All posts by Nutricia Metabolics

Drink It How You Like It

Turn What You Like Into PKU Formula with PhenylAde® GMP Mix-In

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#DrinkItHowYouLikeIt


NOTE:  PhenylAde GMP Mix-In is a medical food for the dietary management of proven Phenylketonuria (PKU).  Must be used under medical supervision. Always consult your metabolic healthcare professional prior to making any changes in your PKU diet plan.

Nutricia Connect can help with finding formula coverage

businesswoman at home doing paperwork

Working to get insurance coverage for medical formula can be a long and frustrating process. You many  not always know the right questions to ask, the process for coverage may change along with legislation for coverage of medical formula and you may not know of all the outlets for coverage available to your family.

The good news is that you don’t have to face these coverage challenges alone.

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Through our Nutricia Connect program our team of Coverage Specialists are available to help you seek coverage and answer questions throughout the process. You might be wondering:

  • Do I have to pay for out-of-pocket costs?

  • My insurance denied formula coverage, now what?

  • I am on WIC, is Nutricia formula covered?

Our coverage team works with different insurance plans, your dietitian, and if necessary your employer to find formula coverage. Here is one family’s story.

Here is one family’s story.

 

Contact our team if you have questions on formula coverage.  Learn more at www.medicalfood.com or email us at Coverage@MedicalFood.com

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

New Education Tools!

Families like yours told us they wanted more educational tools to help better understand and teach others about their child’s metabolic disorder.

We heard you!

Nutrica is proud to share new, easy to understand, educational books and videos help breakdown complex disorders so you can use them to educate others in your community. You may also find them helpful in teaching your child about his/her disorder.

For now, these books and videos are available for PKU, MSUD and GA-1. Our team is working hard to create more for other rare disorders and make them available in Spanish and French.

PKU

Want a printed copy of the Temple Books?

Click HERE for a PDF copy of the Temple Books you can download and print at home.

 

What do you think about the books and videos? 

We would love to know!   Connect with us on Facebook.   Facebook/NutriciaMetabolicNutrition

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

Find a PKU Formula that Works for You

Whether you have been drinking the same formula for years or if you are reading this in an effort to return to the PKU diet, understanding the ‘types’ of PKU formula available to you is important. 

World-wide there are over 60 different PKU formulas! Knowing you have options to get back-on-track or make a change in the future will help you reach and maintain your PKU diet management goals.

Types of PKU Formula

SHAKES – Many formula options are in powdered form and get mixed with water to make a shake-like drink. Shake-like formulas typically provide a balance of fat, carbohydrate, phenylalanine-free* protein, vitamins and minerals. Shake-like formulas often contain a good number of calories, which may benefit active children and adults with higher caloric needs.

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*Formulas which contain an ingredient called glycomacropeptide (GMP) contain some phenylalanine. See below for more about GMP-based formula options for PKU.

LESS-TO-DRINKPKU is Diet-for-Life. As you grow and get older you will need more protein from formula. However, you may not need as many calories from formula since you will also consume more foods low in protein. Lower volume formulas typically have less calories and mix with only 3-5 fl oz of water, so you can drink less formula to meet your daily phenylalanine-free* protein needs. This may also be helpful to those unable to finish their shake-like formula due to being overfull.

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READY-TO-DRINK – Life is busy and staying on diet is of utmost importance, which has made these pre-mixed, ready-to-drink formulas a very popular choice. These formulas come in both the shake-like (Periflex® LQ) and less-to-drink (Lophlex® LQ) options so everyone can find something to meet their needs. Just simply shake, open, drink and go.

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FLEXIBILITY – Everyone is different and sometimes you need a formula option as unique as you. There are multiple ‘flexible’ options for PKU formula; such as tablets and mix-in powdered formulas. Tablets are an option for people who are unable to drink PKU formula or just want to drink less, but meet their full daily protein recommendation.

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Mix-In formula powders are another flexible option that allows you to create your own PKU formula. You can add these powders to sports drinks, foods low in protein, or your current PKU formula to increase PHE-free protein content of your favorite shake-like formula.

