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Category Archives: Low Protein Diet Tips

Back to College Interview with James Fryer

Reflections from a rising sophomore managing PKU and a busy schedule

This time last year as James Fryer was beginning his first year of college at Willamette University, he knew he was heading into a big life transition. Some of the adjustments proved more stressful than he anticipated.

“Always remembering, on my own, to have an adequate supply of formula,” reflects James on one of his PKU management tips. His hometown and college are in different cities, meaning preparation is very important.

Good thing James is a planner. He thrives on a schedule, whether for formula supply or diet and wellness, and is a master at making them. “I look at my schedule to see where I have time to cook versus go for a run,” shares James. This is a prime example of James’ planning that he feels led him to be successful not only in the classroom but also on the soccer field, becoming part of Willamette’s club soccer team.

James tried PhenylAde GMP READY as part of his daily routine. Will you?

Another campus group important to James are the chefs who prepare James’ food. “Willamette has taught me new, interesting things about [cooking] vegetables,” says James.

He got close to one of the university chefs this past year who was dedicated to James’ diet. The chef introduced the freshman to new things, such as fried cauliflower “rice” and utilizing all types of spices like turmeric and paprika. It’s a great relationship that James hopes to continue.

“Perhaps the biggest mistake I made was not stocking enough prepared snacks around the dorm”

-James

Outside the dining hall and back in his dorm room, James learned a lesson he’s eager to share with other college-bound PKU’ers, “Perhaps the biggest mistake I made was not stocking enough prepared snacks around [the dorm].” By the end of the year, James had a nice stockpile of low protein snacks, including low protein cereal, his standby. And another favorite snack that he’ll be continuing to eat this year? James is ready with an answer: “Dried cranberries!”

For handy and filling dorm snack, try Loprofin Loops low protein cereal

Other “grab-and-go” food on hand included dried jackfruit, which his dad got for him, and which ended up being popular among his friends. Applesauce cups and low protein rice cereal treats also helped James stay full and fueled between meals.

“If you’re constantly hungry,” James recommends to other PKU college students, “consider talking [to your metabolic healthcare professional] about adjusting formula or food, versus going off diet.”

With a new school year on the horizon, James is looking to stay on track diet-wise to help him succeed at new heights on the field and in the classroom. In fact, he’s hoping to declare a major this year, potentially math. With club soccer, he shares that he’s interested in building a soccer community around him, which ties into another goal of establishing relationships that go deeper than the differences in his diet.

Good luck with sophomore year, James! And be sure to pack plenty of dried cranberries!

PhenylAde GMP READY is a medical food for the dietary management of proven Phenylketonuria (PKU) and must be used under medical supervision.

Always consult your metabolic healthcare professional prior to making any changes to your diet. 

© 2019 Nutricia North America

Back to School Interview with Heather Bomar

Heather, right, with daughter Ellis

Tips and wisdom from a parent of a PKU 7th grader

“I feel like I’m pulled in four different directions all summer!” says Heather Bomar of Brentwood, Tennessee, in describing her busy but fun summer season. Her four children, including 12-year-old Ellis who has classical Phenylketonuria (PKU), do a variety of activities over the summer. This means Heather spends much of the warmer months making sure they get where they need to go. 

In thinking about the back-to-school season, Heather reflects that the new year brings a new routine:

“The kids actually love the new schedule and seeing who’s in their classes,” shares Heather. The new routine also helps keep Ellis’ phenylalanine (PHE) levels in check, since the school year means set meal times and fewer impromptu gatherings that may or may not have low protein food options.

With Ellis heading into 7th grade, Heather is very familiar with back-to-school planning that works well for both Ellis and the family:

Download our Teachers and School Nurses PKU Education Guide to hand to your child’s teachers or use during parent-teacher meetings! Check out other PKU educational materials on the Nutricia website.

First, Heather meets with Ellis’ new teacher at the beginning of each school year to run through the basics of Ellis’ condition and diet. Second, she recommends co-creating a plan with the teacher, if necessary, to provide the best chance of success for a student with PKU, such as the student sitting in one of the least distracting places in the classroom. 

One of the most top-of-mind topics for parents of children with PKU is school lunch. The Bomars send Ellis to school with lunches packed at home. It’s a system that works for Ellis and the family. For her PKU formula, Ellis drinks PhenylAde® GMP Mix-In formula at school. When asked about snacks and lunch items, Heather responds without hesitation that Ellis’ favorite is “anything that she can dip in Ranch dressing!” Examples include celery, carrots, and peppers.

Ellis drinks PhenylAde GMP Mix-In formula at school. Will your family give it a try this year?

Other lunch favorites of Ellis’ include dried fruit, especially store-bought freeze-dried strawberries and apples. After school or at home on the weekends, Ellis enjoys low protein crackers smeared with butter and salt, a snack that Heather sometimes shares with her daughter as they catch up and talk about Ellis’ middle school, which Heather also attended!

