All posts by Nutricia Metabolics

College & PKU: Getting Ready for the Next Chapter

PKU-Teen College Image
The completion of high school and the transition into the next chapter of education is a very exciting time. Applying to colleges, receiving the ‘fat envelope’, choosing classes, moving away from home, and living with a roommate for the first time, are all new and exciting experiences.

Arriving on campus and the first few weeks on campus will be exciting and full of change.  You will meet a variety of new people and have many new experiences.  The one thing that remains constant is adhering to your low protein diet and drinking your PKU formula daily.  Keeping your PHE levels in control when you don’t have your family watching over you may be more difficult than anticipated, but at the same time, more important than ever.

The key is to FOCUS and make a PLAN!  Commit yourself to your PKU diet.  Long lectures, late nights studying and preparing for exams will require you to be at your best and drinking your PKU formula daily, spread throughout the day will be one of your tickets to success.  As you know, elevated blood PHE levels are linked to reduced executive function skills such as memory, recall and concentration.

Write out your daily schedule and include dedicated time to mix and drink your PKU formula.  This will help make formula part of your day and reduce accidental skips.

Tips for Drinking PKU Formula on Campus

  • Add formula powder to an empty water bottle (or other reusable container) that you can fill with water later for formula anywhere, anytime.
  • Is your dorm far from campus? Rent a locker at the school gym or student union to keep your formula so you can refuel in between classes and don’t have to go all the way back to your room.
  • Choose a formula that is sold in single-serving, travel  friendly packaging.  Powders in little pouches can easily be added to store-bought beverages while on campus or out with friends.

Examples include:

Periflex® LQ  is a ready-to-drink formula that provides 15g PE in a highly portable and easy-to-drink container for long days on campus.Back-to-School with Periflex LQ - TEENS

PKU Lophlex® LQ is a ready-to-drink formula that provides 20g PE in only 4.2 fl oz.  Quick and easy to drink down and get back to the book.

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PhenylAde 60®  is a low volume formula that mixes with only 3 fl oz of water for 10g of PE or any protein-free beverage you enjoy.

Great for Adults & Teens. Try it Today!

Check out these simple on campus mixing ideas:

 

REQUEST A FREE SAMPLE of a Campus Friendly PKU Formula today!

 

Talk with your metabolic dietitian or clinic to find out which PKU formula from Nutricia may be right for you.  Always consult a healthcare professional prior to making any changes in your PKU diet plan.

Get Creative with PhenylAde GMP for PKU

View Product Details

View Product Details

PhenylAde GMP Drink Mix is available in a great tasting neutral flavor (Original) or a mild vanilla flavor (Vanilla), but for people who like to get creative this formula can be turned into additional flavors.

Try one - Try them all!

Try one – Try them all!

Simply mix serving (33.3 g) with 5 – 6 fl oz (150 mL – 180 mL) and then customize to your favorite flavor.

Here are some additional great tasting recipes featuring PhenylAde GMP Drink Mix.

GMP recipes

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Some people may use this product as their main PKU formula or just as part of their PKU diet plan.

Talk to your metabolic healthcare professional to see if PhenylAde GMP Drink Mix is right for you or your child.

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 View other great product for the dietary management of Phenylketonuria (PKU) at www.medicalfood.com

 

NOTE:   *Always consult your metabolic dietitian or physcian prior to making any changes to your PKU diet plan and to see if PhenylAde GMP is right for you.

 

Low Protein Summer Salads

Beat the heat and satisfy your appetite with a cool summer salad!

summer-salads

Summer is the perfect time to enjoy fruits and vegetables at the peak of freshness.  A make-your- own salad station makes a great addition to any cookout or pool party. You can also spice up a green garden salad by bringing along your favorite toppings and low protein dressing.

Try these themed salads for a fresh take on the usual bed of greens:

Fajita Salad: Create a colorful nutrient-packed meal by topping your salad greens with sautéed red and green bell peppers, onions and zucchini.

Mushroom Salad: Portobello mushrooms sautéed in fresh garlic or grilled can turn an ordinary salad into a savory meal.

