by – Katie Maquire, Adult with PKU – guest blogger
I don’t know about you, but it was pretty stressful for my parents sending me off to school in September knowing that I would be making many food choices on my own without them present.
ALL children should learn to make healthy food choices. Children with PKU are no different. Learning to eat low protein and healthy can begin at a young age when you are grocery shopping or prepping food together in the kitchen.
PKU Friendly Lunch Tips for Back-to-School:
Pack lunch in fun, colorful containers in all different sizes.
Use an insulated lunch tote with ice packs to keep food and formula cool.
Make lunch colorful with a small amount of different veggies, such as baby carrots, cherry tomatoes, cucumbers, yellow peppers, etc.
Prepare, weigh and measure food ahead of time to speed up mornings.
Involve your child in shopping, prepping and weighing their own lunch.
Write a special good job note or include a sticker 2-3 times a week.
Send formula in a fun re-usable drink container or sports bottle.
Plan ahead with a 5-day menu to ease grocery shopping and food prep.
Katie Maguire is an adult with PKU. She is currently a second grade school teacher.
*Important: You must consult a metabolic healthcare professional prior to making any changes in your child’s PKU diet plan.
Looking for a new Back-To-School PKU Formula? For a limited time:
You may have heard the news, and if not, we are glad you stopped by.
The past couple of years have been exciting as we have enhanced our products to be in line with the latest nutritional guidelines and grow with patients from infancy to adulthood.
We proudly introduced our Anamix® Early Years line for infants with the added benefits of DHA & ARA and prebiotic fiber to be closer to breast milk than ever before*! In addition, we launched the Anamix® Next line of products, which contain added DHA & a multi-fiber blend.
Having improved our Metabolic formulas we are no longer suppling Maxamaid** and Milupa formulas after June 2017 or until supplies last. Please see attachments for specific products and alternative options to transition to.
We are confident that these changes are in the best interest of metabolic patients; however, we certainly understand the challenges that may come with transitioning to new formula. If you are currently using a Maxamaid or Milupa formula please follow the steps below to start your transition:
Contact your clinic/healthcare professional to find other products within our portfolio and start the transition process. You can view our formulas by disorder below but please do not initiate a transition on your own.
If you have questions regarding insurance reimbursement, contact our Reimbursement Care team Monday – Friday 8:30am – 5:00pm EST at 1-800-605-0410.
If you have product related questions or need help finding a supplier for your new formula, contact our Customer Service team Monday – Friday 8:30am – 5:00pm EST at 1-800-605-0410
Please know our goal is to provide the best nutrition possible, and we are committed to bringing the best metabolic products to you and your family.
The Nutricia Metabolic Team
*Compared to Nutricia’s Periflex Infant and Analog formulas
** With the exception of XMet, XCys Maxamaid
The holidays can be a tough time for many people, especially those on a restricted diet. The most important thing about managing PKU, any other inborn error of metabolism or a low protein diet during any holiday season is to plan ahead. The more you know in advance, the better you can plan.
These are some questions to ask:
Where will I be spending the holidays and how long will the trip be?
Do I have enough formula so I do not run out over the weekend?
Am I dining at home or at someone else’s home?
Will I be making the menu or someone else?
Once you know more about what your day/weekend will consist of, you can make a plan.
One key thing to plan in advance is the menu. If you are not dining at home, but at a friend’s or relative’s home, it will be important to ask what is being served, then…
Ask if you can bring a side dish (one that is low protein for you, but enough for everyone to share).
Let them know about your dietary needs so they can omit or serve items on the side that are not low protein friendly, like cheese or bread crumbs.
See if you can access the kitchen to re-heat or make additional items for the holiday meal.
Many traditional holiday favorites can be modified to reduce the protein, while still keeping the taste and texture you and others love. Here are some recipes with small changes to lower the protein content — they are sure to become family staples at your holiday meals:
Reduced Protein Mashed Potatoes
2 cups (248 g), Cauliflower, florets
2 cups (312 g), White potato, peeled and cut into pieces
1 cup (156 g), Parsnips, peeled and cut into pieces
¼ cup (56 g),Non-dairy creamer, liquid
2 tablespoons (28 g),Margarine, dairy-free
To taste (2-3 g), Salt and pepper
- Boil potato and parsnip in a large pot until they begin to soften.
