The return to school is an exciting time of year. But for a parent of a child with a metabolic disorder, such as Phenylketonuria (PKU), there are also certain concerns and stresses that comes with the start of school.
Each year you may be faced with educating a new teacher or school nurse about PKU.
What is PKU?
How it is Treated?
What that means to the teacher…
Nutricia Metabolics is proud to share an educational handout to help you inform your child’s new teacher and/or school nurse about PKU.
It includes information about What PKU is, What happens, How it is treated with additional classroom tips for the teacher.
by – Katie Maquire, Adult with PKU – guest blogger
I don’t know about you, but it was pretty stressful for my parents sending me off to school in September knowing that I would be making many food choices on my own without them present.
ALL children should learn to make healthy food choices. Children with PKU are no different. Learning to eat low protein and healthy can begin at a young age when you are grocery shopping or prepping food together in the kitchen.
PKU Friendly Lunch Tips for Back-to-School:
Pack lunch in fun, colorful containers in all different sizes.
Use an insulated lunch tote with ice packs to keep food and formula cool.
Make lunch colorful with a small amount of different veggies, such as baby carrots, cherry tomatoes, cucumbers, yellow peppers, etc.
Prepare, weigh and measure food ahead of time to speed up mornings.
Involve your child in shopping, prepping and weighing their own lunch.
The completion of high school and the transition into the next chapter of education is a very exciting time. Applying to colleges, receiving the ‘fat envelope’, choosing classes, moving away from home, and living with a roommate for the first time, are all new and exciting experiences.
Arriving on campus and the first few weeks on campus will be exciting and full of change. You will meet a variety of new people and have many new experiences. The one thing that remains constant is adhering to your low protein diet and drinking your PKU formula daily. Keeping your PHE levels in control when you don’t have your family watching over you may be more difficult than anticipated, but at the same time, more important than ever.
The key is to FOCUS and make a PLAN! Commit yourself to your PKU diet. Long lectures, late nights studying and preparing for exams will require you to be at your best and drinking your PKU formula daily, spread throughout the day will be one of your tickets to success. As you know, elevated blood PHE levels are linked to reduced executive function skills such as memory, recall and concentration.
Write out your daily schedule and include dedicated time to mix and drink your PKU formula. This will help make formula part of your day and reduce accidental skips.
Tips for Drinking PKU Formula on Campus
Add formula powder to an empty water bottle (or other reusable container) that you can fill with water later for formula anywhere, anytime.
Is your dorm far from campus? Rent a locker at the school gym or student union to keep your formula so you can refuel in between classes and don’t have to go all the way back to your room.
Choose a formula that is sold in single-serving, travel friendly packaging. Powders in little pouches can easily be added to store-bought beverages while on campus or out with friends.
Periflex® LQ is a ready-to-drink formula that provides 15g PE in a highly portable and easy-to-drink container for long days on campus.
PKU Lophlex® LQis a ready-to-drink formula that provides 20g PE in only 4.2 fl oz. Quick and easy to drink down and get back to the book.
PhenylAde 60® is a low volume formula that mixes with only 3 fl oz of water for 10g of PE or any protein-free beverage you enjoy.
Talk with your metabolic dietitian or clinic to find out which PKU formula from Nutricia may be right for you. Always consult a healthcare professional prior to making any changes in your PKU diet plan.
PhenylAde GMP Drink Mix is available in a great tasting neutral flavor (Original) or a mild vanilla flavor (Vanilla), but for people who like to get creative this formula can be turned into additional flavors.
Try one – Try them all!
Simply mix serving (33.3 g) with 5 – 6 fl oz (150 mL – 180 mL) and then customize to your favorite flavor.
Here are some additional great tasting recipes featuring PhenylAde GMP Drink Mix.
Some people may use this product as their main PKU formula or just as part of their PKU diet plan.
Talk to your metabolic healthcare professional to see if PhenylAde GMP Drink Mix is right for you or your child.
View other great product for the dietary management of Phenylketonuria (PKU) at www.medicalfood.com
NOTE: *Always consult your metabolic dietitian or physcian prior to making any changes to your PKU diet plan and to see if PhenylAde GMP is right for you.
Satisfaction from food or a meal is something everyone wants. Although many foods may be restricted or limited on a low protein diet, you do not have to compromise taste. Selecting the foods you eat involves a variety of factors. We choose foods based on taste and smell, in addition to texture, sight and culture.
To make the most of your meal, begin by identifying what you crave, like spicy, sweet, crunchy or salty. This will make your meal more satisfying.Here are some tips to help you make the most of your meal.
Spicy:Add seasonings that can add a kick. For example, add cracked pepper, crushed red pepper or hot sauce to steamed vegetables to give a familiar item a new twist.
Sweet & Tangy:Satisfy your sweet and tangy craving with grilled pineapple topped with BBQ sauce on a low protein bun. You can also add mandarin oranges and Italian dressing to a garden salad for added flavor and tang.
Crunchy: With a little creativity you can add a snap to any dish. Make your own salad croutons with low protein bread. Season them in a variety of ways by using garlic powder, cayenne pepper or Italian herbs depending on your personal desire for savory or spice. Another great way to add crunch is to include raw vegetables, like cucumbers or carrots slices to a salad or sandwich.
Salty: Salt is among the most popular taste craving. Although highly desired, salt is an ingredient to be used in moderation. A little bit goes a long way. To satisfy your craving for salt, try slicing fresh potatoes very thin and sprinkling with garlic and a touch of sea salt. Bake them until crisp for a satisfying addition to your meal or snack.
Smooth and Creamy:Create your own creamy low protein dip with your favorite seasonings for a flavorful way to enjoy Low Protein Crackersor fresh cut vegetables. You can also include a sweet treat at the end of your meal to help satisfy your need for something smooth and creamy.
