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Tips for a Low Pro Thanksgiving

The holidays can be an exciting time of year. However, they can be a bit challenging for someone on a restricted diet as most festivities center around food. This blog focuses on tips for managing a restricted diet during the holiday season.

The most important thing to do is plan ahead.  The more you know in advance, the better you can plan.

Here are some questions to ask yourself:

  • Where will I be spending the holidays, and how long will the trip be?
  • Do I have enough formula so I do not run out while away over the weekend?
  • Am I dining at home or at someone else’s home?
  • Will I be preparing the food, or will someone else be?

Once you know more about what your day/ weekend will look like, you can make a plan.

One key thing is to plan the menu in advance.  If you are not dining at home, but at a friend’s or relative’s home, it will be important to ask what is being served, then…

  • Ask if you can bring a side dish (one that is suitable for you, but enough for everyone to share).
  • Let them know about your dietary needs so they can omit or serve items on the side that are not suitable for a low protein diet, like cheese or bread crumbs.
  • See if you can access the kitchen to re-heat or make additional low protein items for the holiday meal.

Get Creative!

Many traditional holiday favorites can be modified to reduce the protein while still keeping the taste and texture you and others love.

Find our simple recipe for reduced protein mashed potatoes here – this dish is sure to become a family staple at your holiday meal.

And end your holiday meal on a sweet note with this low protein dessert.  This is a dish everyone at your holiday gathering is sure to enjoy!

Easy Pumpkin Pudding

Recipe developed by Sarah Marshall, classical Phenylketonuria (PKU)

Ingredients:

  • 1 fl oz water
  • 7 fl oz coconut milk (full fat, canned coconut milk required to get  pudding-like consistency)
  • 6 whole pistachios (for flavor, to be strained out later)
  • ½ Tbsp brown sugar
  • ¼ tsp pumpkin pie spice (or blend of cinnamon, ginger and nutmeg)
  • ½ tsp vanilla flavoring
  • ½ cup Loprofin Rice

Directions:

  1. In a small saucepan, add 1 oz water, 7 oz coconut milk, and 6 pistachios.
  2. Bring to a boil. Immediately when it begins boiling, add brown sugar, vanilla, and pumpkin pie spice. Stir.
  3. Add Loprofin Rice. Stir. Cover, and lower heat to simmer covered for 10 minutes.
  4. Once rice is cooked, remove pistachio pieces.
  5. Serve warm or cold.

Makes 2 servings

And most of all……

Holidays do not have to be all about food.  Make your holidays memorable with family traditions, such as a family football game or a checkers tournament.

Happy Thanksgiving to you and your family from Nutricia!

Loprofin brand Rice is a medical food for the dietary management of inherited metabolic disorders, renal or liver failure requiring a low protein diet, and other medical conditions where a low protein diet is indicated. Must be used under medical supervision.

Always consult a metabolic healthcare professional prior to making any diet changes.

© 2019 Nutricia North America

PKU & Pregnancy – Preconception

The journey to motherhood, when you have Phenylketonuria (PKU), should begin with your metabolic clinic. It is essential to work with your clinic before, during and even after pregnancy. Only your clinic can provide the best guidance to ensure the best outcome for you and your baby. They will work with you to ensure well-controlled blood phenylalanine (PHE) levels prior to pregnancy and throughout your pregnancy to prevent the negative effects of elevated PHE.

Studies in maternal PKU (MPKU) have shown uncontrolled blood PHE levels during pregnancy can cause the following outcomes for the baby:

  • Microcephaly (small head size)
  • Intellectual disability
  • Behavioral issues
  • Congenital heart defects (CHD)
  • Low birth weight and reduced length for age

Keeping your PHE levels within recommended range will help protect your baby from these risks.

Steps to getting PHE levels in the recommended range:

Find low-PHE recipes at medicalfood.com/recipes

Recommit yourself to the low PHE diet

  • Explore vegan recipes with the plant-based protein ingredient omitted (such as nuts, soy, tofu, etc.)
  • Change regular bread, rice and pasta to low protein versions, such as Nutricia’s Loprofin low protein food line

Find a PKU formula you enjoy

  • Nutricia offers the widest range of PKU formula options. You are sure to find one that meets your personal taste and needs. Check out Nutricia’s formula options here.
  • Create a plan and stick to it – this will help to make sure you take all your recommended formula each day at scheduled times.

