Scroll to top

Category Archives: Diet-for-Life (Adult Corner)

PKU is Diet-for-Life. It’s Never too late to return to the PKU diet plan. Learn more about other PKU adults and how they returned or remained on the diet diet. Also learn about new PKU formulas and recipes to help keep the diet fun and interesting.

Create a Custom GMP-based PKU formula!

Have you wish you could turn your favorite drink to a great tasting PKU formula?

NOW YOU CAN!

mix-in-new

Introducing…PhenylAde® GMP Mix-In 

 

  • An easy way to add Glycomacropeptide (GMP), made from a whole protein source, to your PKU diet

  • Simply mix with just 6 fl oz of water or any flavored drink for added variety

  • Great as a once daily or as your main PKU formula*

    GMP_SAMPLE_button

So many choices, how will you mix it in?

mix-in-nutrition

*Must be combined with an appropriate vitamin and mineral supplement when taken as the sole source of PKU medical food.   Be sure to consult your metabolic healthcare professional prior to making any changes to your PKU diet plan.

Available is US only.

Request A Sample

PKU is Diet-for-Life

PKU is Diet-for-Life.  

Start 2017 by improving or PKU diet or returnig to the PKU diet.  It is Never Too Late!

D4L

 Nutricia can help you or your loved one get back on track.   We can also contact our Reimbursement Team for help reviewing your insurance plan and medical food coverage. Email:  Coverage@Nutricia.com 

You can do it.  You are not alone!

Meet David.  An Adult who returned to the PKU diet.

“My name is David Harris. I am 40 years old and I have classical
PKU. I am a first generation PKU’er which means I was born
before PKU was known to be Diet-for-Life. I was taken off-diet
at the age of 6. I struggled through school and always wondered
why things were so difficult for me.”

“Then it happened. I saw a TV show that said PKU was diet-for-
life and what happens to your body when you are not on
diet. That day I knew I had to get myself back on a low protein
diet and drink a PKU formula. It took time to re-learn the diet
and adjust my eating habits, but when I went back on diet my
life improved and now feel a lot better.”

You can do it – and Nutricia Metabolics is here to help.

Get Back to Diet Now!   Don’t Delay!

Contact Nutricia:  

DietforLife@Nutricia.com  or call 800-605-0410   GMP_SAMPLE_button

 

Share Your Story!     Tell Nutricia more about you and help inspire others to return to the PKU diet or maintain the PKU diet.

Tips for a Low Pro Friendly Thanksgiving

fb-thanksgivingThe holidays can be a tough time for many people, especially those on a restricted diet. The most important thing about managing PKU, any other inborn error of metabolism or a low protein diet during any holiday season is to plan ahead.  The more you know in advance, the better you can plan.

These are some questions to ask:

  • Where will I be spending the holidays and how long will the trip be?

  • Do I have enough formula so I do not run out over the weekend?

  • Am I dining at home or at someone else’s home?

  • Will I be making the menu or someone else?

Once you know more about what your day/weekend will consist of, you can make a plan.

One key thing to plan in advance is the menu.  If you are not dining at home, but at a friend’s or relative’s home, it will be important to ask what is being served, then…

  • Ask if you can bring a side dish (one that is low protein for you, but enough for everyone to share).

  • Let them know about your dietary needs so they can omit or serve items on the side that are not low protein friendly, like cheese or bread crumbs.

  • See if you can access the kitchen to re-heat or make additional items for the holiday meal.

 

Get Creative!

Many traditional holiday favorites can be modified to reduce the protein, while still keeping the taste and texture you and others love. Here are some recipes with small changes to lower the protein content — they are sure to become family staples at your holiday meals:

Reduced Protein Mashed Potatoes

2 cups (248 g), Cauliflower, florets
2 cups (312 g), White potato, peeled and cut into pieces
1 cup (156 g), Parsnips, peeled and cut into pieces
¼ cup (56 g),Non-dairy creamer, liquid
2 tablespoons (28 g),Margarine, dairy-free
To taste (2-3 g), Salt and pepper

Directions

  1. Boil potato and parsnip in a large pot until they begin to soften.
  2. Add cauliflower and continue to cook until soft and tender.
  3. Drain water.
  4. Place all ingredients in a food processor and blend until smooth.
  5. Salt and pepper to taste.

Makes 7 servings  (115 g per serving)

Protein 2 g     P HE 67 mg        Calories 105

End your holiday meal on a sweet note with this  low protein apple cobbler for dessert.  This is a dish everyone at your holiday gathering is sure to enjoy!