Fruit Salad: Add diced apple, dried cranberries, diced peaches and grapes over greens. Toss with a light vinaigrette dressing for a sweet and tangy summer treat.

Mexican Salad: Spice up your salad with finely diced black olives, onions, cucumbers and tomatoes. Add jalapeños and salsa for an extra kick.

Roasted Vegetable Stacker: Toss coarsely chopped zucchini, eggplant, red pepper and onion in garlic oil and roast until tender. Serve piled high over a bed of salad greens.

Ratatouille Salad: Stew diced eggplant, olives, zucchini, garlic and onion in a broth made of tomato puree mixed with water. Allow to cool. This tasty topping can be served over greens or chilled low protein pasta to create a unique summer salad.
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Turn your summer salad creation into PKU friendly protein source

Just mix 1 pouch (12.5g) of PhenylAde® GMP Mix-In (PKU formula) into 2 Tbsp of salad dressing for 10g of Protein Equivalents  

Note: Be sure to eat the entire serving.
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PhenylAde® GMP Mix-In contains Glycomarcopeptide (GMP), made from a whole protein source!

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Are you using a Maxamaid or Milupa formula?

You may have heard the news, and if not, we are glad you stopped by.

The past couple of years have been exciting as we have enhanced our products to be in line with the latest nutritional guidelines and grow with patients from infancy to adulthood.

We proudly introduced our Anamix® Early Years line for infants with the added benefits of DHA & ARA and prebiotic fiber to be closer to breast milk than ever before*! In addition, we launched the Anamix® Next line of products, which contain added DHA & a multi-fiber blend.

Having improved our Metabolic formulas we are no longer suppling Maxamaid** and Milupa formulas after June 2017 or until supplies last. Please see attachments for specific products and alternative options to transition to.

We are confident that these changes are in the best interest of metabolic patients; however, we certainly understand the challenges that may come with transitioning to new formula. If you are currently using a Maxamaid or Milupa formula please follow the steps below to start your transition:

  1. Contact your clinic/healthcare professional to find other products within our portfolio and start the transition process. You can view our formulas by disorder below but please do not initiate a transition on your own.

  2. If you have questions regarding insurance reimbursement, contact our Reimbursement Care team Monday – Friday 8:30am – 5:00pm EST at 1-800-605-0410.

  3. If you have product related questions or need help finding a supplier for your new formula, contact our Customer Service team Monday – Friday 8:30am – 5:00pm EST at 1-800-605-0410

Please know our goal is to provide the best nutrition possible, and we are committed to bringing the best metabolic products to you and your family.

Sincerely,

The Nutricia Metabolic Team

*Compared to Nutricia’s Periflex Infant and Analog formulas

** With the exception of XMet, XCys Maxamaid

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PKU is Diet-for-Life.  It’s Never Too Late.

Celebrate PKU Awareness Month by Returning to the PKU Diet!

 

D4L

 It’s Never Too Late. You can do it.  You are not alone!

Meet David.  An Adult who returned to the PKU diet.

“My name is David Harris. I am 40 years old and I have classical
PKU. I am a first generation PKU’er which means I was born
before PKU was known to be Diet-for-Life. I was taken off-diet
at the age of 6. I struggled through school and always wondered
why things were so difficult for me.”

“Then it happened. I saw a TV show that said PKU was diet-for-
life and what happens to your body when you are not on
diet. That day I knew I had to get myself back on a low protein
diet and drink a PKU formula. It took time to re-learn the diet
and adjust my eating habits, but when I went back on diet my
life improved and now feel a lot better.”

You can do it – and Nutricia Metabolics is here to help.

  • We can help you learn about new PKU formula options

  • Connect you with a metabolic clinic

  • Provide PKU formula samples to help you find one you will enjoy drinking

  • Explore your insurance plan for PKU formula coverage

  • Share recipes and low protein cooking tips

Get Back to Diet Now!   Don’t Delay!

Contact Nutricia:  800-605-0410   

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Share Your Story!    Tell Nutricia more about you and help inspire others to return to the PKU diet!

Email Us: DietforLife@Nutricia.com  

Celebrate PKU Awareness Month with a Toast to PK-YOU!

