Hello! We hope everyone is safe and well. Staying home with school aged children is not always easy. To help provide an educational activity, we are proud to share a printable copy of My PKU Coloring Book.
This activity book is full of fun and educational coloring pages, word searches and other games to keep your school-aged child and their siblings engaged and learning about Phenylketonuria (PKU).
Dining out can seem tough on a low protein diet, but it’s not impossible. Here are some helpful tips for going out, including what to look out for and how to prepare for a fun time on the town.
Plan ahead as much as possible If you can, view the menu online ahead of time. Call the restaurant to ask any questions you have. They may even allow you to bring low protein products from home so the kitchen can make a special dish.
Try to leave enough protein allowance For yourself or your loved one on a low protein diet, try to leave enough protein allowance for your meal. Track breakfast and lunch so that you know how much is left for dinner at a restaurant.
Pro tip: ingredient card Create a card that lists the foods you or your loved one must avoid, and give it to your server or share with the kitchen staff. Consider listing meat, fish, cheese, eggs, beans, soy products like tofu, seeds, and nuts.
Ask questions and be aware of “hidden protein”
Don’t be afraid to ask questions about what’s on the menu. In recent years, many restaurants have become used to questions about ingredients and dish preparation. You always want to know what’s in your food.
Also, be sure to avoid “hidden protein.” This is when an ingredient contains a high-protein element but often the name does not say it. An example is Caesar Salad Dressing, which often contains anchovies, although you would not know that from the dressing’s name.
FYI: The following ingredients may contain high protein foods:
*Phenylalanine is important for those with Phenylketonuria (PKU) and Tyrosinemia (TYR) to track.
If you or your loved one has PKU, we have these tips printed on our Dining Out with PKU education guide. Download your copy in English or Spanish on our Learning Center page.
The holidays can be an exciting time of year. However, they can be a bit challenging for someone on a restricted diet as most festivities center around food. This blog focuses on tips for managing a restricted diet during the holiday season.
The most important thing to do is plan ahead. The more you know in advance, the better you can plan.
Here are some questions to ask yourself:
Where will I be spending the holidays, and how long will the trip be?
Do I have enough formula so I do not run out while away over the weekend?
Am I dining at home or at someone else’s home?
Will I be preparing the food, or will someone else be?
Once you know more about what your day/ weekend will look like, you can make a plan.
One key thing is to plan the menu in advance. If you are not dining at home, but at a friend’s or relative’s home, it will be important to ask what is being served, then…
Ask if you can bring a side dish (one that is suitable for you, but enough for everyone to share).
Let them know about your dietary needs so they can omit or serve items on the side that are not suitable for a low protein diet, like cheese or bread crumbs.
See if you can access the kitchen to re-heat or make additional low protein items for the holiday meal.
Many traditional holiday favorites can be modified to reduce the protein while still keeping the taste and texture you and others love.
Find our simple recipe for reduced protein mashed potatoes here – this dish is sure to become a family staple at your holiday meal.
And end your holiday meal on a sweet note with this low protein dessert. This is a dish everyone at your holiday gathering is sure to enjoy!
Easy Pumpkin Pudding
Recipe developed by Sarah Marshall, classical Phenylketonuria (PKU)
1 fl oz water
7 fl oz coconut milk (full fat, canned coconut milk required to get pudding-like consistency)
6 whole pistachios (for flavor, to be strained out later)
½ Tbsp brown sugar
¼ tsp pumpkin pie spice (or blend of cinnamon, ginger and nutmeg)
In a small saucepan, add 1 oz water, 7 oz coconut milk, and 6 pistachios.
Bring to a boil. Immediately when it begins boiling, add brown sugar, vanilla, and pumpkin pie spice. Stir.
Add Loprofin Rice. Stir. Cover, and lower heat to simmer covered for 10 minutes.
Once rice is cooked, remove pistachio pieces.
Serve warm or cold.
Makes 2 servings
And most of all……
Holidays do not have to be all about food. Make your holidays memorable with family traditions, such as a family football game or a checkers tournament.
