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Nutricia Connect – Supporting you to live life to the fullest!


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We understand it can be an overwhelming time when your child is diagnosed with a metabolic condition and you will have a lot of questions. Many of your initial questions are best answered by members of your healthcare team – they are the medical experts! In addition, we are here for you through our Nutricia Connect program.

After speaking to parents and individuals with a metabolic condition, we created Nutricia Connect – a comprehensive program that supports families like yours. Here are a few of the support tools available through Nutricia Connect.

about-nutricia-connect

Let us know in the comment section which of the resources you would find helpful.

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

Tips for a Low Protein Friendly Halloween

Trick or Treat? When your child is on a low protein diet for an inborn error of metabolism, such as PKU, MSUD, TYR or HCU, sometimes the tricks feel safer than the treats.

Halloween celebrations that center on candy, food and snacks can be tough for kids on restricted diets –and tough for parents who want their children to fully enjoy the festivities.

But it is possible to have fun AND stay on a low protein diet this Halloween?

Here are a few tips, resources, and recipes to help you make it a healthy and happy Halloween.

    Safety First:

  • Be sure to talk with teachers and other parents about what your child can and cannot have at Halloween parties or school activities.

  • Talk with your child about the importance of staying on diet and remind them to check with you to determine if a particular food or candy is safe.

Now to the Fun Stuff:

▪ Get creative with Halloween giveaways. Have non-food treats to hand out at home or at school. Think dollar store toys, stickers, party favors, and coloring books.

▪ Plan an alternative activity to trick-or-treating, such as Halloween slumber party, game night, craft party, or a scavenger hunt.

▪ If there will be cakes or cookies at the party, take low-protein treats for your child to enjoy so that she doesn’t feel left out – Check out Maddy’s Low Protein Sugar Cookie Mix

▪ Consider having a “swap-party” where your child can swap candies she cannot have for “allowed” candies. This way everyone gets what they want!

▪ Make your child’s PKU formula festive! Serve it in a Halloween-themed cup, use fun straws, or add some orange food coloring.

Post Your Formula ‘Dressed-Up’ for Halloween and TAG Nutricia! 

#NutriciaMetabolicNutrition      

More Resources:

Our friends at HowMuchPHE.org have put together a great source to view the Protein and PHE content for common Halloween treats.*

View the Halloween Candy Guide from How Much PHE

Jack O’Lantern Cupcakes

jack-o-lantern-228Surprise that special someone or treat yourself to a Halloween cupcake. These cupcakes are made with Maddy’s Homestyle Yellow Cake Mix.  They are easy to make and great for home, work or parties.

cakePrep time: 5 minutes

Bake time: 30-35 minutes

Makes: 12 cupcakes

Serving Size: 1 cupcake ( 34 g of mix) You will need:

  •  1 can Maddy’s Yellow Cake Mix

  • 1 cup water

  •  1/3 cup vegetable oil

  1. Preheat oven to 350 F.  Grease bottom of cupcake tin.
  2. Stir cake mix, water and oil in a large bowl.
  3. Pour into 12 cupcake servings
  4. Bake for 30-35 minutes or until toothpick inserted in center comes out clean.
  5. Cool 10 minutes before removing from pan.
  6. Cool completely before frosting into your spooky treat.

Precautions
Must be used under strict medical supervision. Not intended as the sole source of nutrition. Not suitable for wheat-free diets.

Makes 12 Cupcakes

Nutrition Per serving
Calories 180
Protein 0.2 g
Phenylalanine 4 mg
Leucine 6 mg

Note:  Any additional frosting or decorations may add additional Protein or PHE, be sure to read labels and account for any topping or decorations.  Nutrition listed is for cake only.

*Nutricia North America is not affiliated with HowMuchPHE.org and has not independently verified the information on HowMuchPHE.org.

Top 10 Reasons to Add Phlexy-10 Tablets to your PKU diet plan

Tired of always  DRINKING your PKU formula?  Did you know that there are other options?

