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Tips for a Low Pro Friendly Thanksgiving

fb-thanksgivingThe holidays can be a tough time for many people, especially those on a restricted diet. The most important thing about managing a restricted diet during any holiday season is to plan ahead. The more you know in advance, the better you can plan.

These are some questions to ask:

  • Where will I be spending the holidays and how long will the trip be?

  • Do I have enough formula so I do not run out over the weekend

  • Am I dining at home or at someone else’s home?

  • Will I be preparing the food or will someone else?

Once you know more about what your day/weekend will consist of, you can make a plan.

One key thing to plan in advance is the menu. If you are not dining at home, but at a friend’s or relative’s home, it will be important to ask what is being served, then…

 

  • Ask if you can bring a side dish (one that is suitable for you, but enough for everyone to share).

  • Let them know about your dietary needs so they can omit or serve items on the side that are not low protein friendly, like cheese or bread crumbs.

  • See if you can access the kitchen to re-heat or make additional items for the holiday meal.

    Get Creative!
    Many traditional holiday favorites can be modified to reduce the protein, while still keeping the taste and texture you and others love. Here are some recipes with small changes to lower the protein content — they are sure to become family staples at your holiday meals:

Reduced Protein Mashed Potatoes

2 cups (248 g), Cauliflower, florets
2 cups (312 g), White potato, peeled and cut into pieces
1 cup (156 g), Parsnips, peeled and cut into pieces
¼ cup (56 g),Non-dairy creamer, liquid
2 tablespoons (28 g),Margarine, dairy-free
To taste (2-3 g), Salt and pepper

Directions

  1. Boil potato and parsnip in a large pot until they begin to soften.
  2. Add cauliflower and continue to cook until soft and tender.
  3. Drain water.
  4. Place all ingredients in a food processor and blend until smooth.
  5. Salt and pepper to taste.

Makes 7 servings  (115 g per serving)

Protein 2 g     P HE 67 mg        Calories 105

End your holiday meal on a sweet note with this  low protein apple cobbler for dessert. This is a dish everyone at your holiday gathering is sure to enjoy!

 

Low Protein Apple Cobbler

8 cups (880 g), Apples, peeled, cored, sliced
½ cup (110 g), Brown sugar, packed
1/3 cup (67 g), Sugar, granulated
¼ cup (28 g), Corn starch
2 tablespoons (31 g), Lemon juice
½ teaspoon (1.3 g), Cinnamon
½ teaspoon (1 g), Nutmeg
1 can (400 g), Maddy’s®  Homestyle Sugar Cookie Mix
8 tablespoons (1 stick), Margarine, dairy-free

DIRECTIONS

  1. In a large bowl, combine Maddy’s® Homestyle Sugar Cookie Mix and margarine .
  2. Blend until mixture is fully combined (resembles coarse crumbles)
  3. Set aside
  4. In a second large bowl, combine all other ingredients.Stir.
  5. Place apple mixture into a greased 9 x 12 inch pan.
  6. Spoon cookie mixture over top of apples, evenly.
  7. Bake at 375° F for 35-45 minutes (until apples are tender and topping is lightly browned.)

Makes 12 servings  (124 g per serving)

Protein 0 g        PHE 8 mg         Calories 215

And most of all…

Holidays do not have to be all about food. Make your holidays memorable with family traditions, such as a family football game or checkers tournament.

Happy Thanksgiving from

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Nutricia Connect – Supporting you to live life to the fullest!


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We understand it can be an overwhelming time when your child is diagnosed with a metabolic condition and you will have a lot of questions. Many of your initial questions are best answered by members of your healthcare team – they are the medical experts! In addition, we are here for you through our Nutricia Connect program.

After speaking to parents and individuals with a metabolic condition, we created Nutricia Connect – a comprehensive program that supports families like yours. Here are a few of the support tools available through Nutricia Connect.

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Let us know in the comment section which of the resources you would find helpful.

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

PKU is Diet-for-Life.  It’s Never Too Late.

Celebrate PKU Awareness Month by Returning to the PKU Diet!

 

D4L

 It’s Never Too Late. You can do it.  You are not alone!

Meet David.  An Adult who returned to the PKU diet.

