Let us know in the comment section which of the resources you would find helpful.
Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.
There are thousands of children in the United States with medical conditions which require restrictive, medically-supervised diets. To live and thrive, many children are dependent on specialized medical foods and formulas. However, often times the important products that families need are not entirely covered by insurances. The families of these children face many worries and an enormous financial burden trying to ensure their children receive proper nutrition.
This is where Children’s Medical Nutrition Alliance (CMNuA) comes in. CMNuA is a 501(c) 3 non-profit organization that supports families in covering a major portion of their medical nutrition expenses in cases where the child’s insurance is unable to help. The money they use to help these families comes from financial donations and fundraising events.
CMNuA empowers, educates, assists, advocates for and supports ALL patients who require medical nutrition. In doing so, CMNuA has created the first-ever national coalition dedicated to enhancing the lives of all patients in need of medical nutrition regardless of their underlying condition.
Around The World in 60 Days Challenge (#ATW60D)
At Nutricia, the makers of Periflex®, Anamix®, PhenylAde®, Complex, GlutarAde™ and Lophlex® brand medical food formula, we understand the struggles these families go through and how necessary CMNuA is for them. That is why this year we have challenged ourselves to virtually Walk Around the World in 60 days in support of CMNuA. The challenge will require our team to collectively walk 25,000 miles in 60 days.
Nutricia North America will donate $10,000 to CMNuA if the goal is met! Our challenge started on March 15th and will continue until May 10, 2017.
The virtual walk will be divided into 4 phases. We will track our progress via fitness trackers and will report on them over the coming weeks.
Will You Join Us?
Help us to help CMNuA by sponsoring the challenge! Join us in supporting these families with a gift to CMNuA and have your donation doubled by Nutricia. Every dollar counts for this incredible non-profit organization. Nutricia North America pledges to match external donations up to $3,000.
For many, the new year marks a time for reflection and change. If you are thinking about trying a new PKU formula, here are some great options from Nutricia Metabolics.
Click the Product Image to Request a Sample
Looking for a GREAT tasting PKU formula that contains Glycomacropeptide (GMP), made from a whole protein source? You found it! Now in 2 great options.
10 g of PE | 5 fl oz | 15.3 mg PHE | 132 calories
When great taste and PKU nutrition meet,
you’ll find PhenylAde Essential. Choose from 5 delicious flavors. Available in cans or single serve pouches.
10 g of PE | 7 fl oz | 157 calories
If you are looking for flexible and convenient, this is the PKU formula for you! Available in 3 great flavors and made with real fruit juice from concentrate. You are sure to give this formula a ‘LIKE’ status.
20 g of PE | 4.2 fl oz | 120 calories
Ever wish for a PKU formula you could just open and drink? Wishes do come true with this ready-to-drink PKU formula. Best of all, it is easy to drink with a smooth and creamy taste.
15 g of PE | 8.5 fl oz | 160 calories
If you are looking to meet your total PKU formula needs with less-to-drink, then PhenylAde 60 is for you. Great for Adults & Teens!
10 g of PE | 3 fl oz | 49 calories
Be sure to speak with your metabolic clinic prior to making any changes to your PKU diet plan. All sample request will be verified by your clinic prior to shipping.
Thank you so much to everyone who participated in the #NutriciaMetabolics #Pushups4PKU challenge, which ended on National PKU Awareness Day, December 3rd, 2016.
Nutricia North America is proud to have been a part of a movement to help raise awareness of PKU and raise funds to support NPKUA and CanPKU.
The outpouring of support from the community has been amazing! There are so many wonderful videos from families, school classes, sports teams, colleagues, fitness classes, kindergarten classes, metabolic clinics, healthcare professionals and friends that have truly touched us. We thank everyone who took part and shared their dedication and support for those affected by PKU.
We are proud to announce that we exceeded our initial goal and cap of 600 push-up participants from all over the world. We’ve had:
over 100 videos shared on Instagram
over 300 videos posted on Facebook
over 100 videos posted directly onto our Facebook page
over 10,000 reach of likes, shares and comments
We couldn’t have done without your support.
We are pleased to be able to donate this shared amount of $3,000 in total to NPKUA and CanPKU.
Thank you to all for your push-ups in support of PKU.
If you would like to make a donation to either NPKUA or CanPKU, simply click the logos below:
Nutricia North America is once again proud to support the National PKU Alliance (NPKUA) and Canadian PKU and Allied Disorders Inc. (CanPKU) by sponsoring the annual Push-Ups for PKU Challengeto help raise PKU awareness and money for PKU research.
From November 3rd through National PKU Awareness Day on December 3rd, 2016, Nutricia North America will donate $5 for each video of a person or group of people doing at least 5 push-ups in support for PKU.
Get involved and challenge your friends to help spread the message of PKU Awareness!
To have your push-up video counted for a donation* be sure to post with both hashtags:
Anyone can do it! You can do the push-ups on your knees, on your toes, or even against a wall. You can even lift a can of formula in the air 5 times or get creative otherwise. So don’t delay, do your push-ups today!
You can also donate directly to these non-profit PKU organizations to help support PKU Awareness:
Nutricia does not assume and it hereby expressly disclaims any and all liability to any person or entity for any claims, damages, liability or other loss in connection with this contest. In no event shall Nutricia be liable to any person or entity for any direct, special, exemplary, indirect, incidental, consequential or punitive damages of any kind or nature whatsoever (including, without limitation, any liability for injury or other damage related in any way to participation in this contest directly or indirectly) whether in an action based on contract, warranty, strict liability, tort (including, without limitation, negligence) or otherwise, even if Nutricia has been informed in advance of the possibility of such damages or such damages could have been reasonably foreseen by Nutricia. Nutricia will cap the donation to a maximum of 600 videos during this time period or up to $3000.