Outside of lunchtime and PKU management, Ellis’ 7th grade year will revolve around establishing her sense of self: 

“Ellis loves school and has a good group of friends,” reflects Heather, “and she’s focused on finding her identity in things outside of PKU.”

As advice to other parents raising children with PKU, Heather takes a step beyond day-to-day food prep and considers the full parent-child relationship: “Stick with them through the highs and lows,” says Heather, “Keep up open conversations.”

… And don’t forget the Ranch dressing!

Read on for 10 More Low Protein Lunch Tips for School:   http://www.lowproliving.com/lunchtips/

PhenylAde GMP Mix-In is a medical food for the dietary management of proven Phenylketonuria (PKU) and must be used under medical supervision.

Always consult your metabolic healthcare professional prior to making any changes to your diet.

© 2019 Nutricia North America

10 Reasons to Try Phlexy-10 Tablets

Did you know… Drinking PKU formula isn’t your only option?

There is another option to help get the daily PKU formula you need.*   Nutricia is proud to offer the option of PKU formula in tablet form. 

  • Phlexy-10 Tablets are a discreet and convenient way to take your formula. 

  • Use in addition to your current formula to help reduce the amount you need to drink. 12 Tablets = 10 g of Protein Equivalents

  • May be used as your main PKU formula instead of drinking PKU formula


 10 reasons to use Phlexy-10® Tablets for PKU

  1. Help meet your total daily formula intake, by taking tablets at night to replace that last serving of formula that you may be already skipping

  2. Convenient to take when drinking formula is not, like before sports practice or other after school activities

  3. Tablets won’t cause your locker or work area to smell like formula

  4. Lightweight source of protein (PHE-free) when hiking or camping

  5. A way to take in PKU formula when you just don’t want to drink it

  6. Prevents having to explain about your “special drink” in social settings

  7. Keep in your purse or back-pack for times you forget your formula at home

  8. Easy to take on a plane, train or other times when you will be away from home for long periods of time

  9. No messy liquid spills in your bag, purse or locker

  10. A quick and easy source of phenylalanine-free protein you can take just about ANYWHERE!


What is your top reason to try PKU Formula in Tablet Form?  Do you have another reason not listed?    Let us know!

 DietForLife@Nutricia.com

 

*Always talk to your metabolic healthcare professional prior to making any changes to your PKU diet.


Phlexy-10 Tablets are a phenylalanine-free medical food in tablet form, containing a mix of other essential and non-essential amino acids and small amounts of carbohydrate and fat. For the dietary management of proven Phenylketonuria (PKU), suitable for individuals over 8 years of age, including pregnant women and women of childbearing age. Must be used under medical supervision. Does not contain vitamins and minerals; must be combined with an appropriate vitamin and mineral supplement when taken as primary source of PKU medical food.

© 2019 Nutricia North America

Loprofin Pasta and the delicious taste of Italy

Ever wonder where Loprofin Pasta is made?

Meet Lorenzo Mennucci. The Mennucci family began making Loprofin Pasta almost 50 years ago in Tuscany. It is now in its fifth generation and is managed by Lorenzo Mennucci. In 1877, Giuseppe Mennucci started making pasta in a small grocery store in the countryside of Tuscany. At that time, the process of making and drying the pasta was carried out in the courtyard under the sun. This all nearly ended during the Second World War, when the company was bombed and partially destroyed. After the bombing, the Mennucci family was quick to rebuild the factory. During the rebuilding process, all pasta machines that were not destroyed were moved into local homes near Tuscany to maintain the production of pasta.

The Mennucci family are very passionate about using the highest quality of ingredients which are mainly sourced from Italy. There are only four ingredients in low protein pasta which are mainly starches; corn, potato, rice and coloring (annatto). Lorenzo believes that when there are so few ingredients in a product it is important that you use the highest quality of ingredients.

The main difference in the production of low protein pasta and ordinary pasta is that gluten is the protein that binds the dough in ordinary pasta. For low protein pasta, steam is used instead to bind the starches together to make a dough. Low Protein Pasta is made using spring water that comes from the Tuscan mountains.

See for yourself where our Loprofin Pastas are made in this video  of the Mennucci family!

View recipes made with Loprofin Low Protein Pasta at MedicalFood.com/Recipes 

Loprofin Baking Mix – A versatile low protein baking mix

Loprofin Mix is an all‐purpose, low protein baking mix, great for cooking and home‐made pastries. A packet of yeast is provided in each box, making baking easy, especially bread. Nutricia also offers Loprofin Chocolate Cake Mix, great for any chocolate cake or muffin recipe. Tasty recipes, such as breads, naan, cupcakes, gingerbread and many more can be found here!