“My name is David Harris. I am 40 years old and I have classical
PKU. I am a first generation PKU’er which means I was born
before PKU was known to be Diet-for-Life. I was taken off-diet
at the age of 6. I struggled through school and always wondered
why things were so difficult for me.”

“Then it happened. I saw a TV show that said PKU was diet-for-
life and what happens to your body when you are not on
diet. That day I knew I had to get myself back on a low protein
diet and drink a PKU formula. It took time to re-learn the diet
and adjust my eating habits, but when I went back on diet my
life improved and now feel a lot better.”

You can do it – and Nutricia Metabolics is here to help.

  • We can help you learn about new PKU formula options

  • Connect you with a metabolic clinic

  • Provide PKU formula samples to help you find one you will enjoy drinking

  • Explore your insurance plan for PKU formula coverage

  • Share recipes and low protein cooking tips

Get Back to Diet Now!   Don’t Delay!

Contact Nutricia:  800-605-0410   

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Share Your Story!    Tell Nutricia more about you and help inspire others to return to the PKU diet!

Email Us: DietforLife@Nutricia.com  

Join Nutricia for a Walk Around the World

walk-around-the-world-logoThere are thousands of children in the United States with medical conditions which require restrictive, medically-supervised diets. To live and thrive, many children are dependent on specialized medical foods and formulas. However, often times the important products that families need are not entirely covered by insurances. The families of these children face many worries and an enormous financial burden trying to ensure their children receive proper nutrition.

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This is where Children’s Medical Nutrition Alliance (CMNuA) comes in. CMNuA is a 501(c) 3 non-profit organization that supports families in covering a major portion of their medical nutrition expenses in cases where the child’s insurance is unable to help. The money they use to help these families comes from financial donations and fundraising events.

CMNuA empowers, educates, assists, advocates for and supports ALL patients who require medical nutrition. In doing so, CMNuA has created the first-ever national coalition dedicated to enhancing the lives of all patients in need of medical nutrition regardless of their underlying condition.

Around The World in 60 Days Challenge (#ATW60D)

At Nutricia, the makers of Periflex®, Anamix®, PhenylAde®, Complex, GlutarAde™ and Lophlex® brand medical food formula, we understand the struggles these families go through and how necessary CMNuA is for them. That is why this year we have challenged ourselves to virtually Walk Around the World in 60 days in support of CMNuA. The challenge will require our team to collectively walk 25,000 miles in 60 days.

Nutricia North America will donate $10,000 to CMNuA if the goal is met! Our challenge started on March 15th and will continue until May 10, 2017.

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The virtual walk will be divided into 4 phases. We will track our progress via fitness trackers and will report on them over the coming weeks.

Will You Join Us?

Help us to help CMNuA by sponsoring the challenge! Join us in supporting these families with a gift to CMNuA and have your donation doubled by Nutricia. Every dollar counts for this incredible non-profit organization. Nutricia North America pledges to match external donations up to $3,000.

Donate Today!

Thank you for your consideration and for helping the children supported by CMNuA. Stay tuned as we will be updating our progress on #ATW60D over the next 60 days!

February 28th is Rare Disease Day!

As manRare Disease Dayy of you know, today (February 28th) is Rare Disease Day.  A special day dedicated to raise awareness about rare diseases and their impact on patients’ lives.

This day is special for Nutricia Metabolics because so many of the families we serve are touched by rare disease.

Many of the medical foods that we make are used by individuals with a rare disease. Our goal is simply to improve lives through medical nutrition.

This year Nutricia is supporting the Global Genwear-you-care-with-datees in their “Wear That You Care” campaign where participants wear their favorite pair of jeans to promote awareness.

We asked Nutricia and Danone (our parent company) employees to show us their jeans to raise awareness and show support!

Here are a few of our employees showing their support.team-jeansimg_0601

We hope Rare Disease Day 2017 helps raise awareness for rare diseases. Individually, each disorder is small but together, those affected by rare disease form a strong, united group that we are proud to be a part of.

-Your Friends at Nutricia North America

GET INVOLVED!  

POST YOUR PHOTO TODAY!  with tags

#WearThatYouCare, #RareDiseaseDay, #NutriciaforRare

For more information on how to get involved, resources, and a listing of events, visit https://globalgenes.org/.

Rare Disease Day is Coming Soon!