Happy Thanksgiving to you and your family from Nutricia!
Loprofin brand Rice is a medical food for the dietary management of inherited metabolic disorders, renal or liver failure requiring a low protein diet, and other medical conditions where a low protein diet is indicated. Must be used under medical supervision.
Always consult a metabolic healthcare professional prior to making any diet changes.
A not-so-spooky recipe for gatherings and parties this season
Happy October! Halloween will be here in a flash, and our team at Nutricia wants to share with you and your family a simple low protein Halloween snack: marshmallow squares made with our Loprofin Cereal Loops!
Nutricia Loprofin Cereal Loops are perfect for a satisfying low protein breakfast, as well as special treats like this! Available at MedicalFood.com.
With a delicious base recipe and endless decoration possibilities, this treat is ideal for Halloween gatherings and trick-or-treat parties where you and your family would like to include a low protein option.
Click here for our low protein cereal marshmallow treat recipe and nutrition information. These treats are frighteningly simple to make because the recipe calls for just 3 ingredients! As an added bonus, the recipe is ready in a matter of minutes.
With the base recipe complete, add some Halloween flair:
Fun candy eyes*:
*Candy eyes were purchased at a party store and contain 0 g protein per 1 tsp serving size, per Nutritional Facts label on the back of the package.
You can also insert Halloween cupcake toppers into the squares if you don’t want to add any additional food ingredients to the treats. Themed cupcake toppers can be found in party stores and even grocery stores during this season.
Lastly, adding simple paper decorations to your plate is another easy way to get into the Halloween spirit:
Enjoy, and Happy Halloween to you and yours from the Nutricia team!
Check out our Facebook page for more fun recipes and gathering ideas!
Loprofin brand cereal Loops is a medical food for the dietary management of inherited metabolic disorders, renal or liver failure requiring a low protein diet, and other medical conditions where a low protein diet is indicated. Must be used under medical supervision.
Brady and Quinn drink PhenylAde® GMP Drink Mix and start owning their PKU diets
Do you remember the moment you got the call about your child having an inborn error of metabolism?
In this video, Allyson Mullen shares her heartfelt story about that moment. Her sons Brady and Quinn received classical Phenylketonuria (PKU) diagnoses, which scared Allyson at first. Allyson opens up about what she’s learned as a parent and how Brady and Quinn have started taking on responsibility for their PKU management.
Allyson also shares why the Mullen family made the move to PhenylAde GMP Drink Mix for the boys’ PKU formula. Spoiler Alert: Brady actually called this formula “delicious,” and mom Allyson loves it because the formula contains glycomacropeptide (GMP). GMP is made from a whole protein source, and Nutricia’s PhenylAde GMP Drink Mix has a creamy, mild vanilla flavor with a smooth drinkable texture. It is also available in an original plain flavor.
Watch now to hear more about Allyson Mullen’s proud moments and why her boys love PhenylAde GMP Drink Mix.
Brady and Quinn Mullen made the move to PhenylAde GMP Drink Mix for their PKU formula.
Will your family give it a try?
PhenylAde GMP Drink Mix is a medical food for the dietary management of proven Phenylketonuria (PKU) and must be used under medical supervision.
Always consult a metabolic healthcare professional prior to making any diet changes.
“I feel like I’m pulled in four different directions all
summer!” says Heather Bomar of Brentwood, Tennessee, in describing her busy but
fun summer season. Her four children, including 12-year-old Ellis who has
classical Phenylketonuria (PKU), do a variety of activities over the summer.
This means Heather spends much of the warmer months making sure they get where
they need to go.
In thinking about the back-to-school season, Heather
reflects that the new year brings a new routine:
“The kids actually love the new schedule and seeing who’s in
their classes,” shares Heather. The new routine also helps keep Ellis’
phenylalanine (PHE) levels in check, since the school year means set meal times
and fewer impromptu gatherings that may or may not have low protein food
With Ellis heading into 7th grade, Heather is very familiar with back-to-school planning that works well for both Ellis and the family:
First, Heather meets with Ellis’ new teacher at the beginning of each school year to run through the basics of Ellis’ condition and diet. Second, she recommends co-creating a plan with the teacher, if necessary, to provide the best chance of success for a student with PKU, such as the student sitting in one of the least distracting places in the classroom.
