PKU is Diet-for-Life. It’s Never too late to return to the PKU diet plan. Learn more about other PKU adults and how they returned or remained on the diet diet. Also learn about new PKU formulas and recipes to help keep the diet fun and interesting.
An easy way to add Glycomacropeptide (GMP), made from a whole protein source, to your PKU diet
Simply mix with just 6 fl oz of water or any flavored drink for added variety
Great as a once daily or as your main PKU formula*
So many choices, how will you mix it in?
*Must be combined with an appropriate vitamin and mineral supplement when taken as the sole source of PKU medical food. Be sure to consult your metabolic healthcare professional prior to making any changes to your PKU diet plan.
Start 2017 by improving or PKU diet or returnig to the PKU diet. It is Never Too Late!
Nutricia can help you or your loved one get back on track. We can also contact our Reimbursement Team for help reviewing your insurance plan and medical food coverage. Email: Coverage@Nutricia.com
You can do it. You are not alone!
Meet David. An Adult who returned to the PKU diet.
“My name is David Harris. I am 40 years old and I have classical
PKU. I am a first generation PKU’er which means I was born
before PKU was known to be Diet-for-Life. I was taken off-diet
at the age of 6. I struggled through school and always wondered
why things were so difficult for me.”
“Then it happened. I saw a TV show that said PKU was diet-for-
life and what happens to your body when you are not on
diet. That day I knew I had to get myself back on a low protein
diet and drink a PKU formula. It took time to re-learn the diet
and adjust my eating habits, but when I went back on diet my
life improved and now feel a lot better.”
You can do it – and Nutricia Metabolics is here to help.
The holidays can be a tough time for many people, especially those on a restricted diet. The most important thing about managing PKU, any other inborn error of metabolism or a low protein diet during any holiday season is to plan ahead. The more you know in advance, the better you can plan.
These are some questions to ask:
Where will I be spending the holidays and how long will the trip be?
Do I have enough formula so I do not run out over the weekend?
Am I dining at home or at someone else’s home?
Will I be making the menu or someone else?
Once you know more about what your day/weekend will consist of, you can make a plan.
One key thing to plan in advance is the menu. If you are not dining at home, but at a friend’s or relative’s home, it will be important to ask what is being served, then…
Ask if you can bring a side dish (one that is low protein for you, but enough for everyone to share).
Let them know about your dietary needs so they can omit or serve items on the side that are not low protein friendly, like cheese or bread crumbs.
See if you can access the kitchen to re-heat or make additional items for the holiday meal.
Many traditional holiday favorites can be modified to reduce the protein, while still keeping the taste and texture you and others love. Here are some recipes with small changes to lower the protein content — they are sure to become family staples at your holiday meals:
Reduced Protein Mashed Potatoes
2 cups (248 g), Cauliflower, florets
2 cups (312 g), White potato, peeled and cut into pieces
1 cup (156 g), Parsnips, peeled and cut into pieces
¼ cup (56 g),Non-dairy creamer, liquid
2 tablespoons (28 g),Margarine, dairy-free
To taste (2-3 g), Salt and pepper
Boil potato and parsnip in a large pot until they begin to soften.
Add cauliflower and continue to cook until soft and tender.
Place all ingredients in a food processor and blend until smooth.
Salt and pepper to taste.
Makes 7 servings (115 g per serving)
Protein 2 g P HE 67 mg Calories 105
End your holiday meal on a sweet note with this low protein apple cobbler for dessert. This is a dish everyone at your holiday gathering is sure to enjoy!
Low Protein Apple Cobbler
8 cups (880 g), Apples, peeled, cored, sliced
½ cup (110 g), Brown sugar, packed
1/3 cup (67 g), Sugar, granulated
¼ cup (28 g), Corn starch
2 tablespoons (31 g), Lemon juice
½ teaspoon (1.3 g), Cinnamon
½ teaspoon (1 g), Nutmeg
1 can (400 g), Maddy’s Homestyle Sugar Cookie Mix
8 tablespoons (1 stick), Margarine, dairy-free
6:00 pm – 8:00 pm – Registration with Vendor Booths
Saturday, November 12, 2016
8:30 am – 4:00 pm – Teen & Adult Focused Education Sessions
The Science Behind Staying on Diet – Dr. Mitzi Grant, Drexel University
The Simplified PKU Diet – Kayt Marra, MA, RD, CDM, CCRP, University of Albany
Communication and Personal Advocacy – Sharon Ernst, MPH, RD, CSP, FAND, Linda Leuffgan, RD & Rachel Flar, Reimbursement Specialist
BREAKOUT SESSIONS (Attend 3 Sessions)
Contemporary Issues for Adults with PKU
Life On Campus for Teens & Young Adults with PKU
Meal Planning and Healthy Eating
Finding Low Protein Foods at Your Local Supermarket
5:00 pm – 10:00 pm – Trip to Hersheypark for Dinner & Rides!(optional)
Sunday, November 13, 2016
8:30 am – 12:00 pm – Low Protein Cooking Workshop
Spend the morning in small groups learning new low protein recipes and simple techniques for preparing delicious low protein meals in minutes. Rotate through a variety of stations, each with a personal recipe guide and tasting! This workshop is going to be unique and delicious!
The completion of high school and the transition into the next chapter of education is a very exciting time. Applying to colleges, receiving the ‘fat envelope’, choosing classes, moving away from home, and living with a roommate for the first time, are all new and exciting experiences.