Nutricia offers, Phlexy-10 Tablets, a convenient way to take your PKU medical food:

12 Tablets = 10 g Protein Equivalents

 

Phlexy-10 Tablets

*Speak to your dietitian to see if Phlexy-10 Tablets are right for you.

Here are our Top 10 reasons to use Phlexy-10 Tablets.   Which one is your top reason?

10. You can take tablets at night instead of skipping that last serving of formula

9. Easy to take at school or before sports practice / other after school activities

8. Tablets won’t cause your locker or work area to smell like formula

7. Lightweight source of PHE-Free protein when hiking or camping

6. A simple way to stay on diet when you just don’t want to drink PKU formula

5. Prevents having to explain about your “special drink” when with other people

4. Tablets can add flexibility to a busy day

3. Easy to pack or carry when away from home for long periods of time

2. No messy liquid spills in your bag or purse

1. A quick and easy source of PHE-Free protein you can take ANYWHERE!

 

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Don’t Skip Your Last Serving of PKU Formula!

Talk to your Metabolic Dietitian Today!

 

* For the dietary management of proven Phenylketonuria (PKU).  Use under medical supervision. You must consult a metabolic healthcare professional prior to making changes to your PKU diet plan.

 

Make PKU Formula Part of Your Daily Routine

If you have Phenylketonuria (PKU), then you know….PKU formula is one of the most important parts of your diet.

Since PKU is generally managed with a diet low in whole protein, you need to get additional, PKU-appropriate protein from a different source.

PKU formula is your main source of protein and is essential for your health and well-being. Taking your full prescription of formula every day will provide your body with the protein it needs.

 

Here are some tips to help make PKU formula part of your daily routine
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Learn more about Why you need PKU Formula with these tips for Making PKU Formula Part of your Routine 

Download Now

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College & PKU: Getting Ready for the Next Chapter

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The completion of high school and the transition into the next chapter of education is a very exciting time. Applying to colleges, receiving the ‘fat envelope’, choosing classes, moving away from home, and living with a roommate for the first time, are all new and exciting experiences.

Arriving on campus and the first few weeks on campus will be exciting and full of change.  You will meet a variety of new people and have many new experiences.  The one thing that remains constant is adhering to your low protein diet and drinking your PKU formula daily.  Keeping your PHE levels in control when you don’t have your family watching over you may be more difficult than anticipated, but at the same time, more important than ever.

The key is to FOCUS and make a PLAN!  Commit yourself to your PKU diet.  Long lectures, late nights studying and preparing for exams will require you to be at your best and drinking your PKU formula daily, spread throughout the day will be one of your tickets to success.  As you know, elevated blood PHE levels are linked to reduced executive function skills such as memory, recall and concentration.

Write out your daily schedule and include dedicated time to mix and drink your PKU formula.  This will help make formula part of your day and reduce accidental skips.

Tips for Drinking PKU Formula on Campus

  • Add formula powder to an empty water bottle (or other reusable container) that you can fill with water later for formula anywhere, anytime.
  • Is your dorm far from campus? Rent a locker at the school gym or student union to keep your formula so you can refuel in between classes and don’t have to go all the way back to your room.
  • Choose a formula that is sold in single-serving, travel  friendly packaging.  Powders in little pouches can easily be added to store-bought beverages while on campus or out with friends.

Examples include:

Periflex® LQ  is a ready-to-drink formula that provides 15g PE in a highly portable and easy-to-drink container for long days on campus.Back-to-School with Periflex LQ - TEENS

PKU Lophlex® LQ is a ready-to-drink formula that provides 20g PE in only 4.2 fl oz.  Quick and easy to drink down and get back to the book.

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PhenylAde 60®  is a low volume formula that mixes with only 3 fl oz of water for 10g of PE or any protein-free beverage you enjoy.

Great for Adults & Teens. Try it Today!