One of the most top-of-mind topics for parents of children with PKU is school lunch. The Bomars send Ellis to school with lunches packed at home. It’s a system that works for Ellis and the family. For her PKU formula, Ellis drinks PhenylAde® GMP Mix-In formula at school. When asked about snacks and lunch items, Heather responds without hesitation that Ellis’ favorite is “anything that she can dip in Ranch dressing!” Examples include celery, carrots, and peppers.
Other lunch favorites of Ellis’ include dried fruit, especially store-bought freeze-dried strawberries and apples. After school or at home on the weekends, Ellis enjoys low protein crackers smeared with butter and salt, a snack that Heather sometimes shares with her daughter as they catch up and talk about Ellis’ middle school, which Heather also attended!
Outside of lunchtime and PKU management, Ellis’ 7th grade year will revolve around establishing her sense of self:
“Ellis loves school and has a good group of friends,” reflects Heather, “and she’s focused on finding her identity in things outside of PKU.”
As advice to other parents raising children with PKU, Heather takes a step beyond day-to-day food prep and considers the full parent-child relationship: “Stick with them through the highs and lows,” says Heather, “Keep up open conversations.”
Loprofin Mix is an all‐purpose, low protein baking mix, great for cooking and home‐made pastries. A packet of yeast is provided in each box, making baking easy, especially bread. Nutricia also offers Loprofin Chocolate Cake Mix, great for any chocolate cake or muffin recipe. Tasty recipes, such as breads, naan, cupcakes, gingerbread and many more can be found here!
Loprofin Mix is a great substitute for Wel‐Plan Baking Mix, which is unfortunately no longer available. Several low protein expert chefs shared that they substitute Wel‐Plan Baking Mix with Loprofin Mix at a 1:1 ratio. For example, if a recipe asks for one cup of Wel‐Plan, you would use one cup of Loprofin Mix. We have also test‐baked a few low protein bread recipes from “Apples to Zucchini”, a cookbook by Virginia Schuett and Dorothy Corry, and confirmed that Wel‐Plan can be substituted at a 1:1 ratio with Loprofin Mix for many bread recipes. Check out these recipes with Loprofin Mix that work for making bread – with or without a bread machine!
Many of you relied on Maddy’s Homestyle baking mixes as convenient, quick mixes. We developed recipes where you can use the Loprofin Mix to make the same baked goods. New Loprofin recipes such as, sugar cookies, banana bread and blueberry muffin, to list just a few can be found here.
Look out for our future blogs on holiday cooking and baking, as well as making the low protein kitchen convenient, quick and tasty!
For children with an inborn error of metabolism, Halloween celebrations can be tough since protein-containing candy and snacks tend to be the classic party staples. Additionally, these celebrations can be scary on parents as they want their children to fully enjoy in the festivities while maintaining their dietary restrictions.
Here are a few tips, resources, and recipes to help make Halloween fun while staying on a diet low in intact protein:
Speak with teachers or other parents about what your child can and cannot have at Halloween parties or school
Also talk with your child about the importance of staying on diet and remind them to check with you to determine if a particular food or candy is
Now to the Fun Stuff:
Get creative with Halloween Have non-food treats to hand out at home or at school. Think dollar store toys, stickers, party favors, and coloring books.
Plan an alternative activity to trick-or-treating, such as Halloween slumber party, game night, craft party, or a scavenger
Supply low-protein treats for your child’s Halloween parties and festivities so he/she has something to enjoy and doesn’t feel left out – View Halloween Cupcake Recipe
Consider having a “swap-party” where your child can swap candies he/she cannot have for “allowed” This way everyone gets what they want!