Raise a glass to PKU to help raise awareness in the month of May!

POST & TAG your photo on Facebook or Instagram raising a glass to be entered to WIN A FREE low protein food gift box from NUTRICIA!  

There will be 5 lucky winners!  

See contest rules below.

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To show support for PKU and be entered to win POSTand TAG your photo with:

 #Toast2PKU and #NutriciaMetabolics

 

Contest Rules: No purchase necessary to enter. Entrants must be 18 years or older and reside in the United States and must not have received any other free products or items from Nutricia North America (“Nutricia”) in the preceding year. Limit 1 entry per person. A total of five low protein gift boxes (valued at approximately $50) will be awarded to five randomly chosen “Support PKU Awareness Month with a Toast 2 PK-You” participants (limit one gift box per participant). No one from Nutricia or anyone related to a Nutricia employee is eligible for participation in this sweepstakes. All entries become the property of Nutricia to be used at their sole discretion. All entries must be posted on Facebook or Instagram with the hashtag “Toast2PKU” and “NutriciaMetabolics” between 5/1/17 and 5/31/17 to be entered into the gift box drawing. The five winners will be selected by Nutricia by 6/1/2017 and will be notified by Nutricia on or before 6/12/2017. The five winners will not be allowed to participate in any other Nutricia contests for a period of one year.  Facebook and Instagram are in no way affiliated with Nutricia and have not endorsed this contest or Nutricia products.

Join Nutricia for a Walk Around the World

walk-around-the-world-logoThere are thousands of children in the United States with medical conditions which require restrictive, medically-supervised diets. To live and thrive, many children are dependent on specialized medical foods and formulas. However, often times the important products that families need are not entirely covered by insurances. The families of these children face many worries and an enormous financial burden trying to ensure their children receive proper nutrition.

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This is where Children’s Medical Nutrition Alliance (CMNuA) comes in. CMNuA is a 501(c) 3 non-profit organization that supports families in covering a major portion of their medical nutrition expenses in cases where the child’s insurance is unable to help. The money they use to help these families comes from financial donations and fundraising events.

CMNuA empowers, educates, assists, advocates for and supports ALL patients who require medical nutrition. In doing so, CMNuA has created the first-ever national coalition dedicated to enhancing the lives of all patients in need of medical nutrition regardless of their underlying condition.

Around The World in 60 Days Challenge (#ATW60D)

At Nutricia, the makers of Periflex®, Anamix®, PhenylAde®, Complex, GlutarAde™ and Lophlex® brand medical food formula, we understand the struggles these families go through and how necessary CMNuA is for them. That is why this year we have challenged ourselves to virtually Walk Around the World in 60 days in support of CMNuA. The challenge will require our team to collectively walk 25,000 miles in 60 days.

Nutricia North America will donate $10,000 to CMNuA if the goal is met! Our challenge started on March 15th and will continue until May 10, 2017.

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The virtual walk will be divided into 4 phases. We will track our progress via fitness trackers and will report on them over the coming weeks.

Will You Join Us?

Help us to help CMNuA by sponsoring the challenge! Join us in supporting these families with a gift to CMNuA and have your donation doubled by Nutricia. Every dollar counts for this incredible non-profit organization. Nutricia North America pledges to match external donations up to $3,000.

Donate Today!

Thank you for your consideration and for helping the children supported by CMNuA. Stay tuned as we will be updating our progress on #ATW60D over the next 60 days!

Create a Custom GMP-based PKU formula!

Have you wish you could turn your favorite drink to a great tasting PKU formula?

NOW YOU CAN!

mix-in-new

Introducing…PhenylAde® GMP Mix-In 

 

  • An easy way to add Glycomacropeptide (GMP), made from a whole protein source, to your PKU diet

  • Simply mix with just 6 fl oz of water or any flavored drink for added variety

  • Great as a once daily or as your main PKU formula*

    GMP_SAMPLE_button

So many choices, how will you mix it in?

mix-in-nutrition

*Must be combined with an appropriate vitamin and mineral supplement when taken as the sole source of PKU medical food.   Be sure to consult your metabolic healthcare professional prior to making any changes to your PKU diet plan.

