Scroll to top

Category Archives: Uncategorized

New GMP-based option for Tyrosinemia!

TYR Lophlex GMP Mix-In is an unflavored product low in phenylalanine and tyrosine with glycomacropeptide (GMP). It is indicated for the dietary management of proven Tyrosinemia in individuals over 1 year of age.

TYR Lophlex® GMP Mix-In is your protein on-the-go:

  • Mixes easily with flavored drinks and blends easily into foods to add variety

  • Low calorie option with only 40 calories per 10 g sachet

  • Less than 0.5 g of sugar per pouch

  • Tastes great with no artificial flavors or colors

  • An easy way to add glycomacropeptide (GMP), made from a whole protein source, to your TYR diet

What is GMP?

Glycomacropeptide, or GMP for short, is derived from a whole protein source. It is naturally low in phenylalanine and tyrosine, and with the addition of certain amino acids, it makes a suitable source of protein for those with Tyrosinemia. Your dietitian will help determine how much to take.

What makes TYR Lophlex GMP Mix-In special?

TYR Lophlex GMP Mix-In tastes great and gives you the flexibility to boost your protein!

  • You can easily mix into foods, drinks or your current TYR formula

  • Each 10 g sachet is only 40 calories

Talk to your dietitian today and request a sample.

TYR Lophlex® GMP Mix-In is a medical food for the dietary management of proven Tyrosinemia and must be used under medical supervision.

©2019 Nutricia North America.

Happy New Year!

Happy New Year!

The start of a new year is a great time to re-commit to better diet management.

Improving your metabolic diet is different for everyone. It can range from calling your clinic for the first time in years to making simple improvements such as:

 

  • Eating more fresh fruits and vegetables

  • Drinking the full amount of formula

  • Finding a formula you enjoy drinking

  • Sending in blood spots more frequently

  • Trying new low protein recipes

Nutricia is proud to offer support services to help you achieve some of your dietary goals.

 Our Nutricia Connect™ program is here to provide support at various stages of life’s journey.  We offer an array of low protein recipes, educational tips and resources and a team of professionals who can assist you or your loved one to get back on-diet.

Additionally, Nutricia’s team of formula coverage specialists can review your insurance and answer any questions you may have about formula coverage.

Connect with them today by emailing Coverage@Nutricia.com or by calling 1-800-605-0410.

Improve Your Metabolic Diet Today


About Us:

Nutricia Metabolics provides a variety of formula options for inborn errors of metabolism, including Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD), Tyrosinemia (TYR), Homocystinuria (HCU), Urea Cycle Disorders (UCD), Glutaric Aciduria Type-1 (GA-1), Isovaleric Acidemia (IVA), Propionic Acidemia (PA), Methylmalonic Acidemia (MMA) and Fatty Acid Oxidation Disorders (FAODs). Learn more at www.MedicalFood.com

 

 

NOTE: All Nutricia Metabolics products are medical foods and must be used under medical supervision. Always consult your metabolic healthcare professional prior to making any changes in your metabolic diet plan.

Loprofin Baking Mix – A versatile low protein baking mix

Loprofin Mix is an all‐purpose, low protein baking mix, great for cooking and home‐made pastries. A packet of yeast is provided in each box, making baking easy, especially bread. Nutricia also offers Loprofin Chocolate Cake Mix, great for any chocolate cake or muffin recipe. Tasty recipes, such as breads, naan, cupcakes, gingerbread and many more can be found here!

Loprofin Mix is a great substitute for Wel‐Plan Baking Mix, which is unfortunately no longer available. Several low protein expert chefs shared that they substitute Wel‐Plan Baking Mix with Loprofin Mix at a 1:1 ratio. For example, if a recipe asks for one cup of Wel‐Plan, you would use one cup of Loprofin Mix. We have also test‐baked a few low protein bread recipes from “Apples to Zucchini”, a cookbook by Virginia Schuett and Dorothy Corry, and confirmed that Wel‐Plan can be substituted at a 1:1 ratio with Loprofin Mix for many bread recipes. Check out these recipes with Loprofin Mix that work for making bread – with or without a bread machine!

Many of you relied on Maddy’s Homestyle baking mixes as convenient, quick mixes. We developed recipes where you can use the Loprofin Mix to make the same baked goods. New Loprofin recipes such as,  sugar cookies, banana bread and blueberry muffin, to list just a few can be found here.

Look out for our future blogs on holiday cooking and baking, as well as making the low protein kitchen convenient, quick and tasty!

Happy Baking!

Tips for a Low Pro Friendly Thanksgiving

fb-thanksgiving

The holidays can be an exciting time of year. However, they can be a bit challenging for someone on a restricted diet as most festivities center around food. This blog focuses on tips for managing a restricted diet during the holiday season.

The most important thing to do is plan ahead.  The more you know in advance, the better you can plan.

Here are some questions to ask yourself:

  • Where will I be spending the holidays and how long will the trip be?