Make your child’s metabolic formula festive! Serve it in a Halloween- themed cup, use fun straws, or add some orange food
Post Your Formula ‘Dressed-Up’ for Halloween and TAG Nutricia!
Halloween Low Protein Cupcakes
Surprise a special someone or treat yourself to a Halloween cupcake. These cupcakes are made with Loprofin Baking Mix. They are easy to make and great for at home, work or parties.
Cream together margarine and sugar until light and fluffy
Add LoprofinBakingMix, egg replacer, and baking powder into the creamed mixture and mix well
Add water, vanilla extract and orange food coloring gradually, mix until smooth
Spoon batter into paper cups filling each cup about 2/3 full and bake for approximately 10-15 minutes
Let cool on a baking rack
Decorate with frosting and candy corn
Note: Any additional frosting or decorations may add additional protein, phenylalanine, leucine or calories, be sure to read labels and account for any topping or decorations.
All Nutricia products shown are for the dietary management of inborn errors of metabolism and must be used under medical supervision. Please consult your metabolic healthcare professionals prior to making any changes to your diet.
Written in collaboration with Katie Maguire, PKU Adult and 2nd grade school teacher
I don’t know about you, but it was stressful for my parents sending me off to school in September knowing that I would be making many food choices on my own without them present.
ALL children should be able to make healthy food choices. Children with PKU, MSUD, TYR or other metabolic disorders are no different.
Learning healthy choices can begin at a young age when you grocery shop and prep food in the kitchen together.
10 Low Protein Lunch Tips for Back-to-School
Pack lunch in fun, creative containers in all different sizes.
Use an insulated lunch tote with ice packs to keep food and formula cool.
Make lunch colorful with a small amount of different veggies, such as baby carrots, cherry tomatoes, cucumbers, yellow peppers, etc.
Prepare, weigh and measure food ahead of time to speed up mornings.
Give your child a low protein “surprise” snack like homemade cookies or a cupcake.
Write a special ‘good job’ note or include a sticker 2-3 times a week.
Send formula in a fun re-usable drink container or sports bottle.
Plan ahead with a 5-day menu to ease grocery shopping and food prep.
Try a ready-to-drink formula if unable to mix formula at school.
Involve your child in shopping, prepping and weighing their own lunch.
Ask your clinic about Ready-to-Drink Formula for school children
Periflex® LQ is a great tasting, ready-to-drink that provides 15 g of protein equivalents with 0 mg of PHE. (For PKU Only). Great for school lunch!
Nutricia also offers the Lophlex® LQ line of Ready-to-Drink formula options for Maple Syrup Urine Disease (MSUD), Tyrosinemia (TYR), Homocystinuria (HCU) and Phenylketonuria (PKU).
Lophlex LQ is a low volume, quick and easy way to get 20 g of protein equivalents.
As always, check with your dietitian if these products are appropriate for your child prior to making any changes to their diet.
Ask your clinic about Periflex LQ or Lophlex LQ Today!
Periflex LQ is a medical food for proven Phenylketonuria (PKU). Lophlex LQ is a medical food for proven Maple Syrup Urine Disease (MSUD), Tyrosinemia (TYR), Homocystinuria (HCU) or Phenylketonuria (PKU). Must be used under medical supervision. Please consult a metabolichealthcare professional prior to making any changes in your child’s diet.
The return to school is an exciting time of year. But for a parent of a child with a metabolic disorder, such as Phenylketonuria (PKU), there are also certain concerns and stresses that comes with the start of school.
Each year you may be faced with educating a new teacher or school nurse about PKU.
What is PKU?
How it is Treated?
What that means to the teacher and fellow students…
Nutricia Metabolics is proud to share an educational handout to help you inform your child’s new teacher and/or school nurse about PKU.
It includes information about What PKU is, What happens, How it is treated with additional classroom tips for the teacher.
Nutricia also provides information and education available about other rare metabolic disorders such as Maple Syrup Urine Disease (MSUD), Tyrosinemia (TYR), Glutaric Aciduria Type-1 (GA-1), Homocystinuria (HCU) and more available online at medicalfood.com/connect