The holidays can be a tough time for many people, especially those on a restricted diet. The most important thing about managing a restricted diet during any holiday season is to plan ahead. The more you know in advance, the better you can plan.
These are some questions to ask:
Where will I be spending the holidays and how long will the trip be?
Do I have enough formula so I do not run out over the weekend
Am I dining at home or at someone else’s home?
Will I be preparing the food or will someone else?
Once you know more about what your day/weekend will consist of, you can make a plan.
One key thing to plan in advance is the menu. If you are not dining at home, but at a friend’s or relative’s home, it will be important to ask what is being served, then…
Ask if you can bring a side dish (one that is suitable for you, but enough for everyone to share).
Let them know about your dietary needs so they can omit or serve items on the side that are not low protein friendly, like cheese or bread crumbs.
See if you can access the kitchen to re-heat or make additional items for the holiday meal.
Many traditional holiday favorites can be modified to reduce the protein, while still keeping the taste and texture you and others love. Here are some recipes with small changes to lower the protein content — they are sure to become family staples at your holiday meals:
Reduced Protein Mashed Potatoes
2 cups (248 g), Cauliflower, florets 2 cups (312 g), White potato, peeled and cut into pieces 1 cup (156 g), Parsnips, peeled and cut into pieces ¼ cup (56 g),Non-dairy creamer, liquid 2 tablespoons (28 g),Margarine, dairy-free To taste (2-3 g), Salt and pepper
Boil potato and parsnip in a large pot until they begin to soften.
Add cauliflower and continue to cook until soft and tender.
Place all ingredients in a food processor and blend until smooth.
Salt and pepper to taste.
Makes 7 servings (115 g per serving)
Protein 2 g P HE 67 mg Calories 105
End your holiday meal on a sweet note with this low protein apple cobbler for dessert. This is a dish everyone at your holiday gathering is sure to enjoy!
Low Protein Apple Cobbler
8 cups (880 g), Apples, peeled, cored, sliced ½ cup (110 g), Brown sugar, packed 1/3 cup (67 g), Sugar, granulated ¼ cup (28 g), Corn starch 2 tablespoons (31 g), Lemon juice ½ teaspoon (1.3 g), Cinnamon ½ teaspoon (1 g), Nutmeg 1 can (400 g), Maddy’s® Homestyle Sugar Cookie Mix 8 tablespoons (1 stick), Margarine, dairy-free
In a large bowl, combine Maddy’s® Homestyle Sugar Cookie Mix and margarine .
Blend until mixture is fully combined (resembles coarse crumbles)
In a second large bowl, combine all other ingredients.Stir.
Place apple mixture into a greased 9 x 12 inch pan.
Spoon cookie mixture over top of apples, evenly.
Bake at 375° F for 35-45 minutes (until apples are tender and topping is lightly browned.)
Makes 12 servings (124 g per serving)
Protein 0 g PHE 8 mg Calories 215
And most of all…
Holidays do not have to be all about food. Make your holidays memorable with family traditions, such as a family football game or checkers tournament.
We understand it can be an overwhelming time when your child is diagnosed with a metabolic condition and you will have a lot of questions. Many of your initial questions are best answered by members of your healthcare team – they are the medical experts! In addition, we are here for you through our Nutricia Connect program.
After speaking to parents and individuals with a metabolic condition, we created Nutricia Connect – a comprehensive program that supports families like yours. Here are a few of the support tools available through Nutricia Connect.
Let us know in the comment section which of the resources you would find helpful.
Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.
The return to school is an exciting time of year. But for a parent of a child with a metabolic disorder, such as Phenylketonuria (PKU), there are also certain concerns and stresses that comes with the start of school.
Each year you may be faced with educating a new teacher or school nurse about PKU.
What is PKU?
How it is Treated?
What that means to the teacher…
Nutricia Metabolics is proud to share an educational handout to help you inform your child’s new teacher and/or school nurse about PKU.
It includes information about What PKU is, What happens, How it is treated with additional classroom tips for the teacher.
by – Katie Maquire, Adult with PKU – guest blogger
I don’t know about you, but it was pretty stressful for my parents sending me off to school in September knowing that I would be making many food choices on my own without them present.
ALL children should learn to make healthy food choices. Children with PKU are no different. Learning to eat low protein and healthy can begin at a young age when you are grocery shopping or prepping food together in the kitchen.
PKU Friendly Lunch Tips for Back-to-School:
Pack lunch in fun, colorful containers in all different sizes.
Use an insulated lunch tote with ice packs to keep food and formula cool.
Make lunch colorful with a small amount of different veggies, such as baby carrots, cherry tomatoes, cucumbers, yellow peppers, etc.
