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Category Archives: Tips for Teens

Back to College Interview with James Fryer

Reflections from a rising sophomore managing PKU and a busy schedule

This time last year as James Fryer was beginning his first year of college at Willamette University, he knew he was heading into a big life transition. Some of the adjustments proved more stressful than he anticipated.

“Always remembering, on my own, to have an adequate supply of formula,” reflects James on one of his PKU management tips. His hometown and college are in different cities, meaning preparation is very important.

Good thing James is a planner. He thrives on a schedule, whether for formula supply or diet and wellness, and is a master at making them. “I look at my schedule to see where I have time to cook versus go for a run,” shares James. This is a prime example of James’ planning that he feels led him to be successful not only in the classroom but also on the soccer field, becoming part of Willamette’s club soccer team.

James tried PhenylAde GMP READY as part of his daily routine. Will you?

Another campus group important to James are the chefs who prepare James’ food. “Willamette has taught me new, interesting things about [cooking] vegetables,” says James.

He got close to one of the university chefs this past year who was dedicated to James’ diet. The chef introduced the freshman to new things, such as fried cauliflower “rice” and utilizing all types of spices like turmeric and paprika. It’s a great relationship that James hopes to continue.

“Perhaps the biggest mistake I made was not stocking enough prepared snacks around the dorm”

-James

Outside the dining hall and back in his dorm room, James learned a lesson he’s eager to share with other college-bound PKU’ers, “Perhaps the biggest mistake I made was not stocking enough prepared snacks around [the dorm].” By the end of the year, James had a nice stockpile of low protein snacks, including low protein cereal, his standby. And another favorite snack that he’ll be continuing to eat this year? James is ready with an answer: “Dried cranberries!”

For handy and filling dorm snack, try Loprofin Loops low protein cereal

Other “grab-and-go” food on hand included dried jackfruit, which his dad got for him, and which ended up being popular among his friends. Applesauce cups and low protein rice cereal treats also helped James stay full and fueled between meals.

“If you’re constantly hungry,” James recommends to other PKU college students, “consider talking [to your metabolic healthcare professional] about adjusting formula or food, versus going off diet.”

With a new school year on the horizon, James is looking to stay on track diet-wise to help him succeed at new heights on the field and in the classroom. In fact, he’s hoping to declare a major this year, potentially math. With club soccer, he shares that he’s interested in building a soccer community around him, which ties into another goal of establishing relationships that go deeper than the differences in his diet.

Good luck with sophomore year, James! And be sure to pack plenty of dried cranberries!

PhenylAde GMP READY is a medical food for the dietary management of proven Phenylketonuria (PKU) and must be used under medical supervision.

Always consult your metabolic healthcare professional prior to making any changes to your diet. 

© 2019 Nutricia North America

Get Ready for Summer with PKU Lophlex LQ!

Summer is one of the best season!  Long days, fun adventures, amusement parks and the warm sun are just a few reasons summer is such a great time of the year.

When you have PKU, you also need to think about how you will transport and drink your PKU formula when out for a full day.

Imagine you could have a great tasting PKU formula that you could easily drink when:

– Mountain Biking
– Canoeing with Friends
– At an Amusement Park
– Hiking or Camping
– Vising Family or Friends
– Hanging Out by a Lake

 

Don’t imagine it any longer!

Try PKU Lophlex LQ, a great PKU formula for summer. Each ready-to-drink pouch is protein packed with 20 g of protein equivalent and only 120 calories. Lophlex LQ are low volume and ready-to-drink which is great for life on-the-go.

Plus, it is the only low volume, ready-to-drink PKU formula made with real fruit juice* from concentrate for a refreshing taste on a hot summer day.

The only question is …

Post your on-the-go PKU Lophlex LQ photo on Instagram!  #PKU Summer

 


Try PKU Lophlex LQ Today!

✓ Low Volume
✓ Only 120 Calories
✓ Quick & Easy to Drink

      REQUEST A SAMPLE 3-PACK

Available in Mixed Berry, Juicy Orange and Juicy Tropical


*Juicy Orange contains 45.5% juice. Mixed Berry Blast contains 44.1% juice. Juicy Tropical contains 28.4% juice.