Beat the heat and satisfy your appetite with a cool summer salad!
Summer is the perfect time to enjoy fruits and vegetables at the peak of freshness. A make-your- own salad station makes a great addition to any cookout or pool party. You can also spice up a green garden salad by bringing along your favorite toppings and low protein dressing.
Try these themed salads for a fresh take on the usual bed of greens:
Fajita Salad: Create a colorful nutrient-packed meal by topping your salad greens with sautéed red and green bell peppers, onions and zucchini.
Mushroom Salad: Portobello mushrooms sautéed in fresh garlic or grilled can turn an ordinary salad into a savory meal.
Fruit Salad: Add diced apple, dried cranberries, diced peaches and grapes over greens. Toss with a light vinaigrette dressing for a sweet and tangy summer treat.
Mexican Salad:Spice up your salad with finely diced black olives, onions, cucumbers and tomatoes. Add jalapeños and salsa for an extra kick.
Roasted Vegetable Stacker: Toss coarsely chopped zucchini, eggplant, red pepper and onion in garlic oil and roast until tender. Serve piled high over a bed of salad greens.
Ratatouille Salad: Stew diced eggplant, olives, zucchini, garlic and onion in a broth made of tomato puree mixed with water. Allow to cool. This tasty topping can be served over greens or chilled low protein pasta to create a unique summer salad.
Turn your summer salad creation into PKU friendly protein source
Just mix 1 pouch (12.5g) of PhenylAde® GMP Mix-In(PKU formula) into 2 Tbsp of salad dressing for 10g of Protein Equivalents
You may have heard the news, and if not, we are glad you stopped by.
The past couple of years have been exciting as we have enhanced our products to be in line with the latest nutritional guidelines and grow with patients from infancy to adulthood.
We proudly introduced our Anamix® Early Years line for infants with the added benefits of DHA & ARA and prebiotic fiber to be closer to breast milk than ever before*! In addition, we launched the Anamix® Next line of products, which contain added DHA & a multi-fiber blend.
Having improved our Metabolic formulas we are no longer suppling Maxamaid** and Milupa formulas after June 2017 or until supplies last. Please see attachments for specific products and alternative options to transition to.
We are confident that these changes are in the best interest of metabolic patients; however, we certainly understand the challenges that may come with transitioning to new formula. If you are currently using a Maxamaid or Milupa formula please follow the steps below to start your transition:
Contact your clinic/healthcare professional to find other products within our portfolio and start the transition process. You can view our formulas by disorder below but please do not initiate a transition on your own.
If you have questions regarding insurance reimbursement, contact our Reimbursement Care team Monday – Friday 8:30am – 5:00pm EST at 1-800-605-0410.
If you have product related questions or need help finding a supplier for your new formula, contact our Customer Service team Monday – Friday 8:30am – 5:00pm EST at 1-800-605-0410
Please know our goal is to provide the best nutrition possible, and we are committed to bringing the best metabolic products to you and your family.
The Nutricia Metabolic Team
*Compared to Nutricia’s Periflex Infant and Analog formulas
Celebrate PKU Awareness Month by Returning to the PKU Diet!
It’s Never Too Late. You can do it. You are not alone!
Meet David. An Adult who returned to the PKU diet.
“My name is David Harris. I am 40 years old and I have classical
PKU. I am a first generation PKU’er which means I was born
before PKU was known to be Diet-for-Life. I was taken off-diet
at the age of 6. I struggled through school and always wondered
why things were so difficult for me.”
“Then it happened. I saw a TV show that said PKU was diet-for-
life and what happens to your body when you are not on
diet. That day I knew I had to get myself back on a low protein
diet and drink a PKU formula. It took time to re-learn the diet
and adjust my eating habits, but when I went back on diet my
life improved and now feel a lot better.”
You can do it – and Nutricia Metabolics is here to help.
We can help you learn about new PKU formula options
Connect you with a metabolic clinic
Provide PKU formula samples to help you find one you will enjoy drinking
There are thousands of children in the United States with medical conditions which require restrictive, medically-supervised diets. To live and thrive, many children are dependent on specialized medical foods and formulas. However, often times the important products that families need are not entirely covered by insurances. The families of these children face many worries and an enormous financial burden trying to ensure their children receive proper nutrition.
This is where Children’s Medical Nutrition Alliance (CMNuA) comes in. CMNuA is a 501(c) 3 non-profit organization that supports families in covering a major portion of their medical nutrition expenses in cases where the child’s insurance is unable to help. The money they use to help these families comes from financial donations and fundraising events.
CMNuA empowers, educates, assists, advocates for and supports ALL patients who require medical nutrition. In doing so, CMNuA has created the first-ever national coalition dedicated to enhancing the lives of all patients in need of medical nutrition regardless of their underlying condition.
Around The World in 60 Days Challenge (#ATW60D)
At Nutricia, the makers of Periflex®, Anamix®, PhenylAde®, Complex, GlutarAde™ and Lophlex® brand medical food formula, we understand the struggles these families go through and how necessary CMNuA is for them. That is why this year we have challenged ourselves to virtually Walk Around the World in 60 days in support of CMNuA. The challenge will require our team to collectively walk 25,000 miles in 60 days.
Nutricia North America will donate $10,000 to CMNuA if the goal is met! Our challenge started on March 15th and will continue until May 10, 2017.
The virtual walk will be divided into 4 phases. We will track our progress via fitness trackers and will report on them over the coming weeks.
Will You Join Us?
Help us to help CMNuA by sponsoring the challenge! Join us in supporting these families with a gift to CMNuA and have your donation doubled by Nutricia. Every dollar counts for this incredible non-profit organization. Nutricia North America pledges to match external donations up to $3,000.