Loprofin Mix is a great substitute for Wel‐Plan Baking Mix, which is unfortunately no longer available. Several low protein expert chefs shared that they substitute Wel‐Plan Baking Mix with Loprofin Mix at a 1:1 ratio. For example, if a recipe asks for one cup of Wel‐Plan, you would use one cup of Loprofin Mix. We have also test‐baked a few low protein bread recipes from “Apples to Zucchini”, a cookbook by Virginia Schuett and Dorothy Corry, and confirmed that Wel‐Plan can be substituted at a 1:1 ratio with Loprofin Mix for many bread recipes. Check out these recipes with Loprofin Mix that work for making bread – with or without a bread machine!

Many of you relied on Maddy’s Homestyle baking mixes as convenient, quick mixes. We developed recipes where you can use the Loprofin Mix to make the same baked goods. New Loprofin recipes such as,  sugar cookies, banana bread and blueberry muffin, to list just a few can be found here.

Look out for our future blogs on holiday cooking and baking, as well as making the low protein kitchen convenient, quick and tasty!

Happy Baking!

Tips for a Low Protein Friendly Halloween

Trick or Treat?

For children with an inborn error of  metabolism, Halloween celebrations can be tough since protein-containing candy and snacks tend to be the classic party staples. Additionally, these celebrations can be scary on parents as they want their children to fully enjoy in the festivities while maintaining their dietary restrictions.

Here are a few tips, resources, and recipes to help make Halloween fun while staying on a diet low in intact protein:

First:

  • Speak with teachers or other parents about what your child can and cannot have at Halloween parties or school

  • Also talk with your child about the importance of staying on diet and remind them to check with you to determine if a particular food or candy is

Now to the Fun Stuff:

  • Get creative with Halloween Have non-food treats to hand out at home or at school. Think dollar store toys, stickers, party favors, and coloring books.

  • Plan an alternative activity to trick-or-treating, such as Halloween slumber party, game night, craft party, or a scavenger

  • Supply low-protein treats for your child’s Halloween parties and festivities so he/she has something to enjoy and doesn’t feel left out – View Halloween Cupcake Recipe

  • Consider having a “swap-party” where your child can swap candies he/she cannot have for “allowed” This way everyone gets what they want!

  • Make your child’s metabolic formula festive! Serve it in a Halloween- themed cup, use fun straws, or add some orange food

Post Your Formula ‘Dressed-Up’ for Halloween and TAG Nutricia! 

#NutriciaMetabolicNutrition      

Halloween Low Protein Cupcakes

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Surprise a special someone or treat yourself to a Halloween cupcake. These cupcakes are made with Loprofin Baking Mix. They are easy to make and great for at home, work or parties.

 

Makes 10 cupcakes

 

Ingredients

  • 88 g (3/4 cup ) Loprofin Baking Mix
  • 1/4 cup white sugar
  • 1 teaspoon egg replacer
  • 1 teaspoon baking powder
  • 5 ounces of water
  • 1/4 cup margarine
  • 1/2 teaspoon vanilla extract
  • 4 drops orange food coloring
  • 1/2 cup white frosting
  • 20 candy corns

 

Method:

 

  1. Preheat oven to 350°F (180°C)
  2. Cream together margarine and sugar until light and fluffy
  3. Add Loprofin Baking Mix, egg replacer, and baking powder into the creamed mixture and mix well
  4. Add water, vanilla extract and orange food coloring gradually, mix until smooth
  5. Spoon batter into paper cups filling each cup about 2/3 full and bake for approximately 10-15 minutes
  6. Let cool on a baking rack
  7. Decorate with frosting and candy corn
Nutritional Information Per Cupcake
Calories 155
Protein 0.1 g
Phenylalanine 4 mg
Leucine 7 mg

 

Note:  Any additional frosting or decorations may add additional protein, phenylalanine, leucine or calories, be sure to read labels and account for any topping or decorations.

All Nutricia products shown are for the dietary management  of inborn errors of metabolism and must be used under  medical supervision. Please consult your metabolic healthcare professionals prior to making any changes to your diet.

PKU is Diet-for-Life

 

Now is a great time to re-commit to better PKU diet management. Nutricia has a team of professionals who can assist you, or your loved one, get back on-diet.

Our help includes personalized support ranging from finding the right PKU formula, to resetting your low protein kitchen, and more. Our Diet-For-Life Care Coordinator can also lend an extra helping hand.

In addition, Nutricia can review your insurance and answer any questions you may have about formula coverage. Schedule a one-on-one insurance review today. Coverage@Nutricia.com

You can do it. You are not alone!

You can do it – and Nutricia is here to help. 