Check out these simple on campus mixing ideas:

 

REQUEST A FREE SAMPLE of a Campus Friendly PKU Formula today!

 

Talk with your metabolic dietitian or clinic to find out which PKU formula from Nutricia may be right for you.  Always consult a healthcare professional prior to making any changes in your PKU diet plan.

Get Creative with PhenylAde GMP for PKU

View Product Details

View Product Details

PhenylAde GMP Drink Mix is available in a great tasting neutral flavor (Original) or a mild vanilla flavor (Vanilla), but for people who like to get creative this formula can be turned into additional flavors.

Try one - Try them all!

Try one – Try them all!

Simply mix serving (33.3 g) with 5 – 6 fl oz (150 mL – 180 mL) and then customize to your favorite flavor.

Here are some additional great tasting recipes featuring PhenylAde GMP Drink Mix.

GMP recipes

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Some people may use this product as their main PKU formula or just as part of their PKU diet plan.

Talk to your metabolic healthcare professional to see if PhenylAde GMP Drink Mix is right for you or your child.

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 View other great product for the dietary management of Phenylketonuria (PKU) at www.medicalfood.com

 

NOTE:   *Always consult your metabolic dietitian or physcian prior to making any changes to your PKU diet plan and to see if PhenylAde GMP is right for you.

 

Making the Most of Your Meal

Satisfaction from food or a meal is something everyone wants. Although many foods may be restricted or limited on a low protein diet, you do not have to compromise taste. Selecting the  foods you eat involves a variety of factors. We choose foods based on taste and smell, in addition to texture, sight and culture.

To make the most of your meal, begin by identifying what you crave, like spicy, sweet, crunchy or salty. This will make your meal more satisfying.Here are some tips to help you make the most of your meal.

  • Spicy: Add seasonings that can add a kick. For example, add cracked pepper, crushed red pepper or hot sauce to steamed vegetables to give a familiar item a new twist.

  • Sweet & Tangy:  Satisfy your sweet and tangy craving with grilled pineapple topped with BBQ sauce on a low protein bun. You can also add mandarin oranges and Italian dressing to a garden salad for added flavor and tang.

  • Crunchy: With a little creativity you can add a snap to any dish. Make your own salad iStock_000015639017Mediumcroutons with low protein bread. Season them in a variety of ways by using garlic powder, cayenne pepper or Italian herbs depending on your personal desire for savory or spice. Another great way to add crunch is to include raw vegetables, like cucumbers or carrots slices to a salad or sandwich.

  • Salty: Salt is among the most popular taste craving. Although highly desired, salt is an ingredient to be used in moderation. A little bit goes a long way. To satisfy your craving for salt, try slicing fresh potatoes very thin and sprinkling with garlic and a touch of sea salt. Bake them until crisp for a satisfying addition to your meal or snack.  

  • Smooth and Creamy: Create your own creamy low protein dip with your favorite seasonings for a flavorful way to enjoy Low Protein Crackers or fresh cut vegetables. You can also include a sweet treat at the end of your meal to help satisfy your need for something smooth and creamy.

Low Protein Summer Salads

Beat the heat and satisfy your appetite with a cool summer salad!

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Summer is the perfect time to enjoy fruits and vegetables at the peak of freshness.  A make-your- own salad station makes a great addition to any cookout or pool party. You can also spice up a green garden salad by bringing along your favorite toppings and low protein dressing.

Try these themed salads for a fresh take on the usual bed of greens:

Fajita Salad: Create a colorful nutrient-packed meal by topping your salad greens with sautéed red and green bell peppers, onions and zucchini.

Mushroom Salad: Portobello mushrooms sautéed in fresh garlic or grilled can turn an ordinary salad into a savory meal.

Fruit Salad: Add diced apple, dried cranberries, diced peaches and grapes over greens. Toss with a light vinaigrette dressing for a sweet and tangy summer treat.