Make a new routine

  • Regular blood samples (blood spots) will let you know when your PHE levels are in the ‘safe-range’ for pregnancy. Set a reminder on your calendar or cellphone to send your blood spots to your clinic on a regular basis (as instructed by your clinic).
  • Meal planning in advance will help make food shopping and new dining habits easier.

Get connected

For more helpful tips and tools to help get you ready for this next stage of life, request a Nutricia Maternal PKU Starter Kit.

All products shown are medical foods are for the dietary management of Phenylketonuria (PKU) and must be used under medical supervision. Please consult your metabolic healthcare professional prior to making any changes to your PKU diet.

© 2019 – Nutricia North America

Boo! A Simple Low Protein Halloween Treat

A not-so-spooky recipe for gatherings and parties this season

Free ground shipping on all orders over $30.

Happy October! Halloween will be here in a flash, and our team at Nutricia wants to share with you and your family a simple low protein Halloween snack: marshmallow squares made with our Loprofin Cereal Loops!

Nutricia Loprofin Cereal Loops are perfect for a satisfying low protein breakfast, as well as special treats like this! Available at MedicalFood.com.

With a delicious base recipe and endless decoration possibilities, this treat is ideal for Halloween gatherings and trick-or-treat parties where you and your family would like to include a low protein option.

Click here for our low protein cereal marshmallow treat recipe and nutrition information. These treats are frighteningly simple to make because the recipe calls for just 3 ingredients! As an added bonus, the recipe is ready in a matter of minutes.

With the base recipe complete, add some Halloween flair:

Fun candy eyes*:

*Candy eyes were purchased at a party store and contain 0 g protein per 1 tsp serving size, per Nutritional Facts label on the back of the package.

You can also insert Halloween cupcake toppers into the squares if you don’t want to add any additional food ingredients to the treats. Themed cupcake toppers can be found in party stores and even grocery stores during this season.

Lastly, adding simple paper decorations to your plate is another easy way to get into the Halloween spirit:

Enjoy, and Happy Halloween to you and yours from the Nutricia team!

Check out our Facebook page for more fun recipes and gathering ideas!

Loprofin brand cereal Loops is a medical food for the dietary management of inherited metabolic disorders, renal or liver failure requiring a low protein diet, and other medical conditions where a low protein diet is indicated. Must be used under medical supervision.

© 2019 Nutricia North America

Proud Moments for the Mullen Family

Brady and Quinn drink PhenylAde® GMP Drink Mix and start owning their PKU diets

Do you remember the moment you got the call about your child having an inborn error of metabolism?

In this video, Allyson Mullen shares her heartfelt story about that moment. Her sons Brady and Quinn received classical Phenylketonuria (PKU) diagnoses, which scared Allyson at first. Allyson opens up about what she’s learned as a parent and how Brady and Quinn have started taking on responsibility for their PKU management.

Allyson also shares why the Mullen family made the move to PhenylAde GMP Drink Mix for the boys’ PKU formula. Spoiler Alert: Brady actually called this formula “delicious,” and mom Allyson loves it because the formula contains glycomacropeptide (GMP). GMP is made from a whole protein source, and Nutricia’s PhenylAde GMP Drink Mix has a creamy, mild vanilla flavor with a smooth drinkable texture. It is also available in an original plain flavor.

Watch now to hear more about Allyson Mullen’s proud moments and why her boys love PhenylAde GMP Drink Mix.

Brady and Quinn Mullen made the move to PhenylAde GMP Drink Mix for their PKU formula.

Will your family give it a try?

PhenylAde GMP Drink Mix is a medical food for the dietary management of proven Phenylketonuria (PKU) and must be used under medical supervision.

Always consult a metabolic healthcare professional prior to making any diet changes.

© 2019 Nutricia North America

Back to College Interview with James Fryer

Reflections from a rising sophomore managing PKU and a busy schedule

This time last year as James Fryer was beginning his first year of college at Willamette University, he knew he was heading into a big life transition. Some of the adjustments proved more stressful than he anticipated.

“Always remembering, on my own, to have an adequate supply of formula,” reflects James on one of his PKU management tips. His hometown and college are in different cities, meaning preparation is very important.

Good thing James is a planner. He thrives on a schedule, whether for formula supply or diet and wellness, and is a master at making them. “I look at my schedule to see where I have time to cook versus go for a run,” shares James. This is a prime example of James’ planning that he feels led him to be successful not only in the classroom but also on the soccer field, becoming part of Willamette’s club soccer team.