Arriving on campus and the first few weeks on campus will be exciting and full of change. You will meet a variety of new people and have many new experiences. The one thing that remains constant is adhering to your low protein diet and drinking your PKU formula daily. Keeping your PHE levels in control when you don’t have your family watching over you may be more difficult than anticipated, but at the same time, more important than ever.
The key is to FOCUS and make a PLAN! Commit yourself to your PKU diet. Long lectures, late nights studying and preparing for exams will require you to be at your best and drinking your PKU formula daily, spread throughout the day will be one of your tickets to success. As you know, elevated blood PHE levels are linked to reduced executive function skills such as memory, recall and concentration.
Write out your daily schedule and include dedicated time to mix and drink your PKU formula. This will help make formula part of your day and reduce accidental skips.
Tips for Drinking PKU Formula on Campus
Add formula powder to an empty water bottle (or other reusable container) that you can fill with water later for formula anywhere, anytime.
Is your dorm far from campus? Rent a locker at the school gym or student union to keep your formula so you can refuel in between classes and don’t have to go all the way back to your room.
Choose a formula that is sold in single-serving, travel friendly packaging. Powders in little pouches can easily be added to store-bought beverages while on campus or out with friends.
Periflex® LQ is a ready-to-drink formula that provides 15g PE in a highly portable and easy-to-drink container for long days on campus.
PKU Lophlex® LQ is a ready-to-drink formula that provides 20g PE in only 4.2 fl oz. Quick and easy to drink down and get back to the book.
PhenylAde 60™ is a low volume formula that mixes with only 3 fl oz of water for 10g of PE or any protein-free beverage you enjoy.
Check out these simple on campus mixing ideas:
PhenylAde™ MTE Amino Acid Blend is a unique formula that mixes with any protein-free beverage you enjoy, such as lemonade, sports drink or fruit punch.
Talk with your metabolic dietitian or clinic to find out which PKU formula from Nutricia may be right for you.
Beat the heat and satisfy your appetite with a cool summer salad!
Summer is the perfect time to enjoy fruits and vegetables at the peak of freshness; making these low protein salads pop with flavor. A make-your- own salad station makes a great addition to any cookout or pool party. You can also spice up a green garden salad by bringing along your favorite toppings and low protein dressing.
Try these themed salads for a fresh take on the usual bed of greens:
Fajita Salad: Create a colorful nutrient-packed meal by topping your salad greens with sautéed red and green bell peppers, onions and zucchini.
Mushroom Salad: Portobello mushrooms sautéed in fresh garlic or grilled can turn an ordinary salad into a savory meal.
Fruit Salad: Add diced apple, dried cranberries, diced peaches and grapes over greens. Toss with a light vinaigrette dressing for a sweet and tangy summer treat.
Mexican Salad:Spice up your salad with finely diced black olives, onions, cucumbers and tomatoes. Add jalapeños and salsa for an extra kick.
Roasted Vegetable Stacker: Toss coarsely chopped zucchini, eggplant, red pepper and onion in garlic oil and roast until tender. Serve piled high over a bed of salad greens.
Ratatouille Salad: Stew diced eggplant, olives, zucchini, garlic and onion in a broth made of tomato puree mixed with water. Allow to cool. This tasty topping can be served over greens or chilled low protein pasta to create a unique summer salad.
Create Your Own PKU Formula with PhenylAde MTE Amino Acid Blend
Turn your summer salad creation into a phenylalanine-free protein boost. Just mix 1 scoop or pouch (12.8g) of PhenylAde MTE Amino Acid Blend(PKU formula) into 2 Tbsp of salad dressing for 10g of Protein Equivalents with No PHE! Note: Be sure to eat the entire serving.
Talk to your metabolic dietitian or clinic about a PhenylAde GMP today!
DID YOU KNOW…
Nutricia has a team of Reimbursement Care Specialists to assist you in making a change to PhenylAde GMPor any other Nutricia product. They can verify insurance benefits, help you find a supplier and more.
If you are planning a flying vacation, before you book, contact your airline’s customer service department to notify them of your travel requirements as soon as you can. Airline policies regarding travelling with metabolic formula will differ so it is worth checking with a customer service representative before you arrive at the airport.
Airplane food is generally not PKU or low protein diet-friendly so you may need to pack (or purchase prior to boarding) any food or snacks you think you might need during the flight.
If you are booking an international flight you will need to order a special meal. Please note that even meals listed as low-protein or vegetarian/vegan may not be low enough in protein for the PKU diet, so explain your dietary requirements clearly.
Always take a travel letter from your clinic explaining your medical condition, especially for international travel
Always pack extra PKU or metabolic formula in your carry-on bag in case of delays
Do not mix PKU or metabolic formula powders with liquid until you go past the security screening checkpoint
Keep your PKU or metabolic formula in its original sealed containers (packages, cans or sachets)
Take a copy of your child’s diet prescription with you
Take plenty of snacks for the flight
Useful PKU Traveler’s Tip
It may be useful to switch to a powdered PKU or metabolic formula when travelling abroad, to reduce your overall luggage weight. However, ready-to-drink pouches that don’t require mixing are also particularly convenient when traveling. Contact your dietitian for more information on these options
If you are traveling overseas, ask your metabolic healthcare professional team for information on where low-protein food supplies can be obtained in your destination country
If you are shipping your PKU or metabolic formula or food to a hotel prior to your arrival, be sure to label the box clearly with your name and arrival date on the package. Call and alert the hotel that a shipment will be arriving for you.
*Reference Source: My PKU Binder. National PKU Alliance. Chapter 11: Traveling, Page 88-89.