Low Protein Apple Cobbler

8 cups (880 g), Apples, peeled, cored, sliced
½ cup (110 g), Brown sugar, packed
1/3 cup (67 g), Sugar, granulated
¼ cup (28 g), Corn starch
2 tablespoons (31 g), Lemon juice
½ teaspoon (1.3 g), Cinnamon
½ teaspoon (1 g), Nutmeg
1 can (400 g), Maddy’s Homestyle Sugar Cookie Mix
8 tablespoons (1 stick), Margarine, dairy-free

DIRECTIONS

  1. In a large bowl, combine Maddy’s Homestyle Sugar Cookie Mix and margarine.
  2. Blend until mixture is fully combined (resembles coarse crumbles)
  3. Set aside
  4. In a second large bowl, combine all other ingredients.Stir.
  5. Place apple mixture into a greased 9 x 12 inch pan.
  6. Spoon cookie mixture over top of apples, evenly.
  7. Bake at 375° F for 35-45 minutes (until apples are tender and topping is lightly browned.)

Makes 12 servings  (124 g per serving)

Protein 0 g        PHE 8 mg         Calories 215

And most of all…

Holidays do not have to be all about food.  Make your holidays memorable with family traditions, such as a family football game or checkers tournament.

Happy Thanksgiving from

Nutricia_Metabolics_Logo 2

Teen & Adult PKU “Diet-for-Life” Conference

Teen & Adult

 November 11-13, 2016  –    Harrisburg, PA

registernow_button

Deadline to Register:   November 7, 2016

Join together for a weekend of of fun, learning and new friendships.  This event is recommended for those currently on-diet or wanting to get back to the PKU diet.  

The weekend will focus on learning more about PKU and improving diet management skills.  

Plus…a fun trip to Hersheypark!   

 

AGENDA

 

Friday, November 11, 2016   

6:00 pm – 8:00 pm – Registration with Vendor Booths

Saturday, November 12, 2016

8:30 am – 4:00 pm – Teen & Adult Focused Education Sessions

  • The Science Behind Staying on DietDr. Mitzi Grant, Drexel University
  • The Simplified PKU Diet Kayt Marra, MA, RD, CDM, CCRP, University of Albany
  • Communication and Personal AdvocacySharon Ernst, MPH, RD, CSP, FAND, Linda Leuffgan, RD & Rachel Flar, Reimbursement Specialist

LUNCH BREAK

BREAKOUT SESSIONS (Attend 3 Sessions)

  • Contemporary Issues for Adults with PKU
  • Life On Campus for Teens & Young Adults with PKU
  • Meal Planning and Healthy Eating
  • Finding Low Protein Foods at Your Local Supermarket

5:00 pm – 10:00 pm – Trip to Hersheypark for Dinner & Rides!(optional)

Sunday, November 13, 2016

8:30 am – 12:00 pm – Low Protein Cooking Workshop

Spend the morning in small groups learning new low protein recipes and simple techniques for preparing delicious low protein meals in minutes.  Rotate through a variety of stations, each with a personal recipe guide and tasting!  This workshop is going to be unique and delicious!

registernow_button

Don’t Wait:  BOOK YOUR ROOM NOW!

 

Budget Friendly:   The Econo Lodge Harrisburg/Hershey 

1006 Briarsdale Road, Harrisburg, PA, 17111 (about $64 – $75 per night)

Conference Venue:   The Central Hotel Harrisburg/Hershey 

800 East Park Drive, Harrisburg, PA, USA 17111                      Phone:  (717) 545-9595  (about $150 per night)

 The Hampton Inn, Harrisburg East (Hershey Area) – 1/4 mile from Conference Venue

4230 Union Deposit Rd, Harrisburg, PA 17111                             Phone:  (800) 644-3144 (about $130 per night)

Questions?   Contact Sandy.Simons@nutricia.com

College & PKU: Getting Ready for the Next Chapter

PKU-Teen College Image
The completion of high school and the transition into the next chapter of education is a very exciting time. Applying to colleges, receiving the ‘fat envelope’, choosing classes, moving away from home, and living with a roommate for the first time, are all new and exciting experiences.

Arriving on campus and the first few weeks on campus will be exciting and full of change.  You will meet a variety of new people and have many new experiences.  The one thing that remains constant is adhering to your low protein diet and drinking your PKU formula daily.  Keeping your PHE levels in control when you don’t have your family watching over you may be more difficult than anticipated, but at the same time, more important than ever.

The key is to FOCUS and make a PLAN!  Commit yourself to your PKU diet.  Long lectures, late nights studying and preparing for exams will require you to be at your best and drinking your PKU formula daily, spread throughout the day will be one of your tickets to success.  As you know, elevated blood PHE levels are linked to reduced executive function skills such as memory, recall and concentration.