PKU Lophlex LQ is a medical food for the dietary management of proven Phenylketonuria (PKU) in individuals over 4 years of age. Must be used under medical supervision. Consult your metabolic clinic prior to making any changes to your metabolic diet.

Copyright 2018 Nutricia North America

Top 10 Reasons to Add Phlexy-10 Tablets to your PKU diet plan

Tired of always  DRINKING your PKU formula?  Did you know that there are other options?

Nutricia offers, Phlexy-10 Tablets, a convenient way to take your PKU medical food:

12 Tablets = 10 g Protein Equivalents

 

Phlexy-10 Tablets

*Speak to your dietitian to see if Phlexy-10 Tablets are right for you.

Here are our Top 10 reasons to use Phlexy-10 Tablets.   Which one is your top reason?

10. You can take tablets at night instead of skipping that last serving of formula

9. Easy to take at school or before sports practice / other after school activities

8. Tablets won’t cause your locker or work area to smell like formula

7. Lightweight source of PHE-Free protein when hiking or camping

6. A simple way to stay on diet when you just don’t want to drink PKU formula

5. Prevents having to explain about your “special drink” when with other people

4. Tablets can add flexibility to a busy day

3. Easy to pack or carry when away from home for long periods of time

2. No messy liquid spills in your bag or purse

1. A quick and easy source of PHE-Free protein you can take ANYWHERE!

 

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Don’t Skip Your Last Serving of PKU Formula!

Talk to your Metabolic Dietitian Today!

 

* For the dietary management of proven Phenylketonuria (PKU).  Use under medical supervision. You must consult a metabolic healthcare professional prior to making changes to your PKU diet plan.

 

College & PKU: Getting Ready for the Next Chapter

PKU-Teen College Image
The completion of high school and the transition into the next chapter of education is a very exciting time. Applying to colleges, receiving the ‘fat envelope’, choosing classes, moving away from home, and living with a roommate for the first time, are all new and exciting experiences.

Arriving on campus and the first few weeks at college will bring about big change in your life: you will meet a variety of people and get introduced to your home away from home.

The one thing that remains constant is adhering to your low protein diet and drinking your PKU formula daily.  Keeping your phenylalanine (PHE) levels in control when you don’t have your family watching over you may be more difficult than anticipated, but at the same time, more important than ever.

The key is to FOCUS and make a PLAN!  Commit yourself to your PKU diet.  Long lectures, late nights studying and preparing for exams will require you to be at your best and drinking your PKU formula daily, spread throughout the day will be one of your tickets to success.  As you know, thinking skills and memory can decline with high PHE levels.

Be prepared! Write out your daily schedule and include dedicated time to mix and drink your PKU formula. This will help make formula part of your day and reduce accidental skips.

Tips for Drinking PKU Formula on Campus*

  • Add formula powder to an empty water bottle (or other reusable container) that you can fill with water later for formula anywhere, anytime.
  • Is your dorm far from campus? Rent a locker at the school gym or student union to keep your formula so you can refuel in between classes.
  • Choose a formula that is sold in single-serving, travel  friendly packaging.  Powders in little pouches can easily be added to store-bought beverages while on campus or out with friends.

Examples include:

PhenylAde® GMP READY is a ready-to-drink PKU formula that provides 10 g of protein equivalent (PE) with a smooth, neutral taste.

Periflex® LQ  is a ready-to-drink PKU formula that provides 15g PE in a highly portable and easy-to-drink container ideal for on-the-go campus life.

Lophlex® LQ is a ready-to-drink PKU formula that provides 20g PE in only 4.2 fl oz.  Quick and easy to drink so you can get back to the books.

PhenylAde GMP Mix-In is a powdered PKU formula available in highly portable pouches that provides 10 g PE per serving and easily mixes with water, flavored drinks, sports drinks or other PKU formula.