James tried PhenylAde GMP READY as part of his daily routine. Will you?

Another campus group important to James are the chefs who prepare James’ food. “Willamette has taught me new, interesting things about [cooking] vegetables,” says James.

He got close to one of the university chefs this past year who was dedicated to James’ diet. The chef introduced the freshman to new things, such as fried cauliflower “rice” and utilizing all types of spices like turmeric and paprika. It’s a great relationship that James hopes to continue.

“Perhaps the biggest mistake I made was not stocking enough prepared snacks around the dorm”

-James

Outside the dining hall and back in his dorm room, James learned a lesson he’s eager to share with other college-bound PKU’ers, “Perhaps the biggest mistake I made was not stocking enough prepared snacks around [the dorm].” By the end of the year, James had a nice stockpile of low protein snacks, including low protein cereal, his standby. And another favorite snack that he’ll be continuing to eat this year? James is ready with an answer: “Dried cranberries!”

For handy and filling dorm snack, try Loprofin Loops low protein cereal

Other “grab-and-go” food on hand included dried jackfruit, which his dad got for him, and which ended up being popular among his friends. Applesauce cups and low protein rice cereal treats also helped James stay full and fueled between meals.

“If you’re constantly hungry,” James recommends to other PKU college students, “consider talking [to your metabolic healthcare professional] about adjusting formula or food, versus going off diet.”

With a new school year on the horizon, James is looking to stay on track diet-wise to help him succeed at new heights on the field and in the classroom. In fact, he’s hoping to declare a major this year, potentially math. With club soccer, he shares that he’s interested in building a soccer community around him, which ties into another goal of establishing relationships that go deeper than the differences in his diet.

Good luck with sophomore year, James! And be sure to pack plenty of dried cranberries!

PhenylAde GMP READY is a medical food for the dietary management of proven Phenylketonuria (PKU) and must be used under medical supervision.

Always consult your metabolic healthcare professional prior to making any changes to your diet. 

© 2019 Nutricia North America

Back to School Interview with Heather Bomar

Heather, right, with daughter Ellis

Tips and wisdom from a parent of a PKU 7th grader

“I feel like I’m pulled in four different directions all summer!” says Heather Bomar of Brentwood, Tennessee, in describing her busy but fun summer season. Her four children, including 12-year-old Ellis who has classical Phenylketonuria (PKU), do a variety of activities over the summer. This means Heather spends much of the warmer months making sure they get where they need to go. 

In thinking about the back-to-school season, Heather reflects that the new year brings a new routine:

“The kids actually love the new schedule and seeing who’s in their classes,” shares Heather. The new routine also helps keep Ellis’ phenylalanine (PHE) levels in check, since the school year means set meal times and fewer impromptu gatherings that may or may not have low protein food options.

With Ellis heading into 7th grade, Heather is very familiar with back-to-school planning that works well for both Ellis and the family:

Download our Teachers and School Nurses PKU Education Guide to hand to your child’s teachers or use during parent-teacher meetings! Check out other PKU educational materials on the Nutricia website.

First, Heather meets with Ellis’ new teacher at the beginning of each school year to run through the basics of Ellis’ condition and diet. Second, she recommends co-creating a plan with the teacher, if necessary, to provide the best chance of success for a student with PKU, such as the student sitting in one of the least distracting places in the classroom. 

One of the most top-of-mind topics for parents of children with PKU is school lunch. The Bomars send Ellis to school with lunches packed at home. It’s a system that works for Ellis and the family. For her PKU formula, Ellis drinks PhenylAde® GMP Mix-In formula at school. When asked about snacks and lunch items, Heather responds without hesitation that Ellis’ favorite is “anything that she can dip in Ranch dressing!” Examples include celery, carrots, and peppers.

Ellis drinks PhenylAde GMP Mix-In formula at school. Will your family give it a try this year?

Other lunch favorites of Ellis’ include dried fruit, especially store-bought freeze-dried strawberries and apples. After school or at home on the weekends, Ellis enjoys low protein crackers smeared with butter and salt, a snack that Heather sometimes shares with her daughter as they catch up and talk about Ellis’ middle school, which Heather also attended!

Outside of lunchtime and PKU management, Ellis’ 7th grade year will revolve around establishing her sense of self: 

“Ellis loves school and has a good group of friends,” reflects Heather, “and she’s focused on finding her identity in things outside of PKU.”