GMP-BASED PKU FORMULA–Glycomacropeptide, or GMP for short, is a whey protein concentrate derived from milk during the cheese making process. It is naturally low in phenylalanine, and with the addition of certain amino acids, it makes a suitable source of protein for those with PKU. Your dietitian will help determine how to count for the PHE in these products. GMP-based PKU formulas are available in many forms.

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Nutricia has a great tasting shake-like GMP-based PKU formula (PhenylAde® GMP Drink Mix) and a create-your-own option (PhenylAde® GMP Mix-In) that does not significantly change the taste, even then mixed with  water!mix-in

As you can see, there are no shortages of PKU formula options. If you happen to be thinking about changing formulas or returning to diet let Nutricia help you find a PKU formula you will enjoy drinking.

Contact Nutricia Today DietforLife@Nutricia.com

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NOTE: All PKU formulas must be used under medical supervision. Always consult your metabolic healthcare professional prior to making any changes in your PKU diet plan.


Posted by: Sandy Simons, MA, RD, CHES
Sandy is a Registered Dietitian and Certified Health Education Specialist. She received her graduate training at Columbia University’s Teacher College in New York. She has been working on the industry side of metabolic nutrition for the past 14 years and is often seen at patient events around the country.

PKU is Diet-for-Life

Start 2018 by improving your PKU diet or returning to the PKU diet. 

 

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Now is a great time to re-commit to better PKU diet management. Nutricia has a team of professionals who can assist you, or your loved one, get back on-diet.

Our help includes personalized support ranging from finding the right PKU formula, to resetting your low protein kitchen, and more. Our Diet-For-Life Care Coordinator can also lend an extra helping hand.

In addition, Nutricia can review your insurance and answer any questions you may have about formula coverage. Schedule a one-on-one insurance review today. Coverage@Nutricia.com

You can do it. You are not alone!

You can do it – and Nutricia is here to help. 

Nutricia can:

• Help you learn about new PKU formula options
• Provide more information about PKU and returning to diet
• Connect you with a metabolic clinic or a return to diet specialist
• Review your insurance plan for PKU formula coverage
• Share recipes and low protein cooking tips

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Don’t Wait Any Longer!

DietforLife@Nutricia.com or call 800-605-0410

NOTE: All PKU formulas must be used under medical supervision. Always consult your metabolic healthcare professional prior to making any changes in your PKU diet plan.


Posted by: Sandy Simons, MA, RD, CHES
Sandy is a Registered Dietitian and Certified Health Education Specialist. She received her graduate training at Columbia University’s Teacher College in New York. She has been working on the industry side of metabolic nutrition for the past 14 years and is often seen at patient events around the country.

Celebrate PKU Awareness Day with a Toast to PK-YOU!

December 3rd is PKU Awareness Day!

Raise a Glass to Show Your Support for PKU Awareness

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For each unique post of someone raising a glass in support of PKU, Nutricia will donate $5.00* to the National PKU Alliance Maternal PKU Mentor Program.

Take Action and Show Your Support

Tag your image on Facebook or Instagram with the following hashtags between December 1 and December 8, 2017 to be counted.

Be sure to use both:

#Toast2PKU   &   #NutriciaMetabolics

 You can also donate directly to the National PKU Awareness. 

Click icon NPKUA LOGO

Note: Facebook and Instagram are in no way affiliated with Nutricia and have not endorsed this contest or Nutricia products. Only tagged posts made between December 1, 2017 and December 8, 2017 will be counted toward the donation to the National PKU Alliance Maternal Mentor Program.

*Nutricia will cap the donation to a maximum of 600 posts during this time period or up to $3000.

 

 

Tips for a Low Pro Friendly Thanksgiving

fb-thanksgivingThe holidays can be a tough time for many people, especially those on a restricted diet. The most important thing about managing a restricted diet during any holiday season is to plan ahead. The more you know in advance, the better you can plan.

These are some questions to ask:

  • Where will I be spending the holidays and how long will the trip be?

  • Do I have enough formula so I do not run out over the weekend

  • Am I dining at home or at someone else’s home?