February 28th is Rare Disease Day!Rare Disease Day

Rare Disease Day is the last day of February each year.  Sometimes this falls on a Leap year. Just as Feb 29th is a rare day that happens only once every 4 years,  many people live with a rare disease EVERY DAY of the year.

Learn more about Rare Disease Day and how to get involved at http://www.rarediseaseday.org/

Nutricia Metabolics is proud to help support those living with a rare metabolic condition.  Learn more about these RARE Metabolic conditions and help raise awareness today and everyday!

Rare Metabolic Disorder List

To learn more about each of these Rare Metabolic Conditions – CLICK on the letters:

HCU

Homocystinuria is an inherited, genetic disorder. “Classic” homocystinuria occurs because of a deficiency of the enzyme cystathionine betasynthase (CBS).  A deficiency in CBS interferes with the body’s ability to fully process an essential amino acid called methionine. If left untreated, this can cause serious health problems.

IVA

Isovaleric acidemia (IVA) is an inherited, genetic disorder. IVA occurs when there is a defect in an enzyme that helps break down protein from food. The name of the enzyme is isovaleryl-CoA dehydrogenase (IVD).

GA-1

Glutaric Aciduria Type 1 (GA-1) is an inherited, genetic disorder.  GA-1 occurs when there is a defect in an enzyme that helps break down protein from food. The name of the enzyme is glutaryl-CoA dehydrogenase (GCDH).

MMAPPA

Propionic acidemia (PA) and methylmalonic acidemia (MMA) are inherited, genetic disorders. Both are caused by defects in enzymes that are needed to break down protein.  In PA and MMA, four of the amino acids cannot be broken down but instead produce toxic acids in the body. These amino acids are methionine, isoleucine, threonine and valine, which are called “propiogenic amino acids.”

MSUD

Maple Syrup Urine Disease, or MSUD, is an inherited, genetic disorder caused by a defect in three enzymes that help break down protein from food. The official name for MSUD is Branched- Chain Alpha-Ketoacid Dehydrogenase Deficiency, but it is called MSUD because the urine from untreated infants with this disorder can smell sweet like maple syrup.

UCD

Urea cycle disorders (UCDs) are a group of inherited, genetic disorders. The urea cycle is a chain of reactions using a group of enzymes in the liver. These enzymes are important in removing unneeded protein byproducts (nitrogen) from the blood.

FAOD

Long-chain fatty acid oxidation disorders (LC-FAODs) are a group of inherited, genetic disorders. LC-FAODS occur when there is a defect in one or more enzymes that help break down fat from food for energy. LC-FAODs prevent the body from using fats normally.

LEARN MORE ABOUT OUR FULL LINE OF METABOLIC FORMULAS FOR THE DIETARY MANANGEMENT OF THESE RARE DISORDERS

Push-Ups 4 PKU Challenge – Results

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 Thank you so much to everyone who participated in the #NutriciaMetabolics #Pushups4PKU challenge, which ended on National PKU Awareness Day, December 3rd, 2016.

 Nutricia North America is proud to have been a part of a movement to help raise awareness of PKU and raise funds to support NPKUA and CanPKU.

The outpouring of support from the community has been amazing! There are so many wonderful videos from families, school classes, sports teams, colleagues, fitness classes, kindergarten classes, metabolic clinics, healthcare professionals and friends that have truly touched us. We thank everyone who took part and shared their dedication and support for those affected by PKU.

We are proud to announce that we exceeded our initial goal and cap of 600 push-up participants from all over the world.    We’ve had:

  • over 100 videos shared on Instagram

  • over 300 videos posted on Facebook

  • over 100 videos posted directly onto our Facebook page

  • over 10,000 reach of likes, shares and comments

We couldn’t have done without your support.

We are pleased to be able to donate this shared amount of $3,000  in total to NPKUA and CanPKU.

Thank you to all for your push-ups in support of PKU.

Happy holidays!

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If you would like to make a donation to either NPKUA or CanPKU, simply click the logos below:

NPKUA LOGO

CanPKU

JAM SANDWICH – A Book for Teens with PKU

JAM SANDWICHES – THE BOOK


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Patricia Lorente is a mother of a child with PKU and a writer from Spain. She has written and published Jam Sandwiches with the help of Nutricia Laboratories in Spain to help raise awareness of PKU and create a dialogue around this rare metabolic disorder.