  • Do I have enough formula so I do not run out while away over the weekend?

  • Am I dining at home or at someone else’s home?

  • Will I be preparing the food or will someone else?

Once you know more about what your day/weekend will consist of, you can make a plan.

One key thing is to plan the menu in advance.  If you are not dining at home, but at a friend’s or relative’s home, it will be important to ask what is being served, then…

  • Ask if you can bring a side dish (one that is suitable for you, but enough for everyone to share).

  • Let them know about your dietary needs so they can omit or serve items on the side that are not low protein friendly, like cheese or bread crumbs.

  • See if you can access the kitchen to re-heat or make additional low-protein items for the holiday meal.

Get Creative!

Many traditional holiday favorites can be modified to reduce the protein while still keeping the taste and texture you and others love.

Here is a simple recipe for a popular dish with small changes to lower the protein content – this dish is sure to become a family staple at your holiday meal:

 

Reduced Protein Mashed Potatoes

2 cups (248 g), Cauliflower, florets
2 cups (312 g), White potato, peeled and cut into pieces
1 cup (156 g), Parsnips, peeled and cut into pieces
¼ cup (56 g), Non-dairy creamer, liquid
2 tablespoons (28 g), Margarine, dairy-free
To taste (2-3 g), Salt and pepper

Directions

  1. Boil potato and parsnip in a large pot until they begin to soften.
  2. Add cauliflower and continue to cook until soft and tender.
  3. Drain water.
  4. Place all ingredients in a food processor and blend until smooth.
  5. Salt and pepper to taste.

Makes 7 servings

Per Recipe:

700 calories

13.8 g protein

709 mg leucine

499 mg phenylalanine

337 mg tyrosine

 

Per Serving:

100 Calories

2 g protein

101 mg leucine

71 mg phenylalanine

48 mg tyrosine

End your holiday meal on a sweet note with this low protein dessert.  This is a dish everyone at your holiday gathering is sure to enjoy!

 

Easy Pumpkin Pudding (recipe developed by Sarah Marshall)

 

1 fluid ounces            Water

7 fluid ounces             Coconut Milk (full fat, canned coconut milk required to get pudding-like consistency)

6  each                        Whole pistachios (for flavor – to be strained out later)

½ tablespoon             Brown sugar

¼ teaspoon                Pumpkin pie spice (or blend cinnamon, ginger and nutmeg)

½ teaspoon                Vanilla flavoring

½ cup                          Loprofin Rice

 

 

Directions

  1. In a small saucepan, add 1 oz water & 7 oz coconut milk and 6 pistachios.
  2. Bring to a boil. Immediately when it begins boiling, add brown sugar, vanilla and pumpkin pie spice and stir.
  3. Add Loprofin Rice. Stir. Cover and lower heat to simmer covered for 10 minutes.
  4. Once rice is cooked remove pistachio pieces.
  5. Serve warm or cold.

 

Makes 2 servings

 

Per Recipe

534 calories

4.1 g protein

306 mg leucine

207 mg phenylalanine

124 mg tyrosine

 

Per Serving

267 calories

2 g protein

153 mg leucine

104 mg phenylalanine

62 mg tyrosine

And most of all…

Holidays do not have to be all about food.  Make your holidays memorable with family traditions, such as a family football game or a checkers tournament.

Happy Thanksgiving from

Nutricia_Metabolics_Logo 2

Help Support PKU Awareness with a #Toast2PKU

Raise your glass and be counted!

In support of PKU Awareness Day on December 3, 2018, Nutricia is challenging you to POST YOUR TOAST!

For each tagged post on Facebook or Instagram with #Toast2PKU, Nutricia will donate $5 to the National PKU Alliance to help support their mission to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.*

So don’t delay, post and tag your  toast today!



You can also show your support with a direct donation to the NPKUA


Note: Facebook and Instagram are in no way affiliated with Nutricia and have not endorsed this contest or Nutricia products. Only tagged posts made between November 15, 2018 and December 3, 2018 11:59pm  will be counted toward the donation to the National PKU Alliance.

*Nutricia will cap the donation to a maximum of 600 posts during this time period or up to $3000.

 

 

Nutricia Connect can help with finding formula coverage

businesswoman at home doing paperwork

Working to get insurance coverage for medical formula can be a long and frustrating process. You many  not always know the right questions to ask, the process for coverage may change along with legislation for coverage of medical formula and you may not know of all the outlets for coverage available to your family.

The good news is that you don’t have to face these coverage challenges alone.

nutricia-connect-300-x-146

Through our Nutricia Connect program our team of Coverage Specialists are available to help you seek coverage and answer questions throughout the process. You might be wondering:

  • Do I have to pay for out-of-pocket costs?

  • My insurance denied formula coverage, now what?

  • I am on WIC, is Nutricia formula covered?

Our coverage team works with different insurance plans, your dietitian, and if necessary your employer to find formula coverage. Here is one family’s story.

