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Help Support PKU Awareness with a #Toast2PKU

Raise your glass and be counted!

In support of PKU Awareness Day on December 3, 2018, Nutricia is challenging you to POST YOUR TOAST!

For each tagged post on Facebook or Instagram with #Toast2PKU, Nutricia will donate $5 to the National PKU Alliance to help support their mission to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.*

So don’t delay, post and tag your  toast today!



You can also show your support with a direct donation to the NPKUA


Note: Facebook and Instagram are in no way affiliated with Nutricia and have not endorsed this contest or Nutricia products. Only tagged posts made between November 15, 2018 and December 3, 2018 11:59pm  will be counted toward the donation to the National PKU Alliance.

*Nutricia will cap the donation to a maximum of 600 posts during this time period or up to $3000.

 

 

Tips for a Low Protein Friendly Halloween

Trick or Treat?

For children with an inborn error of  metabolism, Halloween celebrations can be tough since protein-containing candy and snacks tend to be the classic party staples. Additionally, these celebrations can be scary on parents as they want their children to fully enjoy in the festivities while maintaining their dietary restrictions.

Here are a few tips, resources, and recipes to help make Halloween fun while staying on a diet low in intact protein:

First:

  • Speak with teachers or other parents about what your child can and cannot have at Halloween parties or school

  • Also talk with your child about the importance of staying on diet and remind them to check with you to determine if a particular food or candy is

Now to the Fun Stuff:

  • Get creative with Halloween Have non-food treats to hand out at home or at school. Think dollar store toys, stickers, party favors, and coloring books.

  • Plan an alternative activity to trick-or-treating, such as Halloween slumber party, game night, craft party, or a scavenger

  • Supply low-protein treats for your child’s Halloween parties and festivities so he/she has something to enjoy and doesn’t feel left out – View Halloween Cupcake Recipe

  • Consider having a “swap-party” where your child can swap candies he/she cannot have for “allowed” This way everyone gets what they want!

  • Make your child’s metabolic formula festive! Serve it in a Halloween- themed cup, use fun straws, or add some orange food

Post Your Formula ‘Dressed-Up’ for Halloween and TAG Nutricia! 

#NutriciaMetabolicNutrition      

Halloween Low Protein Cupcakes

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Surprise a special someone or treat yourself to a Halloween cupcake. These cupcakes are made with Loprofin Baking Mix. They are easy to make and great for at home, work or parties.

 

Makes 10 cupcakes

 

Ingredients

  • 88 g (3/4 cup ) Loprofin Baking Mix
  • 1/4 cup white sugar
  • 1 teaspoon egg replacer
  • 1 teaspoon baking powder
  • 5 ounces of water
  • 1/4 cup margarine
  • 1/2 teaspoon vanilla extract
  • 4 drops orange food coloring
  • 1/2 cup white frosting
  • 20 candy corns

 

Method:

 

  1. Preheat oven to 350°F (180°C)
  2. Cream together margarine and sugar until light and fluffy
  3. Add Loprofin Baking Mix, egg replacer, and baking powder into the creamed mixture and mix well
  4. Add water, vanilla extract and orange food coloring gradually, mix until smooth
  5. Spoon batter into paper cups filling each cup about 2/3 full and bake for approximately 10-15 minutes
  6. Let cool on a baking rack
  7. Decorate with frosting and candy corn
Nutritional Information Per Cupcake
Calories 155
Protein 0.1 g
Phenylalanine 4 mg
Leucine 7 mg

 

Note:  Any additional frosting or decorations may add additional protein, phenylalanine, leucine or calories, be sure to read labels and account for any topping or decorations.

All Nutricia products shown are for the dietary management  of inborn errors of metabolism and must be used under  medical supervision. Please consult your metabolic healthcare professionals prior to making any changes to your diet.

