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Category Archives: Tips for Teens

Top 10 Reasons to Add Phlexy-10 Tablets to your PKU diet plan

Tired of always  DRINKING your PKU formula?  Did you know that there are other options?

Nutricia offers, Phlexy-10 Tablets, a convenient way to take your PKU medical food:

12 Tablets = 10 g Protein Equivalents

 

Phlexy-10 Tablets

*Speak to your dietitian to see if Phlexy-10 Tablets are right for you.

Here are our Top 10 reasons to use Phlexy-10 Tablets.   Which one is your top reason?

10. You can take tablets at night instead of skipping that last serving of formula

9. Easy to take at school or before sports practice / other after school activities

8. Tablets won’t cause your locker or work area to smell like formula

7. Lightweight source of PHE-Free protein when hiking or camping

6. A simple way to stay on diet when you just don’t want to drink PKU formula

5. Prevents having to explain about your “special drink” when with other people

4. Tablets can add flexibility to a busy day

3. Easy to pack or carry when away from home for long periods of time

2. No messy liquid spills in your bag or purse

1. A quick and easy source of PHE-Free protein you can take ANYWHERE!

 

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Don’t Skip Your Last Serving of PKU Formula!

Talk to your Metabolic Dietitian Today!

 

* For the dietary management of proven Phenylketonuria (PKU).  Use under medical supervision. You must consult a metabolic healthcare professional prior to making changes to your PKU diet plan.

 

College & PKU: Getting Ready for the Next Chapter

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The completion of high school and the transition into the next chapter of education is a very exciting time. Applying to colleges, receiving the ‘fat envelope’, choosing classes, moving away from home, and living with a roommate for the first time, are all new and exciting experiences.

Arriving on campus and the first few weeks on campus will be exciting and full of change.  You will meet a variety of new people and have many new experiences.  The one thing that remains constant is adhering to your low protein diet and drinking your PKU formula daily.  Keeping your PHE levels in control when you don’t have your family watching over you may be more difficult than anticipated, but at the same time, more important than ever.

The key is to FOCUS and make a PLAN!  Commit yourself to your PKU diet.  Long lectures, late nights studying and preparing for exams will require you to be at your best and drinking your PKU formula daily, spread throughout the day will be one of your tickets to success.  As you know, elevated blood PHE levels are linked to reduced executive function skills such as memory, recall and concentration.

Write out your daily schedule and include dedicated time to mix and drink your PKU formula.  This will help make formula part of your day and reduce accidental skips.

Tips for Drinking PKU Formula on Campus

  • Add formula powder to an empty water bottle (or other reusable container) that you can fill with water later for formula anywhere, anytime.
  • Is your dorm far from campus? Rent a locker at the school gym or student union to keep your formula so you can refuel in between classes and don’t have to go all the way back to your room.
  • Choose a formula that is sold in single-serving, travel  friendly packaging.  Powders in little pouches can easily be added to store-bought beverages while on campus or out with friends.

Examples include:

Periflex® LQ  is a ready-to-drink formula that provides 15g PE in a highly portable and easy-to-drink container for long days on campus.Back-to-School with Periflex LQ - TEENS

PKU Lophlex® LQ is a ready-to-drink formula that provides 20g PE in only 4.2 fl oz.  Quick and easy to drink down and get back to the book.

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PhenylAde 60®  is a low volume formula that mixes with only 3 fl oz of water for 10g of PE or any protein-free beverage you enjoy.

Great for Adults & Teens. Try it Today!

Check out these simple on campus mixing ideas:

 

REQUEST A FREE SAMPLE of a Campus Friendly PKU Formula today!

 

Talk with your metabolic dietitian or clinic to find out which PKU formula from Nutricia may be right for you.  Always consult a healthcare professional prior to making any changes in your PKU diet plan.

Teen & Adult PKU “Diet-for-Life” Conference

Teen & Adult

 November 11-13, 2016  –    Harrisburg, PA

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Deadline to Register:   November 7, 2016

Join together for a weekend of of fun, learning and new friendships.  This event is recommended for those currently on-diet or wanting to get back to the PKU diet.  

The weekend will focus on learning more about PKU and improving diet management skills.  

Plus…a fun trip to Hersheypark!   

 

AGENDA

 

Friday, November 11, 2016   

6:00 pm – 8:00 pm – Registration with Vendor Booths

Saturday, November 12, 2016

8:30 am – 4:00 pm – Teen & Adult Focused Education Sessions

  • The Science Behind Staying on DietDr. Mitzi Grant, Drexel University
  • The Simplified PKU Diet Kayt Marra, MA, RD, CDM, CCRP, University of Albany
  • Communication and Personal AdvocacySharon Ernst, MPH, RD, CSP, FAND, Linda Leuffgan, RD & Rachel Flar, Reimbursement Specialist

LUNCH BREAK

BREAKOUT SESSIONS (Attend 3 Sessions)

  • Contemporary Issues for Adults with PKU
  • Life On Campus for Teens & Young Adults with PKU
  • Meal Planning and Healthy Eating
  • Finding Low Protein Foods at Your Local Supermarket

5:00 pm – 10:00 pm – Trip to Hersheypark for Dinner & Rides!(optional)

Sunday, November 13, 2016

8:30 am – 12:00 pm – Low Protein Cooking Workshop

Spend the morning in small groups learning new low protein recipes and simple techniques for preparing delicious low protein meals in minutes.  Rotate through a variety of stations, each with a personal recipe guide and tasting!  This workshop is going to be unique and delicious!