- Add cauliflower and continue to cook until soft and tender.
- Drain water.
- Place all ingredients in a food processor and blend until smooth.
- Salt and pepper to taste.
Makes 7 servings (115 g per serving)
Protein 2 g P HE 67 mg Calories 105
End your holiday meal on a sweet note with this low protein apple cobbler for dessert. This is a dish everyone at your holiday gathering is sure to enjoy!
Low Protein Apple Cobbler
8 cups (880 g), Apples, peeled, cored, sliced
½ cup (110 g), Brown sugar, packed
1/3 cup (67 g), Sugar, granulated
¼ cup (28 g), Corn starch
2 tablespoons (31 g), Lemon juice
½ teaspoon (1.3 g), Cinnamon
½ teaspoon (1 g), Nutmeg
1 can (400 g), Maddy’s Homestyle Sugar Cookie Mix
8 tablespoons (1 stick), Margarine, dairy-free
- In a large bowl, combine Maddy’s Homestyle Sugar Cookie Mix and margarine.
- Blend until mixture is fully combined (resembles coarse crumbles)
- Set aside
- In a second large bowl, combine all other ingredients.Stir.
- Place apple mixture into a greased 9 x 12 inch pan.
- Spoon cookie mixture over top of apples, evenly.
- Bake at 375° F for 35-45 minutes (until apples are tender and topping is lightly browned.)
Makes 12 servings (124 g per serving)
Protein 0 g PHE 8 mg Calories 215
And most of all…
Holidays do not have to be all about food. Make your holidays memorable with family traditions, such as a family football game or checkers tournament.
Happy Thanksgiving from
November 11-13, 2016 – Harrisburg, PA
Deadline to Register: November 7, 2016
Join together for a weekend of of fun, learning and new friendships. This event is recommended for those currently on-diet or wanting to get back to the PKU diet.
The weekend will focus on learning more about PKU and improving diet management skills.
Friday, November 11, 2016
6:00 pm – 8:00 pm – Registration with Vendor Booths
Saturday, November 12, 2016
8:30 am – 4:00 pm – Teen & Adult Focused Education Sessions
- The Science Behind Staying on Diet – Dr. Mitzi Grant, Drexel University
- The Simplified PKU Diet – Kayt Marra, MA, RD, CDM, CCRP, University of Albany
- Communication and Personal Advocacy – Sharon Ernst, MPH, RD, CSP, FAND, Linda Leuffgan, RD & Rachel Flar, Reimbursement Specialist
BREAKOUT SESSIONS (Attend 3 Sessions)
- Contemporary Issues for Adults with PKU
- Life On Campus for Teens & Young Adults with PKU
- Meal Planning and Healthy Eating
- Finding Low Protein Foods at Your Local Supermarket
5:00 pm – 10:00 pm – Trip to Hersheypark for Dinner & Rides!(optional)
Sunday, November 13, 2016
8:30 am – 12:00 pm – Low Protein Cooking Workshop
Spend the morning in small groups learning new low protein recipes and simple techniques for preparing delicious low protein meals in minutes. Rotate through a variety of stations, each with a personal recipe guide and tasting! This workshop is going to be unique and delicious!
1006 Briarsdale Road, Harrisburg, PA, 17111 (about $64 – $75 per night)
800 East Park Drive, Harrisburg, PA, USA 17111 Phone: (717) 545-9595 (about $150 per night)
4230 Union Deposit Rd, Harrisburg, PA 17111 Phone: (800) 644-3144 (about $130 per night)
Questions? Contact Sandy.Simons@nutricia.com
My child would eat pasta every day, every meal if I let him. It is great he found a food he enjoys, but I want my son to eat more vegetables and other healthy foods that provide fiber and other nutrients.
Here are some ideas to feed your child’s low protein pasta cravings, but to make your low protein pasta last longer and provide more dietary variety.
Dicing carrots and celery (the smaller the better for young kids) and simmering in a vegetable broth with low protein pasta added is a low pro and filling lunch or dinner. You can use Loprofin Animal Pasta, Rice, or broken Spaghetti to keep it new and exciting. Fresh dill adds a great ‘soup’ flavor and expand your child’s taste palate.