  • Will I be preparing the food or will someone else?

Once you know more about what your day/weekend will consist of, you can make a plan.

One key thing to plan in advance is the menu. If you are not dining at home, but at a friend’s or relative’s home, it will be important to ask what is being served, then…

 

  • Ask if you can bring a side dish (one that is suitable for you, but enough for everyone to share).

  • Let them know about your dietary needs so they can omit or serve items on the side that are not low protein friendly, like cheese or bread crumbs.

  • See if you can access the kitchen to re-heat or make additional items for the holiday meal.

    Get Creative!
    Many traditional holiday favorites can be modified to reduce the protein, while still keeping the taste and texture you and others love. Here are some recipes with small changes to lower the protein content — they are sure to become family staples at your holiday meals:

Reduced Protein Mashed Potatoes

2 cups (248 g), Cauliflower, florets
2 cups (312 g), White potato, peeled and cut into pieces
1 cup (156 g), Parsnips, peeled and cut into pieces
¼ cup (56 g),Non-dairy creamer, liquid
2 tablespoons (28 g),Margarine, dairy-free
To taste (2-3 g), Salt and pepper

Directions

  1. Boil potato and parsnip in a large pot until they begin to soften.
  2. Add cauliflower and continue to cook until soft and tender.
  3. Drain water.
  4. Place all ingredients in a food processor and blend until smooth.
  5. Salt and pepper to taste.

Makes 7 servings  (115 g per serving)

Protein 2 g     P HE 67 mg        Calories 105

End your holiday meal on a sweet note with this  low protein apple cobbler for dessert. This is a dish everyone at your holiday gathering is sure to enjoy!

 

Low Protein Apple Cobbler

8 cups (880 g), Apples, peeled, cored, sliced
½ cup (110 g), Brown sugar, packed
1/3 cup (67 g), Sugar, granulated
¼ cup (28 g), Corn starch
2 tablespoons (31 g), Lemon juice
½ teaspoon (1.3 g), Cinnamon
½ teaspoon (1 g), Nutmeg
1 can (400 g), Maddy’s®  Homestyle Sugar Cookie Mix
8 tablespoons (1 stick), Margarine, dairy-free

DIRECTIONS

  1. In a large bowl, combine Maddy’s® Homestyle Sugar Cookie Mix and margarine .
  2. Blend until mixture is fully combined (resembles coarse crumbles)
  3. Set aside
  4. In a second large bowl, combine all other ingredients.Stir.
  5. Place apple mixture into a greased 9 x 12 inch pan.
  6. Spoon cookie mixture over top of apples, evenly.
  7. Bake at 375° F for 35-45 minutes (until apples are tender and topping is lightly browned.)

Makes 12 servings  (124 g per serving)

Protein 0 g        PHE 8 mg         Calories 215

And most of all…

Holidays do not have to be all about food. Make your holidays memorable with family traditions, such as a family football game or checkers tournament.

Happy Thanksgiving from

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Nutricia Connect – Supporting you to live life to the fullest!


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We understand it can be an overwhelming time when your child is diagnosed with a metabolic condition and you will have a lot of questions. Many of your initial questions are best answered by members of your healthcare team – they are the medical experts! In addition, we are here for you through our Nutricia Connect program.

After speaking to parents and individuals with a metabolic condition, we created Nutricia Connect – a comprehensive program that supports families like yours. Here are a few of the support tools available through Nutricia Connect.

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Let us know in the comment section which of the resources you would find helpful.

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

Tips for a Low Protein Friendly Halloween

Trick or Treat? When your child is on a low protein diet for an inborn error of metabolism, such as PKU, MSUD, TYR or HCU, sometimes the tricks feel safer than the treats.

Halloween celebrations that center on candy, food and snacks can be tough for kids on restricted diets –and tough for parents who want their children to fully enjoy the festivities.

But it is possible to have fun AND stay on a low protein diet this Halloween?

Here are a few tips, resources, and recipes to help you make it a healthy and happy Halloween.