Books cost 7 euros and one euro from each book will be donated to The PKU Association of Madrid, ASFEMA. The book, originally written in Spanish, has been translated into English.

For more information and to order a copy please visit:

https://jamsandwiches2015.wordpress.com/

BIG WIN FOR MEDICAL FOOD COVERAGE

Nutricia is pleased to share wonderful news regarding medical food coverage for families in the US military affected by a condition or metabolic disorders that requires the use of medical food.

On Tuesday, June 14th (also flag day), the US Senate in the National Defense Authorization Act  authorized medical foods coverage for Fiscal Year 2017 (S.2943).

Medical foods are defined by the FDA in section 5(b) of the Orphan Drug Act (21 U.S.C. 360ee (b) (3)), as “a food which is formulated to be consumed or administered enterally under the supervision of a physician and which is intended for the specific dietary management of a disease or condition for which distinctive nutritional requirements, based on recognized scientific principles, are established by medical evaluation.”  

Nutricia North America is dedicated to improving the quality of human life through medical nutrition and truly understands the impact of such a milestone in our country.  Those living with metabolic disorders such as Phenyketonuria (PKU), Maple Syrup Urines Disease (MSUD), Urea Cycle Disorders (UCD), as well as digestive disorders, such as Eosinophilic Esophagitis rely on medial food to support their health and well-being.  A lack of access to these medically necessary products can be catastrophic to many families both within and out of our military.

We are proud to innovate and manufacture medical foods and thank NORD and other organizations that work tirelessly to improve access to these important  resources .  This is a win for our military and a step forward for the future of medial food access for all.

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Celebrate Rare Disease Day

February 29th is Rare Disease Day!Rare Disease Day

Leap day is rare day that happens only once every 4 years, but many people live with a rare disease every day of the year.  Nutricia Metabolics is proud to help support those living with a rare metabolic condition.

Rare Metabolic Disorder List

 

Learn more about these Rare Metabolic Conditions – CLICK the letters to learn more:

HCU

 

Homocystinuria is an inherited, genetic disorder. “Classic” homocystinuria occurs because of a deficiency of the enzyme cystathionine betasynthase (CBS).  A deficiency in CBS interferes with the body’s ability to fully process an essential amino acid called methionine. If left untreated, this can cause serious health problems.

IVA

 

Isovaleric acidemia (IVA) is an inherited, genetic disorder. IVA occurs when there is a defect in an enzyme that helps break down protein from food. The name of the enzyme is isovaleryl-CoA dehydrogenase (IVD).

GA-1

 

Glutaric Aciduria Type 1 (GA-1) is an inherited, genetic disorder.  GA-1 occurs when there is a defect in an enzyme that helps break down protein from food. The name of the enzyme is glutaryl-CoA dehydrogenase (GCDH).

MMAPPA

 

 

 

Propionic acidemia (PA) and methylmalonic acidemia (MMA) are inherited, genetic disorders. Both are caused by defects in enzymes that are needed to break down protein.  In PA and MMA, four of the amino acids cannot be broken down but instead produce toxic acids in the body. These amino acids are methionine, isoleucine, threonine and valine, which are called “propiogenic amino acids.”

MSUD

Maple Syrup Urine Disease, or MSUD, is an inherited, genetic disorder caused by a defect in three enzymes that help break down protein from food. The official name for MSUD is Branched- Chain Alpha-Ketoacid Dehydrogenase Deficiency, but it is called MSUD because the urine from untreated infants with this disorder can smell sweet like maple syrup.

UCD

 

Urea cycle disorders (UCDs) are a group of inherited, genetic disorders. The urea cycle is a chain of reactions using a group of enzymes in the liver. These enzymes are important in removing unneeded protein byproducts (nitrogen) from the blood.

FAOD

Long-chain fatty acid oxidation disorders (LC-FAODs) are a group of inherited, genetic disorders. LC-FAODS occur when there is a defect in one or more enzymes that help break down fat from food for energy. LC-FAODs prevent the body from using fats normally.

LEARN MORE ABOUT OUR FULL LINE OF METABOLIC FORMULAS FOR THE DIETARY MANANGEMENT OF THESE RARE DISORDERS