Bulk up your Low Protein Spaghetti by mixing with Zucchini or Yellow Squash noodles. With a spiral vegetable slicer this only takes minutes and can really satisfy a bigger appetite.
Spicy Vegetables over Low Pro Rice Pasta
You can do so many different meals with fresh or frozen cauliflower and carrots, which are both naturally quite low in protein. Often, people on a low protein diet enjoy spice. Check out this recipe for Indian Curry with Loprofin Rice.
Dish it out slow
I often serve my son a small amount of pasta, which he gobbles up. Then ask him to eat 3-4 bites of the vegetables on his plate. Once done I serve another small portion of pasta and repeat. All children are motivated differently, but that love of pasta usually is an incentive to eat more veggies at meal time.
Roll it up
Kids love to eat with their hands (or at least my son does). Use Loprofin Lasagna to make a salad roll-up or other roll-up filled with veggies. Try filling a pasta roll-up with a blend of mashed potato and mashed cauliflower for a yummy kid friendly dinner entree.
Order Loprofin Low Protein Pasta online at medicalfood.com
Written by Sandy Simons, MA, RD, CHES
A Whole New Way to Think About PKU Nutriton
PhenylAde® GMP Drink Mix contains Glycomacropeptide (GMP), made from a whole protein source. It has a smooth, mild vanilla flavor AND is a GMP based PKU product with both DHA & Fiber.
Talk to your metabolic dietitian or clinic about a PhenylAde GMP today!
DID YOU KNOW…
Nutricia has a team of Reimbursement Care Specialists to assist you in making a change to PhenylAde GMP or any other Nutricia product. They can verify insurance benefits, help you find a supplier and more.
*This product is for use under medical supervision. Please consult your metabolic healthcare professional prior to making any changes to your PKU diet plan.
Nutricia recently launched PKU Periflex® Junior Plus, a new addition to the Periflex family, with the goal of providing the best in PKU nutrition to your child. Towards this goal they have improved Periflex® Junior based on latest medical and scientific knowledge.
Available in Berry, Orange, Plain and Vanilla
Learn more about PKU Periflex Junior Plus
PKU Periflex Junior Plus has been improved to now provide DHA and Fiber for your child
- DHA is an omega-3 fatty acid found to be lacking in the typical PKU diet
- Nutricia’s own patented Multi-Fiberblend was added to help support your child’s overall gut health.
DID YOU KNOW IT CAN TAKE SEVERAL ATTEMPTS FOR A CHILD TO GET USED TO A NEW FOOD OR PKU FORMULA?
For some kids, a change in formula can be challenging. Some kids may need to try new foods/formula many times before acquiring a taste for it. So please be patient if that is the case with your little one.
To help we have created the PKU Periflex Junior Plus Activity Book.
Help your child transition to PKU Periflex Junior Plus with this fun, interactive activity book
Call 800-605-0410 to request a FREE Copy
Be sure to talk to your dietitian or clinic about a transition plan. They can provide a plan that will guide you step by step to make a slow and stead move to the new product by mixing the new product and current product together to aid your child in making a successful change to PKU Periflex Junior Plus.
Request a Sample Now
Written by Linda Leuffgen, RD – Medical Affairs Associate, Nutricia North America
There are a growing number of options when it comes to low protein food. One of your options includes buying direct from the company, which could add up to a cost savings for you.
For example, Loprofin brand pasta by Nutricia is available online in more than one place, but buying direct from Nutricia’s website www.medicalfood.com provides up to a $2 per box savings per box compared to other online low protein food shops when purchased by the case.* This can up to BIG savings when buying 6, 12 or 24 boxes in one order.
Quantity per unit is also another important item to explore. Some products may appear similar in nature and have the same cost per unit. But with a closer look you may see that one product unit may only provide 10 oz while the other supplies 16 oz. You want to compare you prices by ounce or gram to determine the best value for your money.
Next time you are ready to place a low protein food order, compare the volume and cost. Also consider buying direct from the company and registering on their webistes for special offers and promotions.
Written by Sandy Simons, MA, RD, CHES
Sandy works for Nutricia North America.
*based on prices published online by PKU Perspectives as of September 22, 2014. Varies based on product.