Write out your daily schedule and include dedicated time to mix and drink your PKU formula.  This will help make formula part of your day and reduce accidental skips.

Tips for Drinking PKU Formula on Campus

  • Add formula powder to an empty water bottle (or other reusable container) that you can fill with water later for formula anywhere, anytime.
  • Is your dorm far from campus? Rent a locker at the school gym or student union to keep your formula so you can refuel in between classes and don’t have to go all the way back to your room.
  • Choose a formula that is sold in single-serving, travel  friendly packaging.  Powders in little pouches can easily be added to store-bought beverages while on campus or out with friends.

Examples include:

Periflex® LQ  is a ready-to-drink formula that provides 15g PE in a highly portable and easy-to-drink container for long days on campus.Back-to-School with Periflex LQ - TEENS

 

 

 

PKU Lophlex® LQ is a ready-to-drink formula that provides 20g PE in only 4.2 fl oz.  Quick and easy to drink down and get back to the book.

PKU_Lophex_LQ_Group_2016

 

 

PhenylAde 60™  is a low volume formula that mixes with only 3 fl oz of water for 10g of PE or any protein-free beverage you enjoy.

Great for Adults & Teens. Try it Today!

Check out these simple on campus mixing ideas:

PhenylAde™ MTE Amino Acid Blend is a unique formula that mixes with anyPhenylAde MTE Amino Acid Blend for PKU protein-free beverage you enjoy, such as lemonade, sports drink or fruit punch.

 

 

Talk with your metabolic dietitian or clinic to find out which PKU formula from Nutricia may be right for you.

To learn more or REQUEST A FREE SAMPLE of a Campus Friendly PKU Formula visit MedicalFood.com today!

Low Protein Summer Salads

Beat the heat and satisfy your appetite with a cool summer salad!

Summer is the perfect time to enjoy fruits and vegetables at the peak of freshness; making these low protein sala ds pop with flavor.  A make-your- own salad station makes a great addition to any cookout or pool party. You can also spice up a green garden salad by bringing along your favorite toppings and low protein dressing.

Try these themed salads for a fresh take on the usual bed of greens:

Fajita Salad: Create a colorful nutrient-packed meal by topping your salad greens with sautéed red and green bell peppers, onions and zucchini.

Mushroom Salad: Portobello mushrooms sautéed in fresh garlic or grilled can turn an ordinary salad into a savory meal.

Fruit Salad: Add diced apple, dried cranberries, diced peaches and grapes over greens. Toss with a light vinaigrette dressing for a sweet and tangy summer treat.

Mexican Salad: Spice up your salad with finely diced black olives, onions, cucumbers and tomatoes. Add jalapeños and salsa for an extra kick.

Roasted Vegetable Stacker: Toss coarsely chopped zucchini, eggplant, red pepper and onion in garlic oil and roast until tender. Serve piled high over a bed of salad greens.

Ratatouille Salad: Stew diced eggplant, olives, zucchini, garlic and onion in a broth made of tomato puree mixed with water. Allow to cool. This tasty topping can be served over greens or chilled low protein pasta to create a unique summer salad.

_________________________________________________________________________

Turn Your Salad into a Serving of PKU Formula

Just Mix It In!

Create Your Own PKU Formula with PhenylAde MTE Amino Acid Blend

Create Your Own PKU Formula with PhenylAde MTE Amino Acid Blend

Turn your summer salad creation into a phenylalanine-free protein boost. Just mix 1 scoop or pouch (12.8g) of PhenylAde MTE Amino Acid Blend (PKU formula) into 2 Tbsp of salad dressing for 10g of Protein Equivalents with No PHE!  Note: Be sure to eat the entire serving.

Your Guide to Getting Back on the PKU Diet

PKU is Diet-for-Life.  It’s Never Too Late to go back on diet.  

   Book Cover

Request a free copy of this helpful booklet “Your Guide to Getting Back on the PKU diet” and help yourself or someone you love get re-started on the PKU diet today!

This book contains:

  • Facts and Myths about the PKU and the diet

  • Tips for making formula part of your life again

  • Top 10 Nutricia PKU formulas for adults

  • Contact information to find a clinic and get re-started on diet

  • Inspiring quotes for PKU adults and more…

PKU Q&A
Tips for Making PKU Formula part of your life (1)

 

Top 10 PKU Formulas for Adults

REQUEST YOUR COPY

What is PKU?

What is PKU?

PKU is short for Phenyketonuria. PKU is a genetic disorder that a child inherits from both parents. For a child to be born with PKU both parents must either be carriers of PKU or have PKU, which means they carry at least one PKU gene.