Note: PhenylAde GMP Mix-In should not be used as a sole source of protein but must be given in conjunction with whole protein and other nutrients to supply the phenylalanine, fluid and general nutrition requirements of the individual in medically prescribed quantities. Must combine with an appropriate vitamin and mineral source when taking as the sole source of amino acid protein.

REQUEST A SAMPLE of a Campus Friendly PKU Formula from Nutricia today!

*Always refer to product label for consumption and storage instructions.

All products shown are medical foods for the dietary management of proven phenylketonuria (PKU) and must be used under medical supervision.

Talk with your metabolic dietitian or clinic to find out which PKU formula from Nutricia may be right for you.  Always consult a healthcare professional prior to making any changes in your PKU diet plan.

Teen & Adult PKU “Diet-for-Life” Conference

Teen & Adult

 November 11-13, 2016  –    Harrisburg, PA

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Deadline to Register:   November 7, 2016

Join together for a weekend of of fun, learning and new friendships.  This event is recommended for those currently on-diet or wanting to get back to the PKU diet.  

The weekend will focus on learning more about PKU and improving diet management skills.  

Plus…a fun trip to Hersheypark!   

 

AGENDA

 

Friday, November 11, 2016   

6:00 pm – 8:00 pm – Registration with Vendor Booths

Saturday, November 12, 2016

8:30 am – 4:00 pm – Teen & Adult Focused Education Sessions

  • The Science Behind Staying on DietDr. Mitzi Grant, Drexel University
  • The Simplified PKU Diet Kayt Marra, MA, RD, CDM, CCRP, University of Albany
  • Communication and Personal AdvocacySharon Ernst, MPH, RD, CSP, FAND, Linda Leuffgan, RD & Rachel Flar, Reimbursement Specialist

LUNCH BREAK

BREAKOUT SESSIONS (Attend 3 Sessions)

  • Contemporary Issues for Adults with PKU
  • Life On Campus for Teens & Young Adults with PKU
  • Meal Planning and Healthy Eating
  • Finding Low Protein Foods at Your Local Supermarket

5:00 pm – 10:00 pm – Trip to Hersheypark for Dinner & Rides!(optional)

Sunday, November 13, 2016

8:30 am – 12:00 pm – Low Protein Cooking Workshop

Spend the morning in small groups learning new low protein recipes and simple techniques for preparing delicious low protein meals in minutes.  Rotate through a variety of stations, each with a personal recipe guide and tasting!  This workshop is going to be unique and delicious!

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Don’t Wait:  BOOK YOUR ROOM NOW!

 

Budget Friendly:   The Econo Lodge Harrisburg/Hershey 

1006 Briarsdale Road, Harrisburg, PA, 17111 (about $64 – $75 per night)

Conference Venue:   The Central Hotel Harrisburg/Hershey 

800 East Park Drive, Harrisburg, PA, USA 17111                      Phone:  (717) 545-9595  (about $150 per night)

 The Hampton Inn, Harrisburg East (Hershey Area) – 1/4 mile from Conference Venue

4230 Union Deposit Rd, Harrisburg, PA 17111                             Phone:  (800) 644-3144 (about $130 per night)

Questions?   Contact Sandy.Simons@nutricia.com

PhenylAde® GMP Drink Mix from Nutricia

A Whole New Way to Think About PKU Nutriton

PhenylAde® GMP Drink Mix contains Glycomacropeptide (GMP), made from a whole protein source. It has a smooth, mild vanilla flavor AND is a GMP based PKU product with both DHA & Fiber.

 

PhenylAde GMP

CLICK HERE TO REQUEST A SAMPLE 

Talk to your metabolic dietitian or clinic about a PhenylAde GMP today!

DID YOU KNOW…

Nutricia has a team of Reimbursement Care Specialists to assist you in making a change to PhenylAde GMP or any other Nutricia product.  They can verify insurance benefits, help you find a supplier and more.

CLICK HERE TO LEARN MORE ABOUT OUR SERVICES

*This product is for use under medical supervision.  Please consult your metabolic healthcare professional prior to making any changes to your PKU diet plan.