10 Low Protein Lunch Tips for Back-to-School

Back to School: Attention Moms & Dads

Written in collaboration with Katie Maguire, PKU Adult and 2nd grade school teacher

I don’t know about you, but it was stressful for my parents sending me off to school in September knowing that I would be making many food choices on my own without them present.

ALL children should be able to make healthy food choices. Children with PKU, MSUD, TYR or other metabolic disorders are no different.

Learning healthy choices can begin at a young age when you grocery shop and prep food in the kitchen together.

10 Low Protein Lunch Tips for Back-to-School

 

  • Pack lunch in fun, creative containers in all different sizes.

  • Use an insulated lunch tote with ice packs to keep food and formula cool.

  • Make lunch colorful with a small amount of different veggies, such as baby carrots, cherry tomatoes, cucumbers, yellow peppers, etc.

  • Prepare, weigh and measure food ahead of time to speed up mornings.

  • Give your child a low protein “surprise” snack like homemade cookies or a cupcake.

  • Write a special ‘good job’ note or include a sticker 2-3 times a week.

  • Send formula in a fun re-usable drink container or sports bottle.

  • Plan ahead with a 5-day menu to ease grocery shopping and food prep.

  • Try a ready-to-drink formula if unable to mix formula at school.

  • Involve your child in shopping, prepping and weighing their own lunch.


Ask your clinic about Ready-to-Drink Formula for school children

 

Periflex® LQ is a great tasting, ready-to-drink   that provides 15 g of protein equivalents with 0 mg of PHE.  (For PKU Only). Great for school lunch!

 


Nutricia also offers the Lophlex® LQ line of Ready-to-Drink formula options for Maple Syrup Urine Disease (MSUD), Tyrosinemia (TYR), Homocystinuria (HCU) and Phenylketonuria (PKU).

 

 

Lophlex LQ is a low volume, quick and easy way to get 20 g of protein equivalents.

As always, check with your dietitian if these products are appropriate for your child prior to making any changes to their diet.

Ask your clinic about Periflex LQ or Lophlex LQ Today!

 


Periflex LQ is a medical food for proven Phenylketonuria (PKU). Lophlex LQ is a medical food for proven Maple Syrup Urine Disease (MSUD), Tyrosinemia (TYR), Homocystinuria (HCU) or Phenylketonuria (PKU). Must be used under medical supervision. Please consult a metabolichealthcare professional prior to making any changes in your child’s diet.

©2018 Nutricia North America

Help your child’s teacher better understand PKU

It’s Back-to-School Time! 

The return to school is an exciting time of year.  But for a parent of a child with a metabolic disorder, such as Phenylketonuria (PKU), there are also certain concerns and stresses that comes with the start of school. 

Each year you may be faced with educating a new teacher or school nurse about PKU.

What is PKU?  

How it is Treated?  

What that means to the teacher and fellow students…

Nutricia Metabolics is proud to share an educational handout to help you inform your child’s new teacher and/or school nurse about PKU.

It includes information about What PKU is, What happens, How it is treated with additional classroom tips for the teacher.

Click to Download:  Guide to PKU – Teachers & School Nurses

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Click to Download

 

Nutricia also provides information and education available about other rare metabolic disorders such as Maple Syrup Urine Disease (MSUD), Tyrosinemia (TYR), Glutaric Aciduria Type-1 (GA-1), Homocystinuria (HCU) and more available online at medicalfood.com/connect

 

Get Ready for Summer with PKU Lophlex LQ!

Summer is one of the best season!  Long days, fun adventures, amusement parks and the warm sun are just a few reasons summer is such a great time of the year.

When you have PKU, you also need to think about how you will transport and drink your PKU formula when out for a full day.

Imagine you could have a great tasting PKU formula that you could easily drink when:

– Mountain Biking
– Canoeing with Friends
– At an Amusement Park
– Hiking or Camping
– Vising Family or Friends
– Hanging Out by a Lake

 

Don’t imagine it any longer!

