Beat the heat and satisfy your appetite with a cool summer salad!
*Must be combined with an appropriate vitamin and mineral supplement when taken as the sole source of PKU medical food. Be sure to consult your metabolic healthcare professional prior to making any changes to your PKU diet plan.
Available is US only.
Deadline to Register: November 7, 2016
Friday, November 11, 2016
6:00 pm – 8:00 pm – Registration with Vendor Booths
Saturday, November 12, 2016
8:30 am – 4:00 pm – Teen & Adult Focused Education Sessions
BREAKOUT SESSIONS (Attend 3 Sessions)
5:00 pm – 10:00 pm – Trip to Hersheypark for Dinner & Rides!(optional)
Sunday, November 13, 2016
8:30 am – 12:00 pm – Low Protein Cooking Workshop
Spend the morning in small groups learning new low protein recipes and simple techniques for preparing delicious low protein meals in minutes. Rotate through a variety of stations, each with a personal recipe guide and tasting! This workshop is going to be unique and delicious!
*This product is for use under medical supervision. Please consult your metabolic healthcare professional prior to making any changes to your PKU diet plan.
*Reference Source: My PKU Binder. National PKU Alliance. Chapter 11: Traveling, Page 88-89.
*All samples are verified with a metabolic healthcare professional prior to shipping. All PKU formulas must be used under medical supervision.
There are a growing number of options when it comes to low protein food. One of your options includes buying direct from the company, which could add up to a cost savings for you.
For example, Loprofin brand pasta by Nutricia is available online in more than one place, but buying direct from Nutricia’s website www.medicalfood.com provides up to a $2 per box savings per box compared to other online low protein food shops when purchased by the case.* This can up to BIG savings when buying 6, 12 or 24 boxes in one order.
Quantity per unit is also another important item to explore. Some products may appear similar in nature and have the same cost per unit. But with a closer look you may see that one product unit may only provide 10 oz while the other supplies 16 oz. You want to compare you prices by ounce or gram to determine the best value for your money.
Next time you are ready to place a low protein food order, compare the volume and cost. Also consider buying direct from the company and registering on their webistes for special offers and promotions.
Written by Sandy Simons, MA, RD, CHES
Sandy works for Nutricia North America.
*based on prices published online by PKU Perspectives as of September 22, 2014. Varies based on product.
Hi, my name is Alicia. I am an only child who was born three weeks early in November of 1959. At this time they had no Newborn Testing for PKU here in the United States. However, soon after I was born my mother became worried. She stayed in continuous contact with my Pediatrician. He had just read an article concerning the “Wet Diaper Test,” a way to test someone for PKU.
My doctor called my mother and asked her to bring me into his office because he had a suspicion of what the problem might be. He used a stick (kind of like a popsicle stick) which was put into my diaper that would turn a green color if the test was positive for PKU. The same afternoon of the test, the doctor called my mother to tell her that the test was positive for PKU and he was referring us to a hospital in Augusta, Georgia for further testing. I was confirmed to have classical PKU when I was 4 months old. There were very few infants diagnosed in the United States at that time. As you can imagine, my parents were devastated and had no clue as to what PKU was or what would happen in the future.
I was placed on a strict low protein diet and PKU formula. I can still recall not liking the taste of the formula. My formula was very expensive, even back in those days. My parents had insurance, but the insurance wouldn’t pay for my formula and at times my father would be working 2 jobs just to help pay for it. My mother managed everything to do with my diet from making my formula to measuring my food intake. I seemed to be doing great over the next several years. Then, suddenly, when I was 5 years old we received a phone call from my clinic and they wanted to see me. At this time some thought that diet was not for life and I was taken off my diet. I can vividly recall what I had to eat for my first meal off diet. It was at lunchtime and they brought me some BAKED HAM! Little did I know that this was the first bite of a lifelong struggle for me. I remained off diet until I was 44 years old (2004). It was at this time that I decided to look into going back on diet due to some problems I had begun experiencing. I had lost my last job due to emotional outbursts and I felt that I needed to see about trying to get some help. I spoke with my mother and she called my old clinic on my behalf. I can remember my mother telling me that the doctor said “Get her in here, I don’t care about the money issue. She needs help to get back on diet.” So within just a few days I was on my way to clinic again for help. It was determined at that time the best course for me was to go back on the diet after having been off it for so long. It was going to be a struggle, but for my health I had to do it. My doctor slowly took me off of all of the bad foods I had been eating for so long and got me started on Xphe Maxamum™ from Nutricia.
First I stopped eating meat and cheese over the next couple of months and then the t a little later on. I’m currently still on diet, although I do sometimes struggle trying not to eat all the bad foods which I’ve had in past years. I know that I feel better when I’m on diet and have more energy, not to mention that my husband can put up with me so much easier. I am just so thankful for a persistent loving mother, wonderful pediatrician, great support, and a patient loving Husband. I’ve always said that, “God could have made me normal, but he chose to make me with PKU and now what can I do with that?” I choose to help make the road a little easier for those coming behind me by doing whatever I can to spread the word about PKU.
CLICK HERE TO REQUEST A FREE COPY OF “YOUR GUIDE TO GETTING BACK ON THE PKU DIET” TODAY.