Here is one family’s story.

 

Contact our team if you have questions on formula coverage.  Learn more at www.medicalfood.com or email us at Coverage@MedicalFood.com

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

New Education Tools!

Families like yours told us they wanted more educational tools to help better understand and teach others about their child’s metabolic disorder.

We heard you!

Nutrica is proud to share new, easy to understand, educational books and videos help breakdown complex disorders so you can use them to educate others in your community. You may also find them helpful in teaching your child about his/her disorder.

For now, these books and videos are available for PKU, MSUD and GA-1. Our team is working hard to create more for other rare disorders and make them available in Spanish and French.

PKU

Want a printed copy of the Temple Books?

Click HERE for a PDF copy of the Temple Books you can download and print at home.

 

What do you think about the books and videos? 

We would love to know!   Connect with us on Facebook.   Facebook/NutriciaMetabolicNutrition

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

Nutricia Connect – Supporting you to live life to the fullest!


nutricia-connect-300-x-146

We understand it can be an overwhelming time when your child is diagnosed with a metabolic condition and you will have a lot of questions. Many of your initial questions are best answered by members of your healthcare team – they are the medical experts! In addition, we are here for you through our Nutricia Connect program.

After speaking to parents and individuals with a metabolic condition, we created Nutricia Connect – a comprehensive program that supports families like yours. Here are a few of the support tools available through Nutricia Connect.

about-nutricia-connect

Let us know in the comment section which of the resources you would find helpful.

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

PKU is Diet-for-Life.  It’s Never Too Late.

Celebrate PKU Awareness Month by Returning to the PKU Diet!

 

D4L

 It’s Never Too Late. You can do it.  You are not alone!

Meet David.  An Adult who returned to the PKU diet.

“My name is David Harris. I am 40 years old and I have classical
PKU. I am a first generation PKU’er which means I was born
before PKU was known to be Diet-for-Life. I was taken off-diet
at the age of 6. I struggled through school and always wondered
why things were so difficult for me.”

“Then it happened. I saw a TV show that said PKU was diet-for-
life and what happens to your body when you are not on
diet. That day I knew I had to get myself back on a low protein
diet and drink a PKU formula. It took time to re-learn the diet
and adjust my eating habits, but when I went back on diet my
life improved and now feel a lot better.”

You can do it – and Nutricia Metabolics is here to help.

  • We can help you learn about new PKU formula options

  • Connect you with a metabolic clinic

  • Provide PKU formula samples to help you find one you will enjoy drinking

  • Explore your insurance plan for PKU formula coverage

  • Share recipes and low protein cooking tips

Get Back to Diet Now!   Don’t Delay!

Contact Nutricia:  800-605-0410   

GMP_SAMPLE_button

Share Your Story!    Tell Nutricia more about you and help inspire others to return to the PKU diet!

Email Us: DietforLife@Nutricia.com  

Join Nutricia for a Walk Around the World

walk-around-the-world-logoThere are thousands of children in the United States with medical conditions which require restrictive, medically-supervised diets. To live and thrive, many children are dependent on specialized medical foods and formulas. However, often times the important products that families need are not entirely covered by insurances. The families of these children face many worries and an enormous financial burden trying to ensure their children receive proper nutrition.

cmnua_logo

 

This is where Children’s Medical Nutrition Alliance (CMNuA) comes in. CMNuA is a 501(c) 3 non-profit organization that supports families in covering a major portion of their medical nutrition expenses in cases where the child’s insurance is unable to help. The money they use to help these families comes from financial donations and fundraising events.

CMNuA empowers, educates, assists, advocates for and supports ALL patients who require medical nutrition. In doing so, CMNuA has created the first-ever national coalition dedicated to enhancing the lives of all patients in need of medical nutrition regardless of their underlying condition.

Around The World in 60 Days Challenge (#ATW60D)

At Nutricia, the makers of Periflex®, Anamix®, PhenylAde®, Complex, GlutarAde™ and Lophlex® brand medical food formula, we understand the struggles these families go through and how necessary CMNuA is for them. That is why this year we have challenged ourselves to virtually Walk Around the World in 60 days in support of CMNuA. The challenge will require our team to collectively walk 25,000 miles in 60 days.

Nutricia North America will donate $10,000 to CMNuA if the goal is met! Our challenge started on March 15th and will continue until May 10, 2017.

walk-around-the-world-logo-nutricia-map

The virtual walk will be divided into 4 phases. We will track our progress via fitness trackers and will report on them over the coming weeks.

Will You Join Us?

Help us to help CMNuA by sponsoring the challenge! Join us in supporting these families with a gift to CMNuA and have your donation doubled by Nutricia. Every dollar counts for this incredible non-profit organization. Nutricia North America pledges to match external donations up to $3,000.

Donate Today!

Thank you for your consideration and for helping the children supported by CMNuA. Stay tuned as we will be updating our progress on #ATW60D over the next 60 days!