Nutricia can:

• Help you learn about new PKU formula options
• Provide more information about PKU and returning to diet
• Connect you with a metabolic clinic or a return to diet specialist
• Review your insurance plan for PKU formula coverage
• Share recipes and low protein cooking tips

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Don’t Wait Any Longer!

DietforLife@Nutricia.com or call 800-605-0410

NOTE: All PKU formulas must be used under medical supervision. Always consult your metabolic healthcare professional prior to making any changes in your PKU diet plan.


Posted by: Sandy Simons, MA, RD, CHES
Sandy is a Registered Dietitian and Certified Health Education Specialist. She received her graduate training at Columbia University’s Teacher College in New York. She has been working on the industry side of metabolic nutrition for the past 14 years and is often seen at patient events around the country.

Make PKU Formula Part of Your Daily Routine

If you have Phenylketonuria (PKU), then you know….PKU formula is one of the most important parts of your diet.

Since PKU is generally managed with a diet low in whole protein, you need to get additional, PKU-appropriate protein from a different source.

PKU formula is your main source of protein and is essential for your health and well-being. Taking your full prescription of formula every day will provide your body with the protein it needs.

 

Here are some tips to help make PKU formula part of your daily routine
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Learn more about Why you need PKU Formula with these tips for Making PKU Formula Part of your Routine 

Download Now

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Making the Most of Your Meal

Satisfaction from food or a meal is something everyone wants. Although many foods may be restricted or limited on a low protein diet, you do not have to compromise taste. Selecting the  foods you eat involves a variety of factors. We choose foods based on taste and smell, in addition to texture, sight and culture.

To make the most of your meal, begin by identifying what you crave, like spicy, sweet, crunchy or salty. This will make your meal more satisfying.Here are some tips to help you make the most of your meal.

  • Spicy: Add seasonings that can add a kick. For example, add cracked pepper, crushed red pepper or hot sauce to steamed vegetables to give a familiar item a new twist.

  • Sweet & Tangy:  Satisfy your sweet and tangy craving with grilled pineapple topped with BBQ sauce on a low protein bun. You can also add mandarin oranges and Italian dressing to a garden salad for added flavor and tang.

  • Crunchy: With a little creativity you can add a snap to any dish. Make your own salad iStock_000015639017Mediumcroutons with low protein bread. Season them in a variety of ways by using garlic powder, cayenne pepper or Italian herbs depending on your personal desire for savory or spice. Another great way to add crunch is to include raw vegetables, like cucumbers or carrots slices to a salad or sandwich.

  • Salty: Salt is among the most popular taste craving. Although highly desired, salt is an ingredient to be used in moderation. A little bit goes a long way. To satisfy your craving for salt, try slicing fresh potatoes very thin and sprinkling with garlic and a touch of sea salt. Bake them until crisp for a satisfying addition to your meal or snack.  

  • Smooth and Creamy: Create your own creamy low protein dip with your favorite seasonings for a flavorful way to enjoy Low Protein Crackers or fresh cut vegetables. You can also include a sweet treat at the end of your meal to help satisfy your need for something smooth and creamy.

Low Protein Summer Salads

Beat the heat and satisfy your appetite with a cool summer salad!

summer-salads

Summer is the perfect time to enjoy fruits and vegetables at the peak of freshness.  A make-your- own salad station makes a great addition to any cookout or pool party. You can also spice up a green garden salad by bringing along your favorite toppings and low protein dressing.

Try these themed salads for a fresh take on the usual bed of greens:

Fajita Salad: Create a colorful nutrient-packed meal by topping your salad greens with sautéed red and green bell peppers, onions and zucchini.

Mushroom Salad: Portobello mushrooms sautéed in fresh garlic or grilled can turn an ordinary salad into a savory meal.

Fruit Salad: Add diced apple, dried cranberries, diced peaches and grapes over greens. Toss with a light vinaigrette dressing for a sweet and tangy summer treat.

Mexican Salad: Spice up your salad with finely diced black olives, onions, cucumbers and tomatoes. Add jalapeños and salsa for an extra kick.

Roasted Vegetable Stacker: Toss coarsely chopped zucchini, eggplant, red pepper and onion in garlic oil and roast until tender. Serve piled high over a bed of salad greens.

Ratatouille Salad: Stew diced eggplant, olives, zucchini, garlic and onion in a broth made of tomato puree mixed with water. Allow to cool. This tasty topping can be served over greens or chilled low protein pasta to create a unique summer salad.
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Turn your summer salad creation into PKU friendly protein source

Just mix 1 pouch (12.5g) of PhenylAde® GMP Mix-In (PKU formula) into 2 Tbsp of salad dressing for 10g of Protein Equivalents  

Note: Be sure to eat the entire serving.
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PhenylAde® GMP Mix-In contains Glycomarcopeptide (GMP), made from a whole protein source!

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