Available is US only.

Request A Sample

February 28th is Rare Disease Day!

As manRare Disease Dayy of you know, today (February 28th) is Rare Disease Day.  A special day dedicated to raise awareness about rare diseases and their impact on patients’ lives.

This day is special for Nutricia Metabolics because so many of the families we serve are touched by rare disease.

Many of the medical foods that we make are used by individuals with a rare disease. Our goal is simply to improve lives through medical nutrition.

This year Nutricia is supporting the Global Genwear-you-care-with-datees in their “Wear That You Care” campaign where participants wear their favorite pair of jeans to promote awareness.

We asked Nutricia and Danone (our parent company) employees to show us their jeans to raise awareness and show support!

Here are a few of our employees showing their support.team-jeansimg_0601

We hope Rare Disease Day 2017 helps raise awareness for rare diseases. Individually, each disorder is small but together, those affected by rare disease form a strong, united group that we are proud to be a part of.

-Your Friends at Nutricia North America

GET INVOLVED!  

POST YOUR PHOTO TODAY!  with tags

#WearThatYouCare, #RareDiseaseDay, #NutriciaforRare

For more information on how to get involved, resources, and a listing of events, visit https://globalgenes.org/.

Rare Disease Day is Coming Soon!

February 28th is Rare Disease Day!Rare Disease Day

Rare Disease Day is the last day of February each year.  Sometimes this falls on a Leap year. Just as Feb 29th is a rare day that happens only once every 4 years,  many people live with a rare disease EVERY DAY of the year.

Learn more about Rare Disease Day and how to get involved at http://www.rarediseaseday.org/

Nutricia Metabolics is proud to help support those living with a rare metabolic condition.  Learn more about these RARE Metabolic conditions and help raise awareness today and everyday!

Rare Metabolic Disorder List

To learn more about each of these Rare Metabolic Conditions – CLICK on the letters:

HCU

Homocystinuria is an inherited, genetic disorder. “Classic” homocystinuria occurs because of a deficiency of the enzyme cystathionine betasynthase (CBS).  A deficiency in CBS interferes with the body’s ability to fully process an essential amino acid called methionine. If left untreated, this can cause serious health problems.

IVA

Isovaleric acidemia (IVA) is an inherited, genetic disorder. IVA occurs when there is a defect in an enzyme that helps break down protein from food. The name of the enzyme is isovaleryl-CoA dehydrogenase (IVD).

GA-1

Glutaric Aciduria Type 1 (GA-1) is an inherited, genetic disorder.  GA-1 occurs when there is a defect in an enzyme that helps break down protein from food. The name of the enzyme is glutaryl-CoA dehydrogenase (GCDH).

MMAPPA

Propionic acidemia (PA) and methylmalonic acidemia (MMA) are inherited, genetic disorders. Both are caused by defects in enzymes that are needed to break down protein.  In PA and MMA, four of the amino acids cannot be broken down but instead produce toxic acids in the body. These amino acids are methionine, isoleucine, threonine and valine, which are called “propiogenic amino acids.”

MSUD

Maple Syrup Urine Disease, or MSUD, is an inherited, genetic disorder caused by a defect in three enzymes that help break down protein from food. The official name for MSUD is Branched- Chain Alpha-Ketoacid Dehydrogenase Deficiency, but it is called MSUD because the urine from untreated infants with this disorder can smell sweet like maple syrup.

UCD

Urea cycle disorders (UCDs) are a group of inherited, genetic disorders. The urea cycle is a chain of reactions using a group of enzymes in the liver. These enzymes are important in removing unneeded protein byproducts (nitrogen) from the blood.

FAOD

Long-chain fatty acid oxidation disorders (LC-FAODs) are a group of inherited, genetic disorders. LC-FAODS occur when there is a defect in one or more enzymes that help break down fat from food for energy. LC-FAODs prevent the body from using fats normally.

LEARN MORE ABOUT OUR FULL LINE OF METABOLIC FORMULAS FOR THE DIETARY MANANGEMENT OF THESE RARE DISORDERS