PKU occurs due to a deficiency or absence of the enzyme phenylalanine hydroxylase (PAH), which interferes with a person’s ability to metabolize or process the amino acid phenylalanine (PHE) into tyrosine, another amino acid. Amino acids, like PHE, are the building blocks of protein found in food and the human body. Consuming too much PHE from food can lead to a toxic build-up of PHE in the blood and brain of a person with PKU. Without treatment, this buildup of PHE will cause irreversible brain damage.

Presently, there is no cure for PKU, but it can be managed effectively with proper diet and special nutritional formulas designed for persons with PKU.  View products.

Incidence of PKUAutosomalRecessiveInheritance

In order for an individual to have PKU, both parents must pass along their PKU gene to their child. When both parents are carriers of PKU, there is 1 in 4 chance with each pregnancy that the child will have PKU, 1 in 2 chance of the child being a carrier, and 1 in 4 chance that the child will neither have PKU nor be a carrier.

It is estimated that one out of 10,000 live births has decreased PAH activity(1). Autosomal Recessive Inheritance Normal Gene Carrier Non Carrier Carrier Carrier PKU Carrier PKU Gene Phenylketonuria (PKU) *Phenotype- observable traits, outward appearances, development or behavior.

Newborn Screening for PKU

Newborn screening for PKU began in the US and Canada in the 1960s. It is important that an infant is diagnosed and managed with diet within days after birth to prevent permanent negative effects from PKU.

Nutricia provides a range of PKU formulas and low protein foods.  Learn more online at www.MedicalFood.com or contact us at (800) 605-0410 for free product samples.

Maternal-PKUfamily

Your dietitian will help you decide which products are best.

Nutricia is a proud supporter of PKU Awareness Month and the National PKU Alliance

Nutricia is a proud supporter of PKU Awareness Month and the National PKU Alliance

References
1. Vockley J, Andersson HC, Antshel KM, et al. Phenylalanine hydroxylase deficiency: diagnosis and management guideline. Genet Med. 2014;16(2):188-200.

PhenylAde™ GMP from Nutricia

A Whole New Way to Think About PKU Nutriton

PhenylAde™ GMP contains Glycomacropeptide (GMP), made from a whole protein source. It has a smooth, mild vanilla flavor AND is a GMP based PKU product with both DHA & Fiber.

 

PhenylAde GMP

CLICK HERE TO REQUEST A SAMPLE 

Talk to your metabolic dietitian or clinic about a PhenylAde GMP today!

DID YOU KNOW…

Nutricia has a team of Reimbursement Care Specialists to assist you in making a change to PhenylAde GMP or any other Nutricia product.  They can verify insurance benefits, help you find a supplier and more.

CLICK HERE TO LEARN MORE ABOUT OUR SERVICES

*This product is for use under medical supervision.  Please consult your metabolic healthcare professional prior to making any changes to your PKU diet plan.

 

Flying with Formula – Tips for your Next Trip

Flying with Formula – Tips for your Next Trip

airplane girl image

If you are planning a flying vacation, before you book, contact your airline’s customer service department to notify them of your travel requirements as soon as you can.  Airline policies regarding travelling with metabolic formula will differ so it is worth checking with a customer service representative before you arrive at the airport.

Airplane food is generally not PKU or low protein diet-friendly so you may need to pack (or purchase prior to boarding) any food or snacks you think you might need during the flight.

If you are booking an international flight you will need to order a special meal. Please note that even meals listed as low-protein or vegetarian/vegan may not be low enough in protein for the PKU diet, so explain your dietary requirements clearly.

Airline Tips

  • Always take a travel letter from your clinic explaining your medical condition, especially for international travel

  • Always pack extra PKU or metabolic formula in your carry-on bag in case of delays

  • Do not mix PKU or metabolic formula powders with liquid until you go past the security screening checkpoint

  • Keep your PKU or metabolic formula in its original sealed containers (packages, cans or sachets)

  • Take a copy of your child’s diet prescription with you

  • Take plenty of snacks for the flight

Useful PKU Traveler’s Tip

  • It may be useful to switch to a powdered PKU or metabolic formula when travelling abroad, to reduce your overall luggage weight. However, ready-to-drink pouches that don’t require mixing are also particularly convenient when traveling. Contact your dietitian for more information on these options

  • If you are traveling overseas, ask your metabolic healthcare professional team for information on where low-protein food supplies can be obtained in your destination country

  • If you are shipping your PKU or metabolic formula or food to a hotel prior to your arrival, be sure to label the box clearly with your name and arrival date on the package. Call and alert the hotel that a shipment will be arriving for you.

*Reference Source: My PKU Binder. National PKU Alliance. Chapter 11: Traveling, Page 88-89.