Families like yours told us they wanted more educational tools to help better understand and teach others about their child’s metabolic disorder.
We heard you!
Nutrica is proud to share new, easy to understand, educational books and videos help breakdown complex disorders so you can use them to educate others in your community. You may also find them helpful in teaching your child about his/her disorder.
For now, these books and videos are available for PKU, MSUD and GA-1. Our team is working hard to create more for other rare disorders and make them available in Spanish and French.
Want a printed copy of the Temple Books?
Click HEREfor a PDF copy of the Temple Books you can download and print at home.
We understand it can be an overwhelming time when your child is diagnosed with a metabolic condition and you will have a lot of questions. Many of your initial questions are best answered by members of your healthcare team – they are the medical experts! In addition, we are here for you through our Nutricia Connect program.
After speaking to parents and individuals with a metabolic condition, we created Nutricia Connect – a comprehensive program that supports families like yours. Here are a few of the support tools available through Nutricia Connect.
Let us know in the comment section which of the resources you would find helpful.
Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.
There are thousands of children in the United States with medical conditions which require restrictive, medically-supervised diets. To live and thrive, many children are dependent on specialized medical foods and formulas. However, often times the important products that families need are not entirely covered by insurances. The families of these children face many worries and an enormous financial burden trying to ensure their children receive proper nutrition.
This is where Children’s Medical Nutrition Alliance (CMNuA) comes in. CMNuA is a 501(c) 3 non-profit organization that supports families in covering a major portion of their medical nutrition expenses in cases where the child’s insurance is unable to help. The money they use to help these families comes from financial donations and fundraising events.
CMNuA empowers, educates, assists, advocates for and supports ALL patients who require medical nutrition. In doing so, CMNuA has created the first-ever national coalition dedicated to enhancing the lives of all patients in need of medical nutrition regardless of their underlying condition.
Around The World in 60 Days Challenge (#ATW60D)
At Nutricia, the makers of Periflex®, Anamix®, PhenylAde®, Complex, GlutarAde™ and Lophlex® brand medical food formula, we understand the struggles these families go through and how necessary CMNuA is for them. That is why this year we have challenged ourselves to virtually Walk Around the World in 60 days in support of CMNuA. The challenge will require our team to collectively walk 25,000 miles in 60 days.
Nutricia North America will donate $10,000 to CMNuA if the goal is met! Our challenge started on March 15th and will continue until May 10, 2017.
The virtual walk will be divided into 4 phases. We will track our progress via fitness trackers and will report on them over the coming weeks.
Will You Join Us?
Help us to help CMNuA by sponsoring the challenge! Join us in supporting these families with a gift to CMNuA and have your donation doubled by Nutricia. Every dollar counts for this incredible non-profit organization. Nutricia North America pledges to match external donations up to $3,000.
As many of you know, today (February 28th) is Rare Disease Day. A special day dedicated to raise awareness about rare diseases and their impact on patients’ lives.
This day is special for Nutricia Metabolics because so many of the families we serve are touched by rare disease.
Many of the medical foods that we make are used by individuals with a rare disease. Our goal is simply to improve lives through medical nutrition.
This year Nutricia is supporting the Global Genes in their “Wear That You Care”campaign where participants wear their favorite pair of jeans to promote awareness.
We asked Nutricia and Danone (our parent company) employees to show us their jeans to raise awareness and show support!
Here are a few of our employees showing their support.
We hope Rare Disease Day 2017 helps raise awareness for rare diseases. Individually, each disorder is small but together, those affected by rare disease form a strong, united group that we are proud to be a part of.