As advice to other parents raising children with PKU, Heather takes a step beyond day-to-day food prep and considers the full parent-child relationship: “Stick with them through the highs and lows,” says Heather, “Keep up open conversations.”

… And don’t forget the Ranch dressing!

Read on for 10 More Low Protein Lunch Tips for School:   http://www.lowproliving.com/lunchtips/

PhenylAde GMP Mix-In is a medical food for the dietary management of proven Phenylketonuria (PKU) and must be used under medical supervision.

Always consult your metabolic healthcare professional prior to making any changes to your diet.

© 2019 Nutricia North America

Shake-Up Your Day with PhenylAde® GMP Drink Mix

Here are some fun recipes using PhenylAde GMP Drink Mix to help you ‘Shake-Up Your Day’.

If you are looking for a great tasting PKU formula that also provides a source of Glycomacropeptide (GMP), then you found it.

PhenylAde GMP Drink Mix contains GMP, made from an intact protein source.

PKU formula with GMP is known for having a mild taste, which can help make drinking formula more enjoyable. Another way to help keep PKU formula fun and interesting is to create a custom shake to provide additional variety.

**Adding flavoring to PhenylAde GMP Drink Mix may change the PHE/Protein content. Be sure to read labels and account for any added PHE or Protein

Request a Sample Today!

Download the full PhenylAde GMP Recipe Book Now

© 2019 Nutricia North America

PhenylAde®  GMP Drink Mix is a medical food for the dietary management of proven Phenylketonuria  (PKU) and must be used under medical supervision.   Always consult your metabolic clinic prior to making any changes to your PKU diet.

PKU Diet Adherence: Important, but not always easy

Many people hit a time in their life when their metabolic diet management may be… less than optimal.

It’s what you do next that is the key. Not losing hope, not saying “I’ll never be able to return to diet” is part of making a successful change. Keeping a positive outlook and setting small goals to get your PKU or other metabolic diet back on track is important to success.

For example, Katie, a second-grade teacher who recently became a mother, is committed to following her PKU diet.

However, it was not always that way for her.  As a teen, she was concerned about fitting in and that meant eating foods that were not part of a low protein diet.  She quickly found herself going off-diet. She knew that keeping her PHE levels in check was important to her future dreams of going to college.

Katie admitted that returning to diet and having to drink PKU formula again was something she was just not ready for but wanted to get her PHE levels in control once more.  She contacted her metabolic clinic and opted to begin her return to diet with PKU formula in a tablet form.  Tablets are discreet and can be taken anywhere.

Once she was ready, Katie returned to drinking formula and eating low pro. She was even featured in a low protein cooking video series sponsored by Nutricia.

Hear Katie’s Story

So, if you are looking to return to diet or find a new PKU formula, Nutricia is here to help.  We provide more than just formula and can help connect you with a local clinic and take that first step toward returning or improving your metabolic diet.

 

Contact us today!

DietforLife@Nutricia.com

 

 

Next Blog:   10 Reasons to Try Phlexy-10 Tablets

 

© 2019 Nutricia North America

Nutricia is a manufacturer of medical foods for the dietary management of inborn errors of metabolic.  All products must be used under medical supervision.

10 Reasons to Try Phlexy-10 Tablets

Did you know… Drinking PKU formula isn’t your only option?

There is another option to help get the daily PKU formula you need.*   Nutricia is proud to offer the option of PKU formula in tablet form. 

  • Phlexy-10 Tablets are a discreet and convenient way to take your formula. 

  • Use in addition to your current formula to help reduce the amount you need to drink. 12 Tablets = 10 g of Protein Equivalents

  • May be used as your main PKU formula instead of drinking PKU formula


 10 reasons to use Phlexy-10® Tablets for PKU

  1. Help meet your total daily formula intake, by taking tablets at night to replace that last serving of formula that you may be already skipping

  2. Convenient to take when drinking formula is not, like before sports practice or other after school activities

  3. Tablets won’t cause your locker or work area to smell like formula

  4. Lightweight source of protein (PHE-free) when hiking or camping

  5. A way to take in PKU formula when you just don’t want to drink it

  6. Prevents having to explain about your “special drink” in social settings

  7. Keep in your purse or back-pack for times you forget your formula at home

  8. Easy to take on a plane, train or other times when you will be away from home for long periods of time

  9. No messy liquid spills in your bag, purse or locker

  10. A quick and easy source of phenylalanine-free protein you can take just about ANYWHERE!


What is your top reason to try PKU Formula in Tablet Form?  Do you have another reason not listed?    Let us know!