Mexican Salad: Spice up your salad with finely diced black olives, onions, cucumbers and tomatoes. Add jalapeños and salsa for an extra kick.

Roasted Vegetable Stacker: Toss coarsely chopped zucchini, eggplant, red pepper and onion in garlic oil and roast until tender. Serve piled high over a bed of salad greens.

Ratatouille Salad: Stew diced eggplant, olives, zucchini, garlic and onion in a broth made of tomato puree mixed with water. Allow to cool. This tasty topping can be served over greens or chilled low protein pasta to create a unique summer salad.
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Turn your summer salad creation into PKU friendly protein source

Just mix 1 pouch (12.5g) of PhenylAde® GMP Mix-In (PKU formula) into 2 Tbsp of salad dressing for 10g of Protein Equivalents  

Note: Be sure to eat the entire serving.
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PhenylAde® GMP Mix-In contains Glycomarcopeptide (GMP), made from a whole protein source!

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Are you using a Maxamaid or Milupa formula?

You may have heard the news, and if not, we are glad you stopped by.

The past couple of years have been exciting as we have enhanced our products to be in line with the latest nutritional guidelines and grow with patients from infancy to adulthood.

We proudly introduced our Anamix® Early Years line for infants with the added benefits of DHA & ARA and prebiotic fiber to be closer to breast milk than ever before*! In addition, we launched the Anamix® Next line of products, which contain added DHA & a multi-fiber blend.

Having improved our Metabolic formulas we are no longer suppling Maxamaid** and Milupa formulas after June 2017 or until supplies last. Please see attachments for specific products and alternative options to transition to.

We are confident that these changes are in the best interest of metabolic patients; however, we certainly understand the challenges that may come with transitioning to new formula. If you are currently using a Maxamaid or Milupa formula please follow the steps below to start your transition:

  1. Contact your clinic/healthcare professional to find other products within our portfolio and start the transition process. You can view our formulas by disorder below but please do not initiate a transition on your own.

  2. If you have questions regarding insurance reimbursement, contact our Reimbursement Care team Monday – Friday 8:30am – 5:00pm EST at 1-800-605-0410.

  3. If you have product related questions or need help finding a supplier for your new formula, contact our Customer Service team Monday – Friday 8:30am – 5:00pm EST at 1-800-605-0410

Please know our goal is to provide the best nutrition possible, and we are committed to bringing the best metabolic products to you and your family.

Sincerely,

The Nutricia Metabolic Team

*Compared to Nutricia’s Periflex Infant and Analog formulas

** With the exception of XMet, XCys Maxamaid

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PKU is Diet-for-Life.  It’s Never Too Late.

Celebrate PKU Awareness Month by Returning to the PKU Diet!

 

D4L

 It’s Never Too Late. You can do it.  You are not alone!

Meet David.  An Adult who returned to the PKU diet.

“My name is David Harris. I am 40 years old and I have classical
PKU. I am a first generation PKU’er which means I was born
before PKU was known to be Diet-for-Life. I was taken off-diet
at the age of 6. I struggled through school and always wondered
why things were so difficult for me.”

“Then it happened. I saw a TV show that said PKU was diet-for-
life and what happens to your body when you are not on
diet. That day I knew I had to get myself back on a low protein
diet and drink a PKU formula. It took time to re-learn the diet
and adjust my eating habits, but when I went back on diet my
life improved and now feel a lot better.”

You can do it – and Nutricia Metabolics is here to help.

  • We can help you learn about new PKU formula options

  • Connect you with a metabolic clinic

  • Provide PKU formula samples to help you find one you will enjoy drinking

  • Explore your insurance plan for PKU formula coverage

  • Share recipes and low protein cooking tips

Get Back to Diet Now!   Don’t Delay!

Contact Nutricia:  800-605-0410   

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Share Your Story!    Tell Nutricia more about you and help inspire others to return to the PKU diet!

Email Us: DietforLife@Nutricia.com