Prepare, weigh and measure food ahead of time to speed up mornings.
Involve your child in shopping, prepping and weighing their own lunch.
The completion of high school and the transition into the next chapter of education is a very exciting time. Applying to colleges, receiving the ‘fat envelope’, choosing classes, moving away from home, and living with a roommate for the first time, are all new and exciting experiences.
Arriving on campus and the first few weeks on campus will be exciting and full of change. You will meet a variety of new people and have many new experiences. The one thing that remains constant is adhering to your low protein diet and drinking your PKU formula daily. Keeping your PHE levels in control when you don’t have your family watching over you may be more difficult than anticipated, but at the same time, more important than ever.
The key is to FOCUS and make a PLAN! Commit yourself to your PKU diet. Long lectures, late nights studying and preparing for exams will require you to be at your best and drinking your PKU formula daily, spread throughout the day will be one of your tickets to success. As you know, elevated blood PHE levels are linked to reduced executive function skills such as memory, recall and concentration.
Write out your daily schedule and include dedicated time to mix and drink your PKU formula. This will help make formula part of your day and reduce accidental skips.
Tips for Drinking PKU Formula on Campus
Add formula powder to an empty water bottle (or other reusable container) that you can fill with water later for formula anywhere, anytime.
Is your dorm far from campus? Rent a locker at the school gym or student union to keep your formula so you can refuel in between classes and don’t have to go all the way back to your room.
Choose a formula that is sold in single-serving, travel friendly packaging. Powders in little pouches can easily be added to store-bought beverages while on campus or out with friends.
Periflex® LQ is a ready-to-drink formula that provides 15g PE in a highly portable and easy-to-drink container for long days on campus.
PKU Lophlex® LQis a ready-to-drink formula that provides 20g PE in only 4.2 fl oz. Quick and easy to drink down and get back to the book.
PhenylAde 60® is a low volume formula that mixes with only 3 fl oz of water for 10g of PE or any protein-free beverage you enjoy.
Talk with your metabolic dietitian or clinic to find out which PKU formula from Nutricia may be right for you. Always consult a healthcare professional prior to making any changes in your PKU diet plan.
PhenylAde GMP Drink Mix is available in a great tasting neutral flavor (Original) or a mild vanilla flavor (Vanilla), but for people who like to get creative this formula can be turned into additional flavors.
Try one – Try them all!
Simply mix serving (33.3 g) with 5 – 6 fl oz (150 mL – 180 mL) and then customize to your favorite flavor.
Here are some additional great tasting recipes featuring PhenylAde GMP Drink Mix.
Some people may use this product as their main PKU formula or just as part of their PKU diet plan.
Talk to your metabolic healthcare professional to see if PhenylAde GMP Drink Mix is right for you or your child.
View other great product for the dietary management of Phenylketonuria (PKU) at www.medicalfood.com
NOTE: *Always consult your metabolic dietitian or physcian prior to making any changes to your PKU diet plan and to see if PhenylAde GMP is right for you.
Satisfaction from food or a meal is something everyone wants. Although many foods may be restricted or limited on a low protein diet, you do not have to compromise taste. Selecting the foods you eat involves a variety of factors. We choose foods based on taste and smell, in addition to texture, sight and culture.
To make the most of your meal, begin by identifying what you crave, like spicy, sweet, crunchy or salty. This will make your meal more satisfying.Here are some tips to help you make the most of your meal.
Spicy:Add seasonings that can add a kick. For example, add cracked pepper, crushed red pepper or hot sauce to steamed vegetables to give a familiar item a new twist.
Sweet & Tangy:Satisfy your sweet and tangy craving with grilled pineapple topped with BBQ sauce on a low protein bun. You can also add mandarin oranges and Italian dressing to a garden salad for added flavor and tang.
Crunchy: With a little creativity you can add a snap to any dish. Make your own salad croutons with low protein bread. Season them in a variety of ways by using garlic powder, cayenne pepper or Italian herbs depending on your personal desire for savory or spice. Another great way to add crunch is to include raw vegetables, like cucumbers or carrots slices to a salad or sandwich.
Salty: Salt is among the most popular taste craving. Although highly desired, salt is an ingredient to be used in moderation. A little bit goes a long way. To satisfy your craving for salt, try slicing fresh potatoes very thin and sprinkling with garlic and a touch of sea salt. Bake them until crisp for a satisfying addition to your meal or snack.
Smooth and Creamy:Create your own creamy low protein dip with your favorite seasonings for a flavorful way to enjoy Low Protein Crackersor fresh cut vegetables. You can also include a sweet treat at the end of your meal to help satisfy your need for something smooth and creamy.