    Safety First:

  • Be sure to talk with teachers and other parents about what your child can and cannot have at Halloween parties or school activities.

  • Talk with your child about the importance of staying on diet and remind them to check with you to determine if a particular food or candy is safe.

Now to the Fun Stuff:

▪ Get creative with Halloween giveaways. Have non-food treats to hand out at home or at school. Think dollar store toys, stickers, party favors, and coloring books.

▪ Plan an alternative activity to trick-or-treating, such as Halloween slumber party, game night, craft party, or a scavenger hunt.

▪ If there will be cakes or cookies at the party, take low-protein treats for your child to enjoy so that she doesn’t feel left out – Check out Maddy’s Low Protein Sugar Cookie Mix

▪ Consider having a “swap-party” where your child can swap candies she cannot have for “allowed” candies. This way everyone gets what they want!

▪ Make your child’s PKU formula festive! Serve it in a Halloween-themed cup, use fun straws, or add some orange food coloring.

Post Your Formula ‘Dressed-Up’ for Halloween and TAG Nutricia! 

#NutriciaMetabolicNutrition      

More Resources:

Our friends at HowMuchPHE.org have put together a great source to view the Protein and PHE content for common Halloween treats.*

View the Halloween Candy Guide from How Much PHE

Jack O’Lantern Cupcakes

jack-o-lantern-228Surprise that special someone or treat yourself to a Halloween cupcake. These cupcakes are made with Maddy’s Homestyle Yellow Cake Mix.  They are easy to make and great for home, work or parties.

cakePrep time: 5 minutes

Bake time: 30-35 minutes

Makes: 12 cupcakes

Serving Size: 1 cupcake ( 34 g of mix) You will need:

  •  1 can Maddy’s Yellow Cake Mix

  • 1 cup water

  •  1/3 cup vegetable oil

  1. Preheat oven to 350 F.  Grease bottom of cupcake tin.
  2. Stir cake mix, water and oil in a large bowl.
  3. Pour into 12 cupcake servings
  4. Bake for 30-35 minutes or until toothpick inserted in center comes out clean.
  5. Cool 10 minutes before removing from pan.
  6. Cool completely before frosting into your spooky treat.

Precautions
Must be used under strict medical supervision. Not intended as the sole source of nutrition. Not suitable for wheat-free diets.

Makes 12 Cupcakes

Nutrition Per serving
Calories 180
Protein 0.2 g
Phenylalanine 4 mg
Leucine 6 mg

Note:  Any additional frosting or decorations may add additional Protein or PHE, be sure to read labels and account for any topping or decorations.  Nutrition listed is for cake only.

*Nutricia North America is not affiliated with HowMuchPHE.org and has not independently verified the information on HowMuchPHE.org.

Top 10 Reasons to Add Phlexy-10 Tablets to your PKU diet plan

Tired of always  DRINKING your PKU formula?  Did you know that there are other options?

Nutricia offers, Phlexy-10 Tablets, a convenient way to take your PKU medical food:

12 Tablets = 10 g Protein Equivalents

 

Phlexy-10 Tablets

*Speak to your dietitian to see if Phlexy-10 Tablets are right for you.

Here are our Top 10 reasons to use Phlexy-10 Tablets.   Which one is your top reason?

10. You can take tablets at night instead of skipping that last serving of formula

9. Easy to take at school or before sports practice / other after school activities

8. Tablets won’t cause your locker or work area to smell like formula

7. Lightweight source of PHE-Free protein when hiking or camping

6. A simple way to stay on diet when you just don’t want to drink PKU formula

5. Prevents having to explain about your “special drink” when with other people

4. Tablets can add flexibility to a busy day

3. Easy to pack or carry when away from home for long periods of time

2. No messy liquid spills in your bag or purse

1. A quick and easy source of PHE-Free protein you can take ANYWHERE!

 

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Don’t Skip Your Last Serving of PKU Formula!

Talk to your Metabolic Dietitian Today!

 

* For the dietary management of proven Phenylketonuria (PKU).  Use under medical supervision. You must consult a metabolic healthcare professional prior to making changes to your PKU diet plan.