Try PKU Lophlex LQ, a great PKU formula for summer. Each ready-to-drink pouch is protein packed with 20 g of protein equivalent and only 120 calories. Lophlex LQ are low volume and ready-to-drink which is great for life on-the-go.

Plus, it is the only low volume, ready-to-drink PKU formula made with real fruit juice* from concentrate for a refreshing taste on a hot summer day.

The only question is …

Post your on-the-go PKU Lophlex LQ photo on Instagram!  #PKU Summer

 


Try PKU Lophlex LQ Today!

✓ Low Volume
✓ Only 120 Calories
✓ Quick & Easy to Drink

      REQUEST A SAMPLE 3-PACK

Available in Mixed Berry, Juicy Orange and Juicy Tropical


*Juicy Orange contains 45.5% juice. Mixed Berry Blast contains 44.1% juice. Juicy Tropical contains 28.4% juice.

PKU Lophlex LQ is a medical food for the dietary management of proven Phenylketonuria (PKU) in individuals over 4 years of age. Must be used under medical supervision. Consult your metabolic clinic prior to making any changes to your metabolic diet.

Copyright 2018 Nutricia North America

Drink It How You Like It

Turn What You Like Into PKU Formula with PhenylAde® GMP Mix-In

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6300143Virtually Tasteless and Odorless

#DrinkItHowYouLikeIt


NOTE:  PhenylAde GMP Mix-In is a medical food for the dietary management of proven Phenylketonuria (PKU).  Must be used under medical supervision. Always consult your metabolic healthcare professional prior to making any changes in your PKU diet plan.

Nutricia Connect can help with finding formula coverage

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Working to get insurance coverage for medical formula can be a long and frustrating process. You many  not always know the right questions to ask, the process for coverage may change along with legislation for coverage of medical formula and you may not know of all the outlets for coverage available to your family.

The good news is that you don’t have to face these coverage challenges alone.

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Through our Nutricia Connect program our team of Coverage Specialists are available to help you seek coverage and answer questions throughout the process. You might be wondering:

  • Do I have to pay for out-of-pocket costs?

  • My insurance denied formula coverage, now what?

  • I am on WIC, is Nutricia formula covered?

Our coverage team works with different insurance plans, your dietitian, and if necessary your employer to find formula coverage. Here is one family’s story.

Here is one family’s story.

 

Contact our team if you have questions on formula coverage.  Learn more at www.medicalfood.com or email us at Coverage@MedicalFood.com

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

New Education Tools!

Families like yours told us they wanted more educational tools to help better understand and teach others about their child’s metabolic disorder.

We heard you!

Nutrica is proud to share new, easy to understand, educational books and videos help breakdown complex disorders so you can use them to educate others in your community. You may also find them helpful in teaching your child about his/her disorder.

For now, these books and videos are available for PKU, MSUD and GA-1. Our team is working hard to create more for other rare disorders and make them available in Spanish and French.

PKU

Want a printed copy of the Temple Books?

Click HERE for a PDF copy of the Temple Books you can download and print at home.

 

What do you think about the books and videos? 

We would love to know!   Connect with us on Facebook.   Facebook/NutriciaMetabolicNutrition

 

Nutricia Metabolic products are meant for use under medical supervision. Remember, always consult an experienced healthcare professional for the management of all metabolic disorders.

Find a PKU Formula that Works for You

Whether you have been drinking the same formula for years or if you are reading this in an effort to return to the PKU diet, understanding the ‘types’ of PKU formula available to you is important. 

World-wide there are over 60 different PKU formulas! Knowing you have options to get back-on-track or make a change in the future will help you reach and maintain your PKU diet management goals.

Types of PKU Formula

SHAKES – Many formula options are in powdered form and get mixed with water to make a shake-like drink. Shake-like formulas typically provide a balance of fat, carbohydrate, phenylalanine-free* protein, vitamins and minerals. Shake-like formulas often contain a good number of calories, which may benefit active children and adults with higher caloric needs.