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Don’t Wait:  BOOK YOUR ROOM NOW!

 

Budget Friendly:   The Econo Lodge Harrisburg/Hershey 

1006 Briarsdale Road, Harrisburg, PA, 17111 (about $64 – $75 per night)

Conference Venue:   The Central Hotel Harrisburg/Hershey 

800 East Park Drive, Harrisburg, PA, USA 17111                      Phone:  (717) 545-9595  (about $150 per night)

 The Hampton Inn, Harrisburg East (Hershey Area) – 1/4 mile from Conference Venue

4230 Union Deposit Rd, Harrisburg, PA 17111                             Phone:  (800) 644-3144 (about $130 per night)

Questions?   Contact Sandy.Simons@nutricia.com

PhenylAde® GMP Drink Mix from Nutricia

A Whole New Way to Think About PKU Nutriton

PhenylAde® GMP Drink Mix contains Glycomacropeptide (GMP), made from a whole protein source. It has a smooth, mild vanilla flavor AND is a GMP based PKU product with both DHA & Fiber.

 

PhenylAde GMP

CLICK HERE TO REQUEST A SAMPLE 

Talk to your metabolic dietitian or clinic about a PhenylAde GMP today!

DID YOU KNOW…

Nutricia has a team of Reimbursement Care Specialists to assist you in making a change to PhenylAde GMP or any other Nutricia product.  They can verify insurance benefits, help you find a supplier and more.

CLICK HERE TO LEARN MORE ABOUT OUR SERVICES

*This product is for use under medical supervision.  Please consult your metabolic healthcare professional prior to making any changes to your PKU diet plan.

 

Types of Formula

Did you know that there are over 60 different PKU formula world-wide?

Whether you have been drinking the same formula and maintaining excellent dietary control or if you are reading this in a effort to learn more to return to the PKU diet plan, understanding the ‘Types’ of formulas is a great way to get started and stay in the loop of what formulas are available.

Types of PKU Medical Food

The Drink – PKU Formula in a powdered form that you mix with water. This type of medical food typically provides a balance of fat, carbohydrate, phenylalanine-free protein, vitamins and minerals. Often it contains a good amount of calories to aid satiety and help people with higher caloric needs. Examples from Nutricia include Periflex Junior, Periflex Advanced and PhenylAde Essential.

The Low Fat Formula – This type of formula is a growing segment of the PKU marketplace. Since PKU is diet for life, as people age their calorie needs sometimes lessen. Older people with PKU often have a wider array of low protein foods they will eat which makes them less reliant on formula for satiety. Low or reduced fat formulas typically have less calories and are lower in volume so you can drink less to meet your daily PHE-free protein needs, which can aid adherence and help keep levels in check. Examples from Nutricia include Xphe Maxamum, Lophlex Powders (also in Liquid) PhenylAde40, and PhenylAde60.

The Ready to Drink – PKU formula that is pre-mixed and ready to drink is in high demand. Everyone leads busy lives and don’t want their formula needs to slow them down. This segment is growing just as fast as you can drink one of these single serve units. The ready to drink formulas are often low in fat, calories and volume. For example, PKU Lophlex LQ provides 20 g of protein equivalent (PE) in only  4.2 fl oz. Ready-to-Drink (RTD) PKU formula are quick and easy to drink so you so you can get on with your day.

The Fortifier – Concentrated phenylalnine-free amino acid powder that can be added to any low protein food or drink you already enjoy. It can also be added to ‘Drink’ formula to increase protein content without added formula. Examples for Nutricia include PhenylAde Amino Acid Blend and PhenylAde MTE Amino Acid Blend (Minerals & Trace Elements)

The Tablets – Not everyone has an easy time drinking their formula. But the importance of consuming medical food (formula) and the consequences of not are is well known. For this reason there are formulas that are in tablet form. You would need to ingest quite a few to meet your full daily phe-free protein needs, but for some this is a better alternative than drinking formula.  You can choose to just replace 1 serving of liquid formula per day with tablets.  Example, just 12 tablets of Phlexy-10 Tablets replace 10 g PE of liquid formula. Talk to your metabolic professional if you are struggling with formula to see if a tablet or a combination of formula and tablets will work for you.


Posted by: Sandy Simons, MA, RD, CHES

Sandy is a Registered Dietitian and Certified Health Education Specialist. She received her graduate training at Columbia University’s Teacher College in New York. She has been working on the industry side of metabolic nutrition for the past 11 years and is often seen at patient events around the country. This post is based on an excerpt from a book written by Sandy with the help of others titled: My PKU Toolkit: A Transition Guide to Adult PKU Management.