 DietForLife@Nutricia.com

 

*Always talk to your metabolic healthcare professional prior to making any changes to your PKU diet.


Phlexy-10 Tablets are a phenylalanine-free medical food in tablet form, containing a mix of other essential and non-essential amino acids and small amounts of carbohydrate and fat. For the dietary management of proven Phenylketonuria (PKU), suitable for individuals over 8 years of age, including pregnant women and women of childbearing age. Must be used under medical supervision. Does not contain vitamins and minerals; must be combined with an appropriate vitamin and mineral supplement when taken as primary source of PKU medical food.

© 2019 Nutricia North America

What is GMP?

You’ve likely seen ‘GMP’ on a Phenyketonuria (PKU) or Tyrosinemia formula label or heard about it through your dietitian. But what exactly is it and why is it getting so popular?GMP can be used as a protein source for PKU and Tyrosinemia formulas. GMP, short for glycomacropeptide, is a peptide – a type of short protein. Peptides typically consist of shorter chains of amino acids, whereas true proteins are larger and more complex structures.

GMP is a byproduct of the cheesemaking process. Cheese is made from milk and contains intact protein. Milk consists of two types of proteins: casein and whey. During the cheese making process, the whey is separated from the casein; the casein part is what is used for cheese, the whey part is used for other purposes. GMP is found in the whey portion and must be filtered out to be used as an ingredient in formulas.

Contrary to other proteins, pure GMP does not contain phenylalanine (PHE), tyrosine (TYR) and a couple of other amino acids. That’s why it is a suitable protein source for PKU and Tyrosinemia formulas. However, through the process of isolating GMP from the whey part of the milk, some very small amounts of PHE and TYR cannot be filtered from the actual GMP and are part of the GMP ingredient used in PKU and Tyrosinemia formulas.

GMP by itself lacks certain amino acids that are important for growth and development. These amino acids must be added to the formulas so that PKU and TYR formulas are appropriate for individuals with PKU or Tyrosinemia. That’s why you see GMP and free amino acids listed as ingredients on your PKU and Tyrosinemia formula label.

You may have noticed slight variations in the PHE content when comparing GMP formulas (for example, between 10‐18 mg PHE per 10 g protein equivalent). Healthcare professionals have told us, that the differences are so small that they are clinically not relevant, and studies support this. This means that if a GMP‐based product is appropriate for someone with PKU or Tyrosinemia, the slight differences in PHE content are not important.

GMP is still a growing concept, but several studies support that GMP‐based products are safe and appropriate for most individuals with PKU or Tyrosinemia. GMP‐based products have a milder taste, and that milder taste is often preferred over amino acid‐based products. Finding a formula you or your child like is very important as that can certainly help with diet adherence. In addition, a small number of studies also report that patients feel fuller when consuming a GMP‐based formula.

A small number of clinical studies are also looking into other benefits of GMP‐based products in metabolics. However, the results of these studies are inconclusive. More research is needed to provide definite answers.

For some people with PKU or Tyrosinemia, the amount of PHE in GMP‐based formulas may be too high. Rest assured that formulas that are based 100% on amino acids (with no GMP) provide you or your child with all the nutrients needed for proper growth and development, including important vitamins and minerals for bone health. But of course, your dietitian can advise you on which formula is best for you or your child.

Want to find a GMP‐based formula? You’ve come to the right place!

Check out the variety of GMP‐based formulas that Nutricia has to offer: click on a product above  and read our blog on GMP‐based products from Nutricia.  READ NOW

Always talk to your dietitian before making any diet changes – and contact us if you have any questions about metabolic formulas. Visit www.MedicalFood.com for more information.

Written by: Ulrike Reichert, MS

Director Medical Affairs Keto/Metabolics Nutricia North America

 

 

PhenylAde GMP READY, PhenylAde GMP Drink Mix, and PhenylAde GMP Mix-In are medical foods for the dietary managment of proven Phenylketonuria (PKU) and must be used under medical supervision.  TYR Lophlex LQ is a medical food for the dietary management of proven Tyrosinemia  and must be used under medical supervision.