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*Formulas which contain an ingredient called glycomacropeptide (GMP) contain some phenylalanine. See below for more about GMP-based formula options for PKU.

LESS-TO-DRINKPKU is Diet-for-Life. As you grow and get older you will need more protein from formula. However, you may not need as many calories from formula since you will also consume more foods low in protein. Lower volume formulas typically have less calories and mix with only 3-5 fl oz of water, so you can drink less formula to meet your daily phenylalanine-free* protein needs. This may also be helpful to those unable to finish their shake-like formula due to being overfull.

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READY-TO-DRINK – Life is busy and staying on diet is of utmost importance, which has made these pre-mixed, ready-to-drink formulas a very popular choice. These formulas come in both the shake-like (Periflex® LQ) and less-to-drink (Lophlex® LQ) options so everyone can find something to meet their needs. Just simply shake, open, drink and go.

rtd
FLEXIBILITY – Everyone is different and sometimes you need a formula option as unique as you. There are multiple ‘flexible’ options for PKU formula; such as tablets and mix-in powdered formulas. Tablets are an option for people who are unable to drink PKU formula or just want to drink less, but meet their full daily protein recommendation.

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Mix-In formula powders are another flexible option that allows you to create your own PKU formula. You can add these powders to sports drinks, foods low in protein, or your current PKU formula to increase PHE-free protein content of your favorite shake-like formula.

GMP-BASED PKU FORMULA–Glycomacropeptide, or GMP for short, is a whey protein concentrate derived from milk during the cheese making process. It is naturally low in phenylalanine, and with the addition of certain amino acids, it makes a suitable source of protein for those with PKU. Your dietitian will help determine how to count for the PHE in these products. GMP-based PKU formulas are available in many forms.

gmp
Nutricia has a great tasting shake-like GMP-based PKU formula (PhenylAde® GMP Drink Mix) and a create-your-own option (PhenylAde® GMP Mix-In) that does not significantly change the taste, even then mixed with  water!mix-in

As you can see, there are no shortages of PKU formula options. If you happen to be thinking about changing formulas or returning to diet let Nutricia help you find a PKU formula you will enjoy drinking.

Contact Nutricia Today DietforLife@Nutricia.com

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NOTE: All PKU formulas must be used under medical supervision. Always consult your metabolic healthcare professional prior to making any changes in your PKU diet plan.


Posted by: Sandy Simons, MA, RD, CHES
Sandy is a Registered Dietitian and Certified Health Education Specialist. She received her graduate training at Columbia University’s Teacher College in New York. She has been working on the industry side of metabolic nutrition for the past 14 years and is often seen at patient events around the country.

PKU is Diet-for-Life

 

Now is a great time to re-commit to better PKU diet management. Nutricia has a team of professionals who can assist you, or your loved one, get back on-diet.

Our help includes personalized support ranging from finding the right PKU formula, to resetting your low protein kitchen, and more. Our Diet-For-Life Care Coordinator can also lend an extra helping hand.

In addition, Nutricia can review your insurance and answer any questions you may have about formula coverage. Schedule a one-on-one insurance review today. Coverage@Nutricia.com

You can do it. You are not alone!

You can do it – and Nutricia is here to help. 

Nutricia can:

• Help you learn about new PKU formula options
• Provide more information about PKU and returning to diet
• Connect you with a metabolic clinic or a return to diet specialist
• Review your insurance plan for PKU formula coverage
• Share recipes and low protein cooking tips

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Don’t Wait Any Longer!

DietforLife@Nutricia.com or call 800-605-0410

NOTE: All PKU formulas must be used under medical supervision. Always consult your metabolic healthcare professional prior to making any changes in your PKU diet plan.


Posted by: Sandy Simons, MA, RD, CHES
Sandy is a Registered Dietitian and Certified Health Education Specialist. She received her graduate training at Columbia University’s Teacher College in New York. She has been working on the industry side of metabolic nutrition for the past 